Post Reply 
1 Month into CPAP - Still Exhausted. What Data to Post?
Author Message
IMSleeplessInSeattle Offline

Members

Posts: 18
Joined: Aug 2016

Machine: Resmed Airsense 10
Mask Type: Nasal mask
Mask Make & Model: Philips Respironics Dreamwear
Humidifier: Built in
CPAP Pressure: 6-9.6
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Seattle, WA

Post: #11
RE: 1 Month into CPAP - Still Exhausted. What Data to Post?
It's been about a week now and, paradoxically, it my average AHI has gone up with the higher pressure. Here was last night, for instance:

AHI 4.88, 9/27
Full view: http://take.ms/tZIuc
~5-minute zoom: http://take.ms/Ifsfr
09-28-2016 11:50 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
OpalRose Offline

Monitors

Posts: 3,163
Joined: Nov 2014

Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #12
RE: 1 Month into CPAP - Still Exhausted. What Data to Post?
I noticed you changed your EPR setting from 2 to 3. This may be triggering the increase in clear airway events. I would either turn it down to 1 or preferably off.
Try that for a few days and see if it makes a difference.

I still see that you may need further adjustment to your pressure settings, but try one thing at a time.

OpalRose
09-28-2016 12:23 PM
Find all posts by this user Post Reply Quote this message in a reply
IMSleeplessInSeattle Offline

Members

Posts: 18
Joined: Aug 2016

Machine: Resmed Airsense 10
Mask Type: Nasal mask
Mask Make & Model: Philips Respironics Dreamwear
Humidifier: Built in
CPAP Pressure: 6-9.6
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Seattle, WA

Post: #13
RE: 1 Month into CPAP - Still Exhausted. What Data to Post?
I think I can set it to have an EPR of 3 during the ramp while I'm falling asleep, then to go to 1 or ditch it altogether after that point. I'll give that a shot.
09-28-2016 01:07 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
PoolQ Offline

Advisory Members

Posts: 986
Joined: Jul 2015

Machine: AirCurve 10 VAUTO
Mask Type: Full face mask
Mask Make & Model: Amara View
Humidifier: Integrated
CPAP Pressure: 6.2, 15, PS4.0
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Sillicon Valley

Post: #14
RE: 1 Month into CPAP - Still Exhausted. What Data to Post?
you are 95% at very close to 12, your max. Typically you set the min at 2 cm below 95% and max at 2 cm above.
You are having more OA's than CA's, so I would suggest you handle the OA's first which should also get rid of the snores and keep the pressure from jumping around so much. This may help decrease your CA's.
09-28-2016 02:01 PM
Find all posts by this user Post Reply Quote this message in a reply
Sleeprider Online
Wiki Editor
Advisory Members

Posts: 3,317
Joined: Dec 2014

Machine: Resmed Aircurve 10 Vauto
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: Resmed Climateline
CPAP Pressure: Auto Bilevel 18/9, PS 3
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: Where they make Respironics

Post: #15
RE: 1 Month into CPAP - Still Exhausted. What Data to Post?
(09-28-2016 02:01 PM)PoolQ Wrote:  you are 95% at very close to 12, your max. Typically you set the min at 2 cm below 95% and max at 2 cm above.
You are having more OA's than CA's, so I would suggest you handle the OA's first which should also get rid of the snores and keep the pressure from jumping around so much. This may help decrease your CA's.

I think this is a good rule of thumb, but I thought OpalRose's advice to reduce EPR was better in this case, so I didn't comment further. It's possible that the OA is triggered by a low EPAP and that the new CA is from the pressure support. I like the idea of leaving pressure settings alone and reducing therapy EPR and seeing where this goes, before increasing pressure.

______________________________________________
Organize your SleepyHead Data
Post your SleepyHead Data from Imgur
Robysue's Beginner's Guide to Sleepyhead
09-28-2016 04:13 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
IMSleeplessInSeattle Offline

Members

Posts: 18
Joined: Aug 2016

Machine: Resmed Airsense 10
Mask Type: Nasal mask
Mask Make & Model: Philips Respironics Dreamwear
Humidifier: Built in
CPAP Pressure: 6-9.6
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Seattle, WA

Post: #16
RE: 1 Month into CPAP - Still Exhausted. What Data to Post?
Okay, I've done this for the past couple days. Here's last night:

Full view: http://take.ms/gtypF
~5 min zoom: http://take.ms/iIkt5
09-30-2016 10:56 AM
Find all posts by this user Post Reply Quote this message in a reply
Sleeprider Online
Wiki Editor
Advisory Members

Posts: 3,317
Joined: Dec 2014

Machine: Resmed Aircurve 10 Vauto
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: Resmed Climateline
CPAP Pressure: Auto Bilevel 18/9, PS 3
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: Where they make Respironics

Post: #17
RE: 1 Month into CPAP - Still Exhausted. What Data to Post?
Well, your median pressure is within 2-cm of the 95% now Smile. It's worth noting that your OA has been cut in half since you last posted data, from 2.74 to 1.30. The OA improvement has been turned into hypopnea events, otherwise CA is mostly unchanged. I think a minimum pressure of 8.0 might avoid about half the obstructive and hypopnea events, and that should drop you in to the 2-2.5 AHI level, with mostly CA residual.

This is good progress! You posted data, but it would be helpful to know how you feel, and what disruptions you sense.T

______________________________________________
Organize your SleepyHead Data
Post your SleepyHead Data from Imgur
Robysue's Beginner's Guide to Sleepyhead
09-30-2016 03:35 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
IMSleeplessInSeattle Offline

Members

Posts: 18
Joined: Aug 2016

Machine: Resmed Airsense 10
Mask Type: Nasal mask
Mask Make & Model: Philips Respironics Dreamwear
Humidifier: Built in
CPAP Pressure: 6-9.6
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Seattle, WA

Post: #18
RE: 1 Month into CPAP - Still Exhausted. What Data to Post?
This is what my overall data looks like: http://take.ms/ZVkcG

OA, on a nightly basis, seems to vary between 0.5 - 4, so I'm not sure yet if it's averaging down permanently, since we're dealing with early data. CA is definitely up, though, compared to the lower pressure period.

I still feel exhausted all the time. I haven't been able to detect any positive difference in my daytime sleepiness since starting CPAP therapy. Sometimes, it feels worse. Sad
09-30-2016 07:22 PM
Find all posts by this user Post Reply Quote this message in a reply
Sleeprider Online
Wiki Editor
Advisory Members

Posts: 3,317
Joined: Dec 2014

Machine: Resmed Aircurve 10 Vauto
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: Resmed Climateline
CPAP Pressure: Auto Bilevel 18/9, PS 3
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: Where they make Respironics

Post: #19
RE: 1 Month into CPAP - Still Exhausted. What Data to Post?
Well, what you posted was kind of worst case as opposed to typical. Based on the history, your best data results were 9/5 with EPR at 2. Everything else with higher minimum pressure was worse. That kind of changes things for me with regard to the higher minimum pressure. You're getting the hours, and the therapy is mostly working well. You might want to go back to what worked best, and consider that there are other things with similar symptoms. Have you had a complete workup including T?

______________________________________________
Organize your SleepyHead Data
Post your SleepyHead Data from Imgur
Robysue's Beginner's Guide to Sleepyhead
09-30-2016 08:51 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
Violetskyye Offline

Preferred Members

Posts: 34
Joined: Aug 2016

Machine: Resmed Airsense 10
Mask Type: Full face mask
Mask Make & Model: Resmed F-10
Humidifier: Resmed Airsense
CPAP Pressure: 6-10
CPAP Software: ResScan SleepyHead Other Software

Other Comments:

Sex: Female
Location: California

Post: #20
RE: 1 Month into CPAP - Still Exhausted. What Data to Post?
Sometimes the exhaustion is from chronic low-level clinical depression. Worth getting that checked out and maybe trying a low dose of an antidepressant. Also thyroid or vitamin issues. And of course keeping up with the CPAP therapy.

I'm not a medical professional but have dealt w/ issues of chronic exhaustion and fibromyalgia. Hang in there.
09-30-2016 09:04 PM
Find all posts by this user Post Reply Quote this message in a reply
Post Reply 


Possibly Related Threads...
Thread: Author Replies: Views: Last Post
  post a picture worthog 3 102 12-02-2016 07:59 PM
Last Post: pupcamper
Arrow Your Personal CPAP Success Story - Post Here SuperSleeper 724 207,490 12-01-2016 01:18 AM
Last Post: kirkreid
  General rule for tweaking pressure - first post MartinT 7 359 11-15-2016 11:59 PM
Last Post: MartinT
  How do I post Sleepyhead Info? Saskie 8 231 11-11-2016 11:30 PM
Last Post: trish6hundred
  AHI index has taken a nose dive the past month pdbabb66 32 1,331 11-09-2016 05:58 PM
Last Post: pdbabb66
Question A10 autoset in CPAP mode- all data recorded? PreciousRoy 3 243 10-31-2016 04:25 PM
Last Post: trish6hundred
  Resmed Airsense 10 CPAP data versus Resmed Airsense 10 Autoset data David P. 4 522 10-29-2016 08:42 PM
Last Post: trish6hundred

Forum Jump:

Who's Online (Complete List)