10 Years of Absolute Misery

[SorryIamNormal]

I don't think you are as much a candidate for MMA as you think. I continue to think you need to further investigate your known Lyme infection as a root cause, both because of where you live, and because the symptom list (Brain Fog, malaise, fatigue, dizziness, aches and pains, headaches, anxiety, mood swings, depression, abdominal pains, nausea, diarrhea, sleep disturbances, stiff neck) is textbook for infection.  Please consider it.

Treating Lyme disease costs 100k.  A local government actually came to that number but I can't remember who it was or how they did it.  I live on 20k/year.  I don't have a family.  I have no hope of treating Lyme disease, even if I have it. 

The most effective treatment for Lyme disease is IV Rocephin.  Just read an article where IV Rocephin costs 3k per WEEK!  My entire plan is to be able to breath without electronic assistance, then I'm moving into a van (that I've already bought).  Finances are wiped out and gone.  And I'm going to be running from debt collectors, not just from credit cards but from the Hospital and next year another hospital from the MMA. 

Show me a Lyme provider who takes Medicare.

[JoeyWallaby]

From looking at the actual data on different days, he doesn't really react to pressure changes in any consistent way. The leaks and flow limitations are the two most obvious issues to me. It's kind of hard to tell how significant the flow limitations are as the Dreamstation appears to have a significantly lower polling rate than ResMed machines. I suspect he's dropping his mouth open in this large leak areas.

[Sleeprider]

First of all, I had a 30 day I.V. course of Rocephin (ceftriaxone sodium) and other deep antibiotics in 2015, so I know a bit about it. Your costs assume no coverage or discounts and hospitalization. Lyme treatment is a covered condition under Medicare, and is administered at home, and a nurse visits a couple times per week to make sure you do it right. First step is you need to make an appointment with an Infectious Disease Specialist MD to get started. The doctors in your area that come up under this are Lawlor, Quintillani and Ross. It might be worth calling and finding out, which ones specialize in Lyme and if they accept Medicare, rather than assuming you can't be treated.

You are unexplained running from the solution that will save your life. I got the same reaction last time I brought it up. Your problem is not CPAP, and another symptom of Lyme is irrational fears, behaviors and reactions. DAMHIK. I remember a day my wife was cooking and came towards me with a knife, and I thought she was out for me.

You can overcome this. Your physical symptoms, appearance, and mental processing of this problem are all too familiar to me.

[JoeyWallaby]

Covered under Medicare, that's good... glad we don't have Lyme disease in Australia
Seems pretty complicated

[SorryIamNormal]

First of all, I had a 30 day I.V. course of Rocephin (ceftriaxone sodium) and other deep antibiotics in 2015, so I know a bit about it.  Your costs assume no coverage or discounts and hospitalization.  Lyme treatment is a covered condition under Medicare, and is administered at home, and a nurse visits a couple times per week to make sure you do it right.  First step is you need to make an appointment with an Infectious Disease Specialist MD to get started.  The doctors in your area that come up under this are Lawlor, Quintillani and Ross.  It might be worth calling and finding out, which ones specialize in Lyme and if they accept Medicare, rather than assuming you can't be treated.  

You are unexplained running from the solution that will save your life. I got the same reaction last time I brought it up. Your problem is not CPAP, and another symptom of Lyme is irrational fears, behaviors and reactions. DAMHIK.  I remember a day my wife was cooking and came towards me with a knife, and I thought she was out for me.

You can overcome this.  Your physical symptoms, appearance, and mental processing of this problem are all too familiar to me.

It's covered under Medicare IF you respond to the standard tests, ELISA and Western Blot.  If you don't then it's tough sh*t.  If I am wrong please correct me.  I've read extensively about lyme.  One theory is that your immunse system is too weak to even mount an immune response you can measure.  The genome of Lyme (burgdifori?) I believe is 3 times that of a human.  It has three forms. 

I saw a holistic MD in Columbia MD (who was 380/hr) for 9 months.  My problem with her is that 'everything is Lyme'.  And you can't really challenge that either, because the tests are unreliable.  Then I saw an expert in Lyme for 800 in Rockville, MD (1 visit) who maintains a very popular blog.  He said the cardinal SX of lyme is night sweats.  I don't have those.  Then I was treated by an integrative MD (NOVA) and expert in bioidentical hormones (also 9 months). From 2012-19 I drank 4-6 liters/day, saliva cortisol off the charts.  She couldn't figure it out, because, just like I said, my URINE CREATININE is too high.  And half the test it is IMPOSSIBLE to tell if it is accurate or not because creatinine excretion IS SUPPOSE TO BE CONSTANT.  I'm willing to share my medical records anonymized.  Don't have a problem with more eyes on this issue.   

I have meantioned Urine Creatinine to drs and they just get angry with me or basically tell me to shut the hell up and be the patient.  Now I have never been to an infectious disease MD.  I'll give you that.  I'm not against going to one but I'd never get my hopes up.  Because I'm like 99% certain I've already had ELISA and Western Blot and it shows nothing.  And if it shows nothing the insurance company will say too bad so sad.

[Osiris357]

First of all, I had a 30 day I.V. course of Rocephin (ceftriaxone sodium) and other deep antibiotics in 2015, so I know a bit about it.  Your costs assume no coverage or discounts and hospitalization.  Lyme treatment is a covered condition under Medicare, and is administered at home, and a nurse visits a couple times per week to make sure you do it right.  First step is you need to make an appointment with an Infectious Disease Specialist MD to get started.  The doctors in your area that come up under this are Lawlor, Quintillani and Ross.  It might be worth calling and finding out, which ones specialize in Lyme and if they accept Medicare, rather than assuming you can't be treated.  

You are unexplained running from the solution that will save your life. I got the same reaction last time I brought it up. Your problem is not CPAP, and another symptom of Lyme is irrational fears, behaviors and reactions. DAMHIK.  I remember a day my wife was cooking and came towards me with a knife, and I thought she was out for me.

You can overcome this.  Your physical symptoms, appearance, and mental processing of this problem are all too familiar to me.

I had no idea Lyme disease can cause those things to happen, WOW!!! I'm definitely going to be more careful when they say a certain area is infested with ticks and just not go near the area

OP you should get to a doctor ASAP before it escalates!!!

[SorryIamNormal]

First of all, I had a 30 day I.V. course of Rocephin (ceftriaxone sodium) and other deep antibiotics in 2015, so I know a bit about it.  Your costs assume no coverage or discounts and hospitalization.  Lyme treatment is a covered condition under Medicare, and is administered at home, and a nurse visits a

I had no idea Lyme disease can cause those things to happen, WOW!!! I'm definitely going to be more careful when they say a certain area is infested with ticks and just not go near the area

OP you should get to a doctor ASAP before it escalates!!!

Here is the lyme test.

[JoeyWallaby]

https://www.cdc.gov/lyme/diagnosistestin...index.html

Some tests give results for two types of antibody, IgM and IgG.  Positive IgM results should be disregarded if the patient has been ill for more than 30 days.

https://www.aldf.com/are-serological-tes...disease-2/

Thus, because of the limitations of IgM assays and the high rate of false positives, their use should be limited to the first month of infection; however, that frequently is not the case. A positive IgM test along with a negative IgG test after the first month of infection almost always results in a false positive test.

[SorryIamNormal]

I had a surgery in 93 for a sunk in chest.  It was only partially successful.  I mention this because I read somewhere (can't  remember) that this can provide resistance when attempting to breathe.  Trying to make this short.  I've been to 9 different physical therapists.  PT fundamentally changed in the year 2000 because they dropped reimbursement for manual therapies and paid more for exercise. 

I have scar tissue from the top of my chest all the way down to my diaphram.  My upper body is basically frozen.  PT w ins can not conceptualize my problem, but they did in the Summer of 99.  So I didnt' even know about the scar tissue until I had a physical before sinus surgery in July.  I was seeing an orthopedic massage guy locally here but its 90/session and its untenable.  But he taught me alot.  I basically don't breath from my diagram at all, one of his theories is the scar tissue or its the hyperextension of my right shoulder cause asymetric (asymetric chest wall concave, moreso on right side) inflection on the top right of my chest.  I basically have an 'extra joint' in my chest (this is directly from a PT).  Which then causes a hunched over position. 

I won't show the regular picture because I'm rather self confident about it.  But I will in PM if you want to see this.  Here is the Xray.  The private PT guy that I saw he jaw dropped when I showed him this.  And finding any treatment for it I find to be.. impossible.  All they will give me are pain pills.  I'd much rather have the problem solved. 

I mention all of this because, well we are talking about breathing issues/cpap so I t hought this might be relevant.

[SorryIamNormal]

https://www.cdc.gov/lyme/diagnosistestin...index.html

Some tests give results for two types of antibody, IgM and IgG.  Positive IgM results should be disregarded if the patient has been ill for more than 30 days.

https://www.aldf.com/are-serological-tes...disease-2/

Thus, because of the limitations of IgM assays and the high rate of false positives, their use should be limited to the first month of infection; however, that frequently is not the case. A positive IgM test along with a negative IgG test after the first month of infection almost always results in a false positive test.

I am too tired to understand any of this would you be willing to explain?  I know you can't treat based on lab tests alone but my understanding is that ins. won't pay unless you meet their rigid standard.