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109AHI, starting 2nd week on CPAP, have some questions
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DariaVader Offline
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Posts: 1,819
Joined: Nov 2014

Machine: Resmed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Airfit P10 for Her
Humidifier: H5i humidifier with ClimateLine heated hose
CPAP Pressure: 8-15
CPAP Software: SleepyHead

Other Comments: diabetes II, Thyroidectomized, Primary Immune Deficiency, and the list goes on :P

Sex: Female
Location: Oregon

Post: #11
RE: 109AHI, starting 2nd week on CPAP, have some questions
As I said before, my son had a similar AHI to yours... 102 on the home study, but if you simply subtract the ~ 1hr he was in the upright position and figure at the least he was not sleeping at that time (he said he wasnt) it was more like 120. whenever he was asleep it was a solid red line of events, and his desats were in the 60s. In his case, he couldn't even tolerate pressure below 10 - suffocating for him. His first weeks were like you describe, with AHI that was very much nowhere near the controlled range. He settled on a 12 to 20 pressure range, and within a couple mo went back for a Bilevel titration, which is what he has now. In his case, clear airway events are rare - it's all obstructive - and the Bilevel helps him to tolerate the higher pressures he needs --- but these days a typical night has an AHI between 1 and 2. At his pressures, the worst struggle is with leaks.

All this is to say - hang in there and be patient, with some analysis and some work, you too can be getting much better sleep. My son is (mostly, hehe) human again. In the months leading up to his sleep study things got really dicey for him! and even now, if things go south with his therapy, he is a sick puppy. He's been on therapy for almost 1 year now.

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
Tongue Suck Technique for prevention of mouth breathing:
  • Place your tongue behind your front teeth on the roof of your mouth
  • let your tongue fill the space between the upper molars
  • gently suck to form a light vacuum
Practising during the day can help you to keep it at night

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
07-06-2016 03:18 PM
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DariaVader Offline
Apnea Board Facebook Editor
Monitors

Posts: 1,819
Joined: Nov 2014

Machine: Resmed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Airfit P10 for Her
Humidifier: H5i humidifier with ClimateLine heated hose
CPAP Pressure: 8-15
CPAP Software: SleepyHead

Other Comments: diabetes II, Thyroidectomized, Primary Immune Deficiency, and the list goes on :P

Sex: Female
Location: Oregon

Post: #12
RE: 109AHI, starting 2nd week on CPAP, have some questions
(07-06-2016 02:01 PM)toinewi Wrote:  Last night's I haven't checked in Sleepyhead as of yet, but I do know the machine claimed about an 18AHI, which typically means I had a horrid first half of the night. When I can finally post plots, you'll see what the mountain ranges I've been dealing with look like.

one more and you will be able Wink

sorry about the "hoops" but the spammer vehicle is relentless.

Do you see CA (Central Apnea or Clear Airway) events in your daily?

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
Tongue Suck Technique for prevention of mouth breathing:
  • Place your tongue behind your front teeth on the roof of your mouth
  • let your tongue fill the space between the upper molars
  • gently suck to form a light vacuum
Practising during the day can help you to keep it at night

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
07-06-2016 03:22 PM
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toinewi Offline

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Posts: 21
Joined: Jul 2016

Machine: Philips Dreamstation Auto BiPAP
Mask Type: Nasal mask
Mask Make & Model: F&P ESON
Humidifier: Philips
CPAP Pressure: 16-25
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Wisconsin

Post: #13
RE: 109AHI, starting 2nd week on CPAP, have some questions
(07-06-2016 03:22 PM)DariaVader Wrote:  one more and you will be able Wink

sorry about the "hoops" but the spammer vehicle is relentless.

Do you see CA (Central Apnea or Clear Airway) events in your daily?

I'm in IT, I'm all good with any spam deterrents Smile

I see CA events I believe.

Just got off the phone with the sleep study place, they are going to up the starting pressure, try getting me in for a followup ASAP (currently scheduled for 8/16, they want me in before if possible), and mentioned that chances are a titration study would be in my future.

Glad to hear your son has found something that works for him. I'm just at the starting gate, so I know it'll take some time and effort, but the data nerd/troubleshooter in me just wants to push forward Smile
07-06-2016 04:18 PM
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DariaVader Offline
Apnea Board Facebook Editor
Monitors

Posts: 1,819
Joined: Nov 2014

Machine: Resmed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Airfit P10 for Her
Humidifier: H5i humidifier with ClimateLine heated hose
CPAP Pressure: 8-15
CPAP Software: SleepyHead

Other Comments: diabetes II, Thyroidectomized, Primary Immune Deficiency, and the list goes on :P

Sex: Female
Location: Oregon

Post: #14
RE: 109AHI, starting 2nd week on CPAP, have some questions
if it's truly CA you are seeing, upping the pressure will likely exacerbate the situation. you should be able to post now Smile it is good that you are a nerd; I think we nerds tend to do better with this since we love the data, and since it is available for us!

ps - If there are CA events in any quantity make sure your titration includes the ASV machine

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
Tongue Suck Technique for prevention of mouth breathing:
  • Place your tongue behind your front teeth on the roof of your mouth
  • let your tongue fill the space between the upper molars
  • gently suck to form a light vacuum
Practising during the day can help you to keep it at night

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
(This post was last modified: 07-06-2016 04:51 PM by DariaVader.)
07-06-2016 04:49 PM
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Sleepster Offline
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Posts: 4,988
Joined: Feb 2012

Machine: ResMed AirCurve10 VAuto
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: HumidAir and SlimLine Hose
CPAP Pressure: MaxI 13.6 | MinE 5.2 | PS 4.4
CPAP Software: ResScan SleepyHead

Other Comments: Diagnosed Nov 2011. Conquered aerophagia.

Sex: Male
Location: Houston, Texas

Post: #15
RE: 109AHI, starting 2nd week on CPAP, have some questions
(07-05-2016 11:57 AM)toinewi Wrote:  I do find myself currently waking up 1-2 times a night, usually right after a significant pressure jump.

Does the CPAP machine cause you any discomfort in any way other than waking you up? It may be that the low pressure of 8 is just not enough to keep your airway open.

Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
07-06-2016 06:27 PM
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toinewi Offline

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Posts: 21
Joined: Jul 2016

Machine: Philips Dreamstation Auto BiPAP
Mask Type: Nasal mask
Mask Make & Model: F&P ESON
Humidifier: Philips
CPAP Pressure: 16-25
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Wisconsin

Post: #16
RE: 109AHI, starting 2nd week on CPAP, have some questions
(07-06-2016 06:27 PM)Sleepster Wrote:  Does the CPAP machine cause you any discomfort in any way other than waking you up? It may be that the low pressure of 8 is just not enough to keep your airway open.

Not sure, but they are upping my pressure to 15-20 starting tomorrow it seems. I was also told to not sleep on my back, but rather to sleep on my side. Being a stomach sleeper until now, I'm guessing that will be easier than trying to back sleep, minus the mask and leaks.

Here are some charts, with the first being the best day I had, and the other two being more typical.


The one good day (day 3 of CPAP?):
https://drive.google.com/file/d/0B0SbFMF...sp=sharing

Typical Days:
https://drive.google.com/file/d/0B0SbFMF...sp=sharing

https://drive.google.com/file/d/0B0SbFMF...sp=sharing

https://drive.google.com/file/d/0B0SbFMF...sp=sharing
(This post was last modified: 07-06-2016 07:51 PM by toinewi.)
07-06-2016 07:50 PM
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justMongo Offline

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Machine: ResMed VPAP Auto (S9)
Mask Type: Full face mask
Mask Make & Model: ResMed Mirage Quattro
Humidifier: ResMed H5i
CPAP Pressure: 18 IPAPmax - 11 EPAPmin, PS=5
CPAP Software: Other Software

Other Comments: μολὼν λαβέ

Sex: Male
Location: Калифорния

Post: #17
RE: 109AHI, starting 2nd week on CPAP, have some questions
My impression -- you do need more minimum pressure. And, seems so do the folks who are tracking you.
Frequently obstructive apnea is positional -- hence their recommendation to side sleep.

You may need a different machine. I *think* your Dreamstation has a max pressure of 20; and you may need higher.
Too soon to say, but there may be a bilevel machine in your future.

Let's see how you do on their recommended 20/15

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
07-06-2016 08:29 PM
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DariaVader Offline
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Monitors

Posts: 1,819
Joined: Nov 2014

Machine: Resmed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Airfit P10 for Her
Humidifier: H5i humidifier with ClimateLine heated hose
CPAP Pressure: 8-15
CPAP Software: SleepyHead

Other Comments: diabetes II, Thyroidectomized, Primary Immune Deficiency, and the list goes on :P

Sex: Female
Location: Oregon

Post: #18
RE: 109AHI, starting 2nd week on CPAP, have some questions
my impression is that JM is spot-on

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
Tongue Suck Technique for prevention of mouth breathing:
  • Place your tongue behind your front teeth on the roof of your mouth
  • let your tongue fill the space between the upper molars
  • gently suck to form a light vacuum
Practising during the day can help you to keep it at night

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
07-06-2016 10:13 PM
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Sleepster Offline
Wiki Editor
Moderators

Posts: 4,988
Joined: Feb 2012

Machine: ResMed AirCurve10 VAuto
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: HumidAir and SlimLine Hose
CPAP Pressure: MaxI 13.6 | MinE 5.2 | PS 4.4
CPAP Software: ResScan SleepyHead

Other Comments: Diagnosed Nov 2011. Conquered aerophagia.

Sex: Male
Location: Houston, Texas

Post: #19
RE: 109AHI, starting 2nd week on CPAP, have some questions
(07-06-2016 07:50 PM)toinewi Wrote:  I was also told to not sleep on my back, but rather to sleep on my side. Being a stomach sleeper until now, I'm guessing that will be easier than trying to back sleep, minus the mask and leaks.

With the right pillow you should be able to sleep on either your side or your stomach. I do. Look at the Papillow. You need not get that brand, but it will give you an idea as to the size and shape you need. I recently typed Papillow into the Amazon search engine and the first hit was a very suitable substitute. You need a pillow that's thick, but has a small footprint. That way you can let your mask hang over the edge.

Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
07-06-2016 10:32 PM
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toinewi Offline

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Posts: 21
Joined: Jul 2016

Machine: Philips Dreamstation Auto BiPAP
Mask Type: Nasal mask
Mask Make & Model: F&P ESON
Humidifier: Philips
CPAP Pressure: 16-25
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Wisconsin

Post: #20
RE: 109AHI, starting 2nd week on CPAP, have some questions
Pretty crazy what a positional change can do. Just by sleeping on my side, I was able to get 8 hours on the machine with a 4.93AHI. Hopefully today when they up the pressure from 8-20 to 15-20, it'll help even more.

I did notice way too many leaks side sleeping, so I'm going to call my equipment provider and see about getting refitted, possibly even revisiting the nasal pillow as opposed to mask.

Side sleeping - a world of difference:
https://drive.google.com/file/d/0B0SbFMF...sp=sharing

Thanks all for the advice and support so far. I'll keep this updated.
07-07-2016 08:07 AM
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