My name is Victoria and I have a 17 year old daughter who was just diagnosed with apnea. It's been a long journey to diagnosis.
It started two years ago with extreme fatigue. She had antibodies in her blood for Mono, so was told to ease up on physical activity and rest as much as possible. The fatigue got slightly better, but never completely left.
Nine months ago she started having daily migraines. They started upon waking and were constant till she went to sleep. Over time, her fatigue became almost unbearable. Then the nausea kicked in.
She has seen 4 pediatricians and is being treated by a neurologist. She's tried 13 different medications - none successfully treated the headaches - and has just recently gotten her first round of Botox injections to try to treat the migraines. She's a petite person to begin with, but has lost 8 pounds in the last 9 months.
My husband kept talking about a sleep study, but since my daughter doesn't snore, it took a while to get her doctors on board. Yesterday we got the results.
While she doesn't choke, gag or stop breathing, her O2 saturation goes down to 76% while sleeping, pushing her apnea into the "severe" category.
She picks up CPAP on June 8th for a 3 day trail. It will collect three nights of data which will help the doctor determine settings, etc., for the unit she will eventually get.
Any recommendations for mask types for younger/smaller people? Anyone else dealing with teenagers with apnea? Any sage advice for a very confused mom??