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2 full years of CPAP usage - zero improvement
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Terry Offline

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Posts: 553
Joined: May 2014

Machine: Philips Respironics RemStar Auto with A-Flex (560P)
Mask Type: Nasal pillows
Mask Make & Model: P/R Nuance & Pap Cap
Humidifier: Integrated
CPAP Pressure: Auto
CPAP Software: SleepyHead

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Sex: Male
Location:

Post: #11
RE: 2 full years of CPAP usage - zero improvement
(08-23-2014 06:02 AM)Route67 Wrote:  I am nowhere. Still waking 3 or 4 times a night to void. Still feeling like complete garbage during the day, including today; woke up at 6am after 3 voids and going to bed at midnight. I would absolutely love to get a solid 8 or 9 hours; I have had a handful in 2 years but that's it.

Post your graphs. I'm sure someone will have a really good idea what's going on.
08-23-2014 12:04 PM
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me50 Offline

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Posts: 2,559
Joined: Aug 2013

Machine: resmed S9 VPAP Auto
Mask Type: Nasal mask
Mask Make & Model: Wisp and Silicone Head gear
Humidifier: resmed H5i
CPAP Pressure: 18/8
CPAP Software: SleepyHead

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Sex: Undisclosed
Location: USA

Post: #12
RE: 2 full years of CPAP usage - zero improvement
maybe you have a small bladder; maybe an overactive bladder that can be dealt with in various ways.

also, maybe your pressure settings are too low and need to be adjusted

you have some good suggestions from others to think about.

hope you can find the cause of this soon.

oh, I still wake up a lot during the night although it isn't to pee. I long for an 8 hour sleep session but I am grateful that I have a better chance of not dying in my sleep from OSA. Someday, hopefully, I can sleep more than 5 or 6 hours a night uninterrupted.
08-23-2014 12:11 PM
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Peter_C Offline

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Posts: 1,308
Joined: Sep 2013

Machine: System One DS960HS
Mask Type: Full face mask
Mask Make & Model: Mirage Quattro "MED"
Humidifier: Attached
CPAP Pressure: Auto mode-script is:15/3/3
CPAP Software: EncoreBasic Other Software

Other Comments: Severe obstructive sleep apnea 1999/Just got an ASV machine

Sex: Male
Location: Akron, Ohio USA

Post: #13
RE: 2 full years of CPAP usage - zero improvement
Hello - just some random thoughts? Please note, I have been on CPAP better than a dozen years now, now look at my join date. That is when I decided to actually start *leaning* about OSA, my dream machine, and what all those numbers actually mean.

I am a 100% compliant *winner* in that OSA created heart issues for me that over time have finally been cured, my life changed basically overnight, and became dramatically better. However, in the last few years, my sleep habits started to downslide.

I learned, mostly from this forum, and other reading, and by buying a recording Oximeter, and studying my CPAP data daily for about four months that I had over time developed 'hissing' through my lips that then created leaks too large for my machine to keep up with. So, between switching to a full face mask, and working on changing my settings, my numbers are now really good~!

However, after finally getting a new dream machine, I am finding that almost all of my events are 'centrals' - which needs to be worked on but that's another story.

My point is, taking control yourself, and learning about your machine, and what all the various numbers and stuff means may bring you a long way towards improving your sleep life. Most DMEs, and many sleep docs (sadly) only look at compliance data and assume that you are doing well/better and that as long as you use the CPAP life will be great. But it is more involved than that. Time to put your thinking cap on and start learning I believe.

Does this make sense to you?

*I* am not a DOCTOR or any type of Health Care Professional. My thoughts/suggestions/ideas are strictly only my opinions.

"Only two defining forces have ever offered to die for you. Jesus Christ and the American Soldier. One died for your Soul, the other for your Freedom."
08-23-2014 12:31 PM
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bwexler Offline

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Posts: 563
Joined: Mar 2012

Machine: PRS 1 BiPAP autoSV Advanced, with Heated Tube humidifier
Mask Type: Nasal mask
Mask Make & Model: Sleepweaver √Član
Humidifier: Resperonics Heated Tube humidifier
CPAP Pressure: Max pressure 25.0 cm H20, Max
CPAP Software: SleepyHead EncorePro

Other Comments: CMS 50i with Software for SpO2

Sex: Male
Location: San Marcos, CA, USA

Post: #14
RE: 2 full years of CPAP usage - zero improvement
Hi way 67
Think about driving your car.
Now think about driving your car with no speedometer, tachometer, gas gauge, temp gauge, oil pressure gauge or odometer. Just get in and go and hope for the best.
That is what you have been doing with CPAP.
As has been suggested, you need to download Sleepyhead software and learn how to use it, with help from the folks here. Until you take charge and know how well your therapy is working, nothing will improve. Even if you happen to find an excellent sleep doc who knows how to monitor your therapy. They won't be there every day to see how things are going and make small adjustments.

Do you ask your auto mechanic when to step on the gas or brake or turn the wheel?

You have some reading to do and some work to get on track. Let's get started now.
(This post was last modified: 08-23-2014 02:08 PM by bwexler.)
08-23-2014 02:08 PM
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Route67 Offline

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Posts: 68
Joined: Aug 2012

Machine: S9 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Resmed
Humidifier: Resmed
CPAP Pressure: Auto
CPAP Software: SleepyHead Other Software

Other Comments: On CPAP for 2 years, still can't sleep. Edit; make that 4 years now, still can't sleep.

Sex: Male
Location: New Hampshire, USA

Post: #15
RE: 2 full years of CPAP usage - zero improvement
Thanks for all the advice, everyone! I was just out for most of the day and came back to a full thread and it's much appreciated.

I will digest all this and reply a bit more fully later, but please realize I am not exactly tech savvy.......downloading I can do, what to do with the downloaded material after that I would still be unsure about.

BTW I just turned 52 and don't believe I am diabetic, somewhere along the way with all the blood and urine work I have had done by urologists and the nephrologist and my GP someone surely would've picked up on that......
08-23-2014 03:20 PM
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Shastzi Offline

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Posts: 1,174
Joined: Dec 2012

Machine: ResMed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: FitLife Total face mask
Humidifier: F&P HC150 with Hybernite heated hose.
CPAP Pressure: 15cm-20cm H2O (auto)
CPAP Software: SleepyHead Other Software

Other Comments: CMS50-F wearable Oximeter; Software: SPO2 Assistant

Sex: Undisclosed
Location: Florida, USA.

Post: #16
RE: 2 full years of CPAP usage - zero improvement
Hi Route67, from the sound of it, I think they threw a machine at you set it on Auto and
told you that you're cured.
When is anything ever that simple?

You're going to have to do what the rest of us here have had to do. Get the Sleepyhead software going and start analyzing your data every night so you can fine tune your machine.
If you have leaks with the nose mask, no amount of fancy machinery will help.
Everyone here has been where you are, 67 and you can get the apnea bit taken care of THEN you'll be able to tell if there are other problems that need addressing.
(Divide and conquer!)
The folks here will help you get going if you will spend the time to work with them.

Cheers!

"With ordinary talent and extraordinary perseverance, all things are attainable." - Thomas Foxwell Buxton

Cool
08-23-2014 04:17 PM
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Peter_C Offline

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Posts: 1,308
Joined: Sep 2013

Machine: System One DS960HS
Mask Type: Full face mask
Mask Make & Model: Mirage Quattro "MED"
Humidifier: Attached
CPAP Pressure: Auto mode-script is:15/3/3
CPAP Software: EncoreBasic Other Software

Other Comments: Severe obstructive sleep apnea 1999/Just got an ASV machine

Sex: Male
Location: Akron, Ohio USA

Post: #17
RE: 2 full years of CPAP usage - zero improvement
You *could* also, or instead of, get the Rescan software made by and for Remed units. Some folks prefer one over the other. The point is, you have more than one choice for software to use.

*I* am not a DOCTOR or any type of Health Care Professional. My thoughts/suggestions/ideas are strictly only my opinions.

"Only two defining forces have ever offered to die for you. Jesus Christ and the American Soldier. One died for your Soul, the other for your Freedom."
08-23-2014 06:22 PM
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spyresca Offline

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Posts: 3
Joined: Feb 2014

Machine: Resmed S9 Auto
Mask Type: Nasal mask
Mask Make & Model: Fisher & Paykel Eson
Humidifier: Resmed H5i
CPAP Pressure: 8.6-20
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location:

Post: #18
RE: 2 full years of CPAP usage - zero improvement
Route67 might also want to get himself (or herself) checked out for RLS (Restless Leg Syndrome) which can cause symptoms very similar to OSA.
08-23-2014 06:33 PM
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Route67 Offline

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Posts: 68
Joined: Aug 2012

Machine: S9 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Resmed
Humidifier: Resmed
CPAP Pressure: Auto
CPAP Software: SleepyHead Other Software

Other Comments: On CPAP for 2 years, still can't sleep. Edit; make that 4 years now, still can't sleep.

Sex: Male
Location: New Hampshire, USA

Post: #19
RE: 2 full years of CPAP usage - zero improvement
(08-23-2014 11:25 AM)retired_guy Wrote:  .

Ok... What is needed to know, is what is your current AHI? Of the events recorded, how many (%) are OA, CA, Hypops... What is your minimum/maximum and average pressures? What are your leak numbers?

All this, and even more, can be yours once you download and run the software.

Downloaded and doing this now, Thanks!

By the way I am 52 year old MALE from New Hampshire......overweight by about 75 pounds on my 6'1'' frame.


(08-23-2014 11:35 AM)PaytonA Wrote:  Route 67,

My first impression of what you explained and without seeing any data (so its a WAG) was that your leaks are high enough to make your therapy a non-starter. It would take data to know this. Could you provide us with some?

Best Regards,

PaytonA

Yes Payton, I am doing that now, and honestly working with you guys [and gals] is probably the best thing I can do.....tired of my sleep center saying "you're fine" and passing me on to urologists.

I may need some help with the readings however, please stand by Smile
(This post was last modified: 08-23-2014 07:26 PM by Route67.)
08-23-2014 07:24 PM
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Route67 Offline

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Posts: 68
Joined: Aug 2012

Machine: S9 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Resmed
Humidifier: Resmed
CPAP Pressure: Auto
CPAP Software: SleepyHead Other Software

Other Comments: On CPAP for 2 years, still can't sleep. Edit; make that 4 years now, still can't sleep.

Sex: Male
Location: New Hampshire, USA

Post: #20
RE: 2 full years of CPAP usage - zero improvement
(08-23-2014 04:17 PM)Shastzi Wrote:  Hi Route67, from the sound of it, I think they threw a machine at you set it on Auto and
told you that you're cured.
When is anything ever that simple?

You're going to have to do what the rest of us here have had to do. Get the Sleepyhead software going and start analyzing your data every night so you can fine tune your machine.

The folks here will help you get going if you will spend the time to work with them.

Cheers!

Great, doing that now and I have PLENTY of time to work with the friendly people here.
08-23-2014 07:27 PM
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