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2 full years of CPAP usage - zero improvement
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Route67 Offline

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Posts: 68
Joined: Aug 2012

Machine: S9 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Resmed
Humidifier: Resmed
CPAP Pressure: Auto
CPAP Software: SleepyHead Other Software

Other Comments: On CPAP for 2 years, still can't sleep. Edit; make that 4 years now, still can't sleep.

Sex: Male
Location: New Hampshire, USA

Post: #31
RE: 2 full years of CPAP usage - zero improvement
Leaks, etc......

http://i.imgur.com/GplnmJK.jpg
08-23-2014 08:54 PM
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retired_guy Offline

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Posts: 2,744
Joined: Jan 2014

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: ResMed
CPAP Pressure: 10.6/14, EPR 3
CPAP Software: ResScan SleepyHead

Other Comments: Is it bedtime yet?

Sex: Male
Location: Beautiful, albeit very wet Oregon Coast

Post: #32
RE: 2 full years of CPAP usage - zero improvement
Well Route, your numbers look pretty darn good. I think the answer may be you're fighting too hard. It looks as if you spend a pretty fair amount of time with the expiration rate around 4 or so. Then you have to play catch up with the inhale.

I think if you drop your EPR from 2 to 1, or turn it off, you might do better. I'd like to see the bottom end of your range come up a little. Turning the EPR down a little will allow you to test that without any dramatic things. Raising the minimum pressure would do that as well, but it would have to go up 2 or 3 notches to make any difference.

I'm not seeing your "flow limit" graph, but that's ok. I'm thinking it might look a little "choppy" right now.

The biggest thing about all of this is you are now in charge of your own therapy! Good job that.
08-23-2014 09:01 PM
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Route67 Offline

Preferred Members

Posts: 68
Joined: Aug 2012

Machine: S9 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Resmed
Humidifier: Resmed
CPAP Pressure: Auto
CPAP Software: SleepyHead Other Software

Other Comments: On CPAP for 2 years, still can't sleep. Edit; make that 4 years now, still can't sleep.

Sex: Male
Location: New Hampshire, USA

Post: #33
RE: 2 full years of CPAP usage - zero improvement
OK, I guess that's good news.......but sounds a lot like what the sleep clinic has been telling me! ''your numbers look pretty darn good''

That worries me, especially considering I feel like crap every day and have to void every 2 hours or more once I put my head on the pillow. In other words; I feel exactly the same as I did before I ever started therapy.

I am almost 100% sure it's the peptides too......I did a trans-pacific flight from Beijing to Chicago in June in business class with lie-down seats, 12 hours all told. After dinner I laid down and hoped I could sleep all the way to Chicago; yeah, right........every 90 minutes or so my bladder was full and I had to get up and go to the rest room. Of course I didn't have my mask but I think we've already proven that doesn't seem to work for me.

Darn it this apnea nonsense is wiping me out. Has anyone tried those dental mouth guards?

Will adjust the EPR setting now, thanks a bunch for the reading.
(This post was last modified: 08-23-2014 09:18 PM by Route67.)
08-23-2014 09:10 PM
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retired_guy Offline

Preferred Members-2

Posts: 2,744
Joined: Jan 2014

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: ResMed
CPAP Pressure: 10.6/14, EPR 3
CPAP Software: ResScan SleepyHead

Other Comments: Is it bedtime yet?

Sex: Male
Location: Beautiful, albeit very wet Oregon Coast

Post: #34
RE: 2 full years of CPAP usage - zero improvement
It could actually be the Flow Limit. Raising the bottom end off the ground may help that. Have a good night!
08-23-2014 09:34 PM
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Route67 Offline

Preferred Members

Posts: 68
Joined: Aug 2012

Machine: S9 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Resmed
Humidifier: Resmed
CPAP Pressure: Auto
CPAP Software: SleepyHead Other Software

Other Comments: On CPAP for 2 years, still can't sleep. Edit; make that 4 years now, still can't sleep.

Sex: Male
Location: New Hampshire, USA

Post: #35
RE: 2 full years of CPAP usage - zero improvement
Thanks, you also......did you mean physically moving the resmed machine off the ground?

It's on a nightstand and unobstructed......

Thanks again to everyone for the help, will hope for the best tonight.
(This post was last modified: 08-23-2014 09:46 PM by Route67.)
08-23-2014 09:40 PM
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retired_guy Offline

Preferred Members-2

Posts: 2,744
Joined: Jan 2014

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: ResMed
CPAP Pressure: 10.6/14, EPR 3
CPAP Software: ResScan SleepyHead

Other Comments: Is it bedtime yet?

Sex: Male
Location: Beautiful, albeit very wet Oregon Coast

Post: #36
RE: 2 full years of CPAP usage - zero improvement
No no... I meant get the minimum pressure up a little bit. By reducing/eliminating the EPR, you should be doing that.
08-23-2014 09:46 PM
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Route67 Offline

Preferred Members

Posts: 68
Joined: Aug 2012

Machine: S9 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Resmed
Humidifier: Resmed
CPAP Pressure: Auto
CPAP Software: SleepyHead Other Software

Other Comments: On CPAP for 2 years, still can't sleep. Edit; make that 4 years now, still can't sleep.

Sex: Male
Location: New Hampshire, USA

Post: #37
RE: 2 full years of CPAP usage - zero improvement
OK, EPR is off.
08-23-2014 09:50 PM
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Shastzi Offline

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Posts: 1,174
Joined: Dec 2012

Machine: ResMed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: FitLife Total face mask
Humidifier: F&P HC150 with Hybernite heated hose.
CPAP Pressure: 15cm-20cm H2O (auto)
CPAP Software: SleepyHead Other Software

Other Comments: CMS50-F wearable Oximeter; Software: SPO2 Assistant

Sex: Undisclosed
Location: Florida, USA.

Post: #38
RE: 2 full years of CPAP usage - zero improvement
Good work Rt67!
That's how you get places.
Try retired_guy's suggestion bump up the low pressure setting 1-2cm and get used to that.
Let it run for a week or two and see if it doesn't take out more of those obstructive apneas (OA)
Give your kidneys a month or so to react. Your body needs to get used to the new idea.
***
Back to your original issue, is the CPAP helping?
YES INDEED! Very much!
Don't stop now and we can see if you can improve your experience.

Good luck!

"With ordinary talent and extraordinary perseverance, all things are attainable." - Thomas Foxwell Buxton

Cool
08-24-2014 08:47 AM
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Route67 Offline

Preferred Members

Posts: 68
Joined: Aug 2012

Machine: S9 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Resmed
Humidifier: Resmed
CPAP Pressure: Auto
CPAP Software: SleepyHead Other Software

Other Comments: On CPAP for 2 years, still can't sleep. Edit; make that 4 years now, still can't sleep.

Sex: Male
Location: New Hampshire, USA

Post: #39
RE: 2 full years of CPAP usage - zero improvement
Set it there last night and slept pretty well, woke up twice.......which is better than 4 or 5 times, of course. Will leave it there and see what happens, Thanks again!
08-24-2014 09:25 AM
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surferdude2 Offline

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Posts: 1,077
Joined: Jul 2014

Machine: ResMed S9 AutoSet
Mask Type: Full face mask
Mask Make & Model: Mirage Quattro & Optilife
Humidifier: ResMed H5i @ #3 if nose breathing & #5 if mouth breathing
CPAP Pressure: 12 ~ 20 & 11 ~12 if nasal mask
CPAP Software: ResScan SleepyHead

Other Comments: Late stage 2 emphysema

Sex: Male
Location: Mousetown, Southern Illinois

Post: #40
RE: 2 full years of CPAP usage - zero improvement
That's good news Route and what we wanted to hear! I suspect you don't have an actual bladder or kidney problem but when you awake in the middle of the night you may over analyze the situation. I know from my own experience that if I decide I may need to pee before going somewhere, the urge becomes almost unbearable even though I'm not able to produce enough urine to justify the effort.

Best of luck with your progress. It looks like there is hope and that better days ( and nights) are just around the corner. There are some experts on this forum so keep posting your results and availing yourself of their help.
08-24-2014 10:23 AM
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