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2 full years of CPAP usage - zero improvement
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retired_guy Offline

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Posts: 2,744
Joined: Jan 2014

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: ResMed
CPAP Pressure: 10.6/14, EPR 3
CPAP Software: ResScan SleepyHead

Other Comments: Is it bedtime yet?

Sex: Male
Location: Beautiful, albeit very wet Oregon Coast

Post: #41
RE: 2 full years of CPAP usage - zero improvement
(08-24-2014 09:25 AM)Route67 Wrote:  Set it there last night and slept pretty well, woke up twice.......which is better than 4 or 5 times, of course. Will leave it there and see what happens, Thanks again!

Glad to hear it Route. Yes, just watch things for a few days. Then re-evalute.

One thing to look at: Start up Sleepyhead. Then at the top row, click "File," "Preferences," "Graphs." In the selection box click the check box next to "Flow Limit."

Now compare yesterday's flow limit to last nights. Do they seem much different?
08-24-2014 10:48 AM
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Clementine Offline

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Posts: 208
Joined: Sep 2013

Machine: ResMed VPap Auto
Mask Type: Nasal pillows
Mask Make & Model: ResMed AirFit P10
Humidifier: ResMed H5i--not using currently
CPAP Pressure: Auto -- 8/13.2 PS 3.2
CPAP Software: SleepyHead

Other Comments: Began with machine on 7/7/14.

Sex: Female
Location: eastern Iowa

Post: #42
RE: 2 full years of CPAP usage - zero improvement
just want to add my encouragement .... I'm still figuring out this "odyssey" as well .... good luck! It's encouraging that you had fewer awakenings last night! Lots of great help here -- it is a terrific forum.
08-24-2014 11:29 AM
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Route67 Offline

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Posts: 68
Joined: Aug 2012

Machine: S9 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Resmed
Humidifier: Resmed
CPAP Pressure: Auto
CPAP Software: SleepyHead Other Software

Other Comments: On CPAP for 2 years, still can't sleep. Edit; make that 4 years now, still can't sleep.

Sex: Male
Location: New Hampshire, USA

Post: #43
RE: 2 full years of CPAP usage - zero improvement
(08-24-2014 10:48 AM)retired_guy Wrote:  
(08-24-2014 09:25 AM)Route67 Wrote:  Set it there last night and slept pretty well, woke up twice.......which is better than 4 or 5 times, of course. Will leave it there and see what happens, Thanks again!

Glad to hear it Route. Yes, just watch things for a few days. Then re-evalute.

One thing to look at: Start up Sleepyhead. Then at the top row, click "File," "Preferences," "Graphs." In the selection box click the check box next to "Flow Limit."

Now compare yesterday's flow limit to last nights. Do they seem much different?

Will do RG.....hosting a small party at the moment but will check it later.

And yes Clementine and Surferdude, I agree the help here is fantastic! I learned more last night than I have in 2+ years of going to Docs. A lot cheaper and friendlier here, also Smile
08-24-2014 12:43 PM
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PaytonA Online
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Posts: 3,016
Joined: Dec 2013

Machine: ResMed S9 VPAP Auto
Mask Type: Full face mask
Mask Make & Model: Resmed Mirage Quattro
Humidifier: H5i(distilled-top up)
CPAP Pressure: VAuto MinE14.0 MaxI 20.6 PS4.0
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Orange County,California

Post: #44
RE: 2 full years of CPAP usage - zero improvement
(08-23-2014 08:54 PM)Route67 Wrote:  Leaks, etc......

http://i.imgur.com/GplnmJK.jpg

Your leaks are high enough most of the time in the past that they could be adversely effecting your therapy and giving unreliable data. My guess is that you are mouth breathing or mouth leaking during the night. With too much leakage the machine has trouble discriminating events and precursors.

It looks like you do have some nights where your leakage rate might be reasonable so apparently you are able to seal your mouth off effectively, in your sleep some of the time. I would suggest that a trial with a chin strap might be in order.

Unless you get the leaks consistently under control, you may continue to have some problems at times. I would definitely keep my eye on the leaks. For a ResMed machine the manufacturer feels they should be less than 24 l/min in order for the machine to provide effective therapy.

Best Regards,

PaytonA
08-24-2014 01:20 PM
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retired_guy Offline

Preferred Members-2

Posts: 2,744
Joined: Jan 2014

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: ResMed
CPAP Pressure: 10.6/14, EPR 3
CPAP Software: ResScan SleepyHead

Other Comments: Is it bedtime yet?

Sex: Male
Location: Beautiful, albeit very wet Oregon Coast

Post: #45
RE: 2 full years of CPAP usage - zero improvement
I think you're reading the chart wrong Payton, or I am. I believe it says his 95% leak rate is .96, not 96. That's subtly different.
08-24-2014 06:11 PM
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PaytonA Online
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Monitors

Posts: 3,016
Joined: Dec 2013

Machine: ResMed S9 VPAP Auto
Mask Type: Full face mask
Mask Make & Model: Resmed Mirage Quattro
Humidifier: H5i(distilled-top up)
CPAP Pressure: VAuto MinE14.0 MaxI 20.6 PS4.0
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Orange County,California

Post: #46
RE: 2 full years of CPAP usage - zero improvement
(08-24-2014 06:11 PM)retired_guy Wrote:  I think you're reading the chart wrong Payton, or I am. I believe it says his 95% leak rate is .96, not 96. That's subtly different.

Look at the leakage chart that he put up.

http://i.imgur.com/GplnmJK.jpg

There seems to be some discrepancy in some of the numbers that Sleepyhead reports and it seems to be a decimal place error. There are a few others too.

Anyhow it looks to me like he has a lot of days where his leakage is up around 200 l/min. Last time I looked that was high.

He uses a nasal mask. What would make his therapy ineffective although he is using the equipment regularly and his AHI is low? Answer-leaks. High leakage does not cause AHI to go up. It makes it difficult for the machine to sense apnea events so the AHI goes down.

Anyhow it looks to me like his problem is mouth breathing or mouth leakage.

Best Regards,

PaytonA
08-24-2014 07:09 PM
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vsheline Offline

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Posts: 1,908
Joined: Jul 2012

Machine: S9 VPAP Adapt (USA Model# 36007, not better 36037 or 36067)
Mask Type: Full face mask
Mask Make & Model: F10 or SimPlus w/ 2Liners. MirageQuatro & Gecko gel pad
Humidifier: H5i
CPAP Pressure: 15 EPAP, PS 5-10
CPAP Software: ResScan

Other Comments: Marfan Syndrome, chronic bradycardia, occasional Cheyne-Stokes Respiration

Sex: Male
Location: California, USA

Post: #47
RE: 2 full years of CPAP usage - zero improvement
(08-23-2014 06:02 AM)Route67 Wrote:  I keep my daily intake of soda and even water down to a very low level, perhaps dangerously low, because I so dread those multiple trips to the toilet during the overnight hours. Nothing helps.

(08-24-2014 07:09 PM)PaytonA Wrote:  There seems to be some discrepancy in some of the numbers that Sleepyhead reports and it seems to be a decimal place error. There are a few others too.

Hi Route67,

I, too, find a few hard-to-understand numbers in your SleepyHead data.

I recommend you download and install the ResScan program for ResMed machines, since you have one. That way we would be able to double-check the accuracy of the SH reports. SH software is still beta software at this point.

By the way, the acids which are put in soda drinks to allow carbonization and the sugar (or worse, the High Fructose Corn Syrup) in Soda is bad for us, and sodas really should not count toward the 8 cups of water we need to drink each day. At least 8 cups, I think. Especially good to drink in the morning when we first awake, long enough (15 minutes?) before eating that our stomach is empty again before eating. And before all meals, early enough that the stomach is empty before eating.

If we do not drink enough water I think our blood chemistry and pH levels can get seriously out of balance, causing great stress on the body.

Take care,
--- Vaughn

Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment. The Advisory Member group provides advice and suggestions to Apnea Board administrators and staff on matters concerning Apnea Board operation and administrative policies - not on matters concerning treatment for Sleep Apnea. I think it is now too late to change the name of the group but I think Voting Member group would perhaps have been a more descriptive name for the group.
(This post was last modified: 08-24-2014 07:21 PM by vsheline.)
08-24-2014 07:12 PM
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Route67 Offline

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Posts: 68
Joined: Aug 2012

Machine: S9 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Resmed
Humidifier: Resmed
CPAP Pressure: Auto
CPAP Software: SleepyHead Other Software

Other Comments: On CPAP for 2 years, still can't sleep. Edit; make that 4 years now, still can't sleep.

Sex: Male
Location: New Hampshire, USA

Post: #48
RE: 2 full years of CPAP usage - zero improvement
So I may have to try a chin strap to keep my mouth closed?

I am sure there is a joke in there somewhere which my ex-wife would have loved.

Doing the flow chart reading now........
08-24-2014 07:12 PM
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Route67 Offline

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Posts: 68
Joined: Aug 2012

Machine: S9 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Resmed
Humidifier: Resmed
CPAP Pressure: Auto
CPAP Software: SleepyHead Other Software

Other Comments: On CPAP for 2 years, still can't sleep. Edit; make that 4 years now, still can't sleep.

Sex: Male
Location: New Hampshire, USA

Post: #49
RE: 2 full years of CPAP usage - zero improvement
(08-24-2014 10:48 AM)retired_guy Wrote:  One thing to look at: Start up Sleepyhead. Then at the top row, click "File," "Preferences," "Graphs." In the selection box click the check box next to "Flow Limit."

Now compare yesterday's flow limit to last nights. Do they seem much different?

Problem here, these are all zeroes.....because when I put my SD card back into the machine last night I failed to unlock it. Will unlock it now and check again tomorrow, cheers.....
08-24-2014 07:27 PM
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retired_guy Offline

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Posts: 2,744
Joined: Jan 2014

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: ResMed
CPAP Pressure: 10.6/14, EPR 3
CPAP Software: ResScan SleepyHead

Other Comments: Is it bedtime yet?

Sex: Male
Location: Beautiful, albeit very wet Oregon Coast

Post: #50
RE: 2 full years of CPAP usage - zero improvement
This Summary:
http://www.apneaboard.com/forums/Thread-...0#pid80940

and

these from his first night with us

http://imgur.com/ow8WGRf

seem to me to be more indicative of his leak experience than the full year chart we were looking at...
08-24-2014 07:44 PM
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