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4 1/2 months in and I am so, so tired.
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Suzannekty Offline

Members

Posts: 7
Joined: May 2015

Machine: ResMed Airsense 10 Autoset
Mask Type: Nasal pillows
Mask Make & Model: ResMed Airfit P10
Humidifier: yes, on 1, plus heated tube
CPAP Pressure: 8.5-12 with EPR on 3
CPAP Software: Not using software

Other Comments: frustrated and tired

Sex: Female
Location: North Carolina

Post: #1
4 1/2 months in and I am so, so tired.
First, let me say I went for sleep apnea testing because my partner reported that I wasn't breathing at night and I was snoring and she was concerned. I was not tired during the day. I did not have a high Epworth Sleep Scale score so at first my insurance wasn't even going to pay for the testing but in the end paid for the home sleep test. I was positive for moderate apnea but didn't get any more info from the sleep study people other than that. No baseline scores were shared with me.

I started therapy with my resmed airsense 10 and a full face mask which did not fit right and I soon changed to nasal pillows. I hated the machine and pillows and tubes for weeks, but persisted. At about 2 1/2 months, I started to get used to it. With the help of occasional sleeping pills, I started to be able to sleep okay with the CPAP machine. Yay!

Unfortunately, that lasted about 2 weeks. Since then I have been miserable. It feels like my nasal passages are swollen and I can't get enough air. I have increased my low pressure from 6 to 8.5 and my high I've kept at 12. It auto adjusts and usually goes to about 11.5. I am awake often, adjusting and readjusting the nasal pillows and tubing trying to get comfortable. I have tried saline nasal spray and steroid nasal spray to try to reduce the feeling of swelling (and suffocation) in my nose. I also have mild asthma and find my inhaler helps a little bit but nothing helps much and I remain miserable. Some nights I take the damned thing off after 4 hours, which is my insurance companies minimum for compliance.

Let me say again, I was not tired during the day before starting CPAP therapy. My partner was tired because she couldn't sleep with my irregular breathing and snoring, but I wasn't tired. Now, however, I wake up tired and feel like I have gotten no rest. I'm lethargic all day. I teach 2nd graders and I need to be awake during the day and not miserable and irritable.

Why was I sleeping okay for a couple of weeks and then not?

I have an older macbook which does not have an SD slot, so I can't use the sleepy head program to get a better look at my data.

Any idea what is going on and what I might be able to do about it?

I keep trying but I'm miserable.
09-21-2015 07:42 PM
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zonk Offline

Advisory Members

Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #2
RE: 4 1/2 months in and I am so, so tired.
(09-21-2015 07:42 PM)Suzannekty Wrote:  Why was I sleeping okay for a couple of weeks and then not?
Same with me, CPAP can cause nasal symptoms or maybe beginners luck
Try Neilmed saline sinus rinse (not spray), you'll need to experiment with humidity level setting and recommend the heated tube
Some can experience nasal symptoms on higher settings, others might be on lower settings, trail and error
With nasal masks and nasal pillows masks, you'll have to breathe only through your nose, otherwise mouth breathing and mouth leaks can compromise the therapy. Chinstrap can helps keeps mouth closed or full face mask perhaps, you've tried full face mask but "did not fit right", maybe try different size or another one

As for SD card slot, you can get SD card reader and download the data from the card
09-21-2015 08:23 PM
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justMongo Offline

Monitors

Posts: 3,853
Joined: Sep 2013

Machine: ResMed VPAP Auto (S9)
Mask Type: Full face mask
Mask Make & Model: ResMed Mirage Quattro
Humidifier: ResMed H5i
CPAP Pressure: 18 IPAPmax - 11 EPAPmin, PS=5
CPAP Software: Other Software

Other Comments: μολὼν λαβέ

Sex: Male
Location: Калифорния

Post: #3
RE: 4 1/2 months in and I am so, so tired.
"Why was I sleeping okay for a couple of weeks and then not?"
Difficult to say why. The pressure increase from 6 to 8.5 sounds appropriate.

It's probably the mask. That's the key to comfort; and the hardest thing to get right.
The P10 is very popular. It's works well for most people who can tolerate nasal pillows.
Myself, I cannot -- so the full face mask works for me.

I really wish you had access to software - that could tell the story.

(BTW -- please update your profile with the 8.5/12 pressures.)

I'll throw out this: Try increasing humidity.
Also, with a nasal mask, some people open their mouth and pressure is lost; circumventing the efficacy of the therapy.
A chin strap is sometimes added to gently remind the jaw to say closed.

Kindest Regards,

Mongo

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
09-21-2015 08:33 PM
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Suzannekty Offline

Members

Posts: 7
Joined: May 2015

Machine: ResMed Airsense 10 Autoset
Mask Type: Nasal pillows
Mask Make & Model: ResMed Airfit P10
Humidifier: yes, on 1, plus heated tube
CPAP Pressure: 8.5-12 with EPR on 3
CPAP Software: Not using software

Other Comments: frustrated and tired

Sex: Female
Location: North Carolina

Post: #4
RE: 4 1/2 months in and I am so, so tired.
Thanks for the reminder, Mongo. I updated my profile.

Thanks for the suggestions.

My original mask was a Airfit F10 full face mask, size medium. When I later looked at the size suggestions, I saw that I was right in between the recommendation for small and medium. The medium hit too high on the bridge of my nose or if I pulled it down it was too low on my chin to seal correctly. It made tuba noises as the air blew out from one spot or another. I could pull it really tight and get it to seal, sort of, but that was uncomfortable. I didn't try a small ff mask, but went to the nasal pillows. I sometimes breathe through my mouth, but catch myself or my partner wakes me up. It never happens long enough to cause an air leak above acceptable. I can imagine that if I had a cold or allergies, the nasal pillow could be a even more of a problem than it is now. Maybe another ff mask, nose mask or hybrid would do better.

I do have a heated tube. I keep my humidity low because we are pretty humid in NC already.

Maybe I don't have the hang of it yet, but a saline rinse just makes my nose feel wet, in addition to stuffy, which is not a nice feeling either. I'm not sure why some people think the nasal rinses are comforting. Wet nasal passages aren't comfortable to me, but maybe I'm not doing it right or maybe I should do it a few hours before going to bed rather than minutes.

Ah, well... time to try again.
09-21-2015 10:24 PM
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justMongo Offline

Monitors

Posts: 3,853
Joined: Sep 2013

Machine: ResMed VPAP Auto (S9)
Mask Type: Full face mask
Mask Make & Model: ResMed Mirage Quattro
Humidifier: ResMed H5i
CPAP Pressure: 18 IPAPmax - 11 EPAPmin, PS=5
CPAP Software: Other Software

Other Comments: μολὼν λαβέ

Sex: Male
Location: Калифорния

Post: #5
RE: 4 1/2 months in and I am so, so tired.
Sounds like the P10 is the right mask for you. Some folks keep a full face mask for times when they have congestion.
The humidifier with heated hose compensates for the humidity of the intake air. So, even in humid conditions it can assist.

I have a lady friend who uses a Netipot for rinsing her nasal passages. She says it works for her. I just cannot get the hang of the Netipot.

Good evening,

Mongo

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
09-21-2015 10:42 PM
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zonk Offline

Advisory Members

Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #6
RE: 4 1/2 months in and I am so, so tired.
(09-21-2015 10:42 PM)justMongo Wrote:  I have a lady friend who uses a Netipot for rinsing her nasal passages. She says it works for her. I just cannot get the hang of the Netipot.

Good evening,

Mongo
I cannot use the pot either, prefer the squeezy bottle and not fan of steroid or OTC sprays
Here youtube video from Neilemd https://www.youtube.com/watch?v=LW9mvVe7Mk4
09-22-2015 01:44 AM
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OpalRose Offline

Monitors

Posts: 3,181
Joined: Nov 2014

Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #7
RE: 4 1/2 months in and I am so, so tired.
The nasal rinse should be done a few hours before bed. It's better to make it a habit in the morning.

If you suffer from congestion, as I do, a nasal rinse will help if you do it right. It will flush out out the gunk and yucky crap that is up in your nose.

I could not master the netipot either. The squeeze bottle works best. Blowing-nose

An hour or two before bed, I use a nasal spray with xylitol.

OpalRose
(This post was last modified: 09-22-2015 07:24 AM by OpalRose.)
09-22-2015 07:22 AM
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sonicboom Offline

Advisory Members

Posts: 474
Joined: May 2015

Machine: Airsense 10 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: ResMed AirFit P10, Dreamwear
Humidifier: Integrated
CPAP Pressure: 4.6-7.6
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Washington

Post: #8
RE: 4 1/2 months in and I am so, so tired.
Flonase nasal spray works for me. 30 mins to an hour before bed.

Coffee
09-22-2015 12:05 PM
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