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5 Month Check-in - SleepyHead Data
09-12-2016, 12:48 AM
I am at my 5 month mark using biPap. Still not feeling great but have managed to find a mask that works and a pressure that keeps the aerophagia at a bearable level. I'd love someone to look over my SleepyHead data and give me a read. My doctor will not see me until the 1 year mark and feels my numbers are fine. My body is still massively tired.
Is there a place to edit a post? I wanted to correct something.
edited: well, that's odd. I can edit my reply (found the edit button) but not my OP.
09-12-2016, 10:26 AM
Here is some info on editing posts.
How to Organize and Post ScreenShots
The graph only shows some CA events. If you want to clean those up, reduce your pressure support in clinical settings. Change the value next to PS from 4.0 to 3.0 and let's see if you feel better. We may want to change EPAP min from 4.0 to 5.0, but let's limit this to one thing at a time.
Why were you provided a bilevel rather than CPAP?
09-12-2016, 11:14 AM
When we did the sleep study the pressures were originally much higher. However, I developed severe aerophagia so my doctor lowered the settings to the current numbers. I think the fact that the higher pressures also blew open my Eustachian tube and was pushing air into my inner ear was also a factor.
09-12-2016, 01:21 PM
(09-12-2016, 10:40 AM)Sleeprider Wrote: The graph only shows some CA events. If you want to clean those up, reduce your pressure support in clinical settings. Change the value next to PS from 4.0 to 3.0 and let's see if you feel better. We may want to change EPAP min from 4.0 to 5.0, but let's limit this to one thing at a time.
I typically have an OA between 1-2 every night. The CA averages between 2-3. Do we need to work on the OA (which Bipap treats) or the CA (which Bipap does not treat)? How would lowering the PS help with the CA? Would it make my aerophagia worse?
09-12-2016, 05:10 PM
I've actually been playing with my BiPAP PS range numbers that past 3 nights to try to reduce my hypopnias. I increased my PS number 1.5-2.5 above what it has been, and voila my CAs completely disappeared. Prior to 3 nights ago, I was always getting some CAs every night. Yes this is opposite of what sleeprider was suggesting, so I'd try it for a week and see what the response is ...
I also see you 95% EPAP is close to 6. Your min EPAP is 4. I'd bump the EPAP min up to 5.5 or 6.
09-12-2016, 05:26 PM
(09-12-2016, 01:21 PM)MeDee Wrote:(09-12-2016, 10:40 AM)Sleeprider Wrote: The graph only shows some CA events. If you want to clean those up, reduce your pressure support in clinical settings. Change the value next to PS from 4.0 to 3.0 and let's see if you feel better. We may want to change EPAP min from 4.0 to 5.0, but let's limit this to one thing at a time.
McDee, in Bilevel, the EPAP min treats OA. Increase by 1.0. CA can result from too much PS. I went through this same thing, and decreased my AHI from the figures you're dealing with to less than 1 by decreasing pressure support a bit.
09-12-2016, 07:07 PM
OK the consensus seems to be to focus on the CA first, then the OA.
Step 1: decrease the PS from 4 to 3. This may make my aerophagia wose, but it might help the CA.
if that does not work, then step 2:
Put the PS back to 4, but this time increase the EPAP to 5. That could help the OA.
Have I got it right?
09-12-2016, 07:15 PM
Sounds like you have a good plan. I'd spend a week at each pressure to see if the change is helpful or harmful.
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