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5 hours sleep
#1
Not having had a decent nights sleep for weeks, and having picked up a bug of some sort, I decided to do without the infernal CPAP machine.

I have had two of the best nights sleep for ages and I feel great, another garbage diagnosis from the medico's?

This after the "we had better do something" diagnosis for the alleged epilepsy, and treatment for non existent high blood pressure.

Any thoughts.
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#2
Get a recording oximeter and monitor your sleep occasionally to make sure doing without the CPAP is alright. A small digital audio recorder placed as close to your head as possible can also be useful for insight.

Sleep on your side, not your back.

Maybe get a second MD opinion. Wink
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#3
Phill, since you joined in November, you have never posted any machine data, and aside from you original Dx of severe sleep apnea provided nothing that would help us to help you. If it is your decision to quit CPAP, do it, but don't look to us to enable what is probably a bad decision, and blame the clinic that diagnosed you. We're here to help you help yourself, but to do that, we need a window into the problems you're having. Post some ResScan or better, Sleepyhead data. If there is a problem with the therapy, we're pretty darn good at identifying ways to deal with it. If you're determined to quit, there is nothing we can do or say to stop that.
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#4
(02-19-2016, 10:36 AM)Phill Wrote: Not having had a decent nights sleep for weeks, and having picked up a bug of some sort, I decided to do without the infernal CPAP machine.

I have had two of the best nights sleep for ages and I feel great, another garbage diagnosis from the medico's?

This after the "we had better do something" diagnosis for the alleged epilepsy, and treatment for non existent high blood pressure.

Any thoughts.


I also find I feel better when I take a night off and sleep without the machine, but people here in the forum are helping understand what is going on. I would encourage you post some Stats and get some feedback before you give up.

it'll take more than a doctor to prescribe a remedy-Bon Jovi
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#5
Thanks folks.
I see my GP on Monday and will take it from there, you may gather that after my previous experience I do not have a great deal of faith in the so called medical profession.

After another relaxing nights sleep.Dielaughing
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#6
FYI, GP said to stop using CPAP machine which I had done, and to arrange to see a specialist which I had intended to do.

Hey, they do 5 years at uni. to dole out this information, I must have missed my vocation in life.

And I continue to get a great nights sleep.Dielaughing
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#7
Hi Phill, 

Regarding your recent post on another thread:

(02-04-2017, 12:05 PM)Phill Wrote: On the one hand we are told by the medics that we are exposing ourselves to stroke and heart attack if we don't use their infernal machine, on the other, I have nearly taken them by the throat saying this is not ******* working, as I am lucky if I get four hours sleep a night using the damned thing.

If as I do you take the mask off when you wake after the 3.5 to 4 hours, should you be lucky enough  to fall asleep again, you are surely once again exposed to the threat of stroke etc.
There is no way once I have woken that I can fall asleep again wearing the mask.

When I explained to the medic that it was unlikely I would meet the 4 hour compliance ( a slightly different requirement here), I was told to falsify my records by lying awake while wearing the mask until the 4 hours time compliance was met.

While fully appreciating the problems other people are having, for me I have to ask the question, what is the point.

I should point out that I took myself off treatment for six weeks, I am clearly still alive, I got a better nights sleep, and rarely did I fall asleep during the day, much the same as being on treatment.

For me it is a cross to carry to maintain my driving permit, were it not for that I would not be bothering, and the machine could go in the dumpster.

If you could post some ResScan or SleepyHead data, perhaps we could help.

Take care,
--- Vaughn
Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment. The Advisory Member group provides advice and suggestions to Apnea Board administrators and staff on matters concerning Apnea Board operation and administrative policies - not on matters concerning treatment for Sleep Apnea. I think it is now too late to change the name of the group but I think Voting Member group would perhaps have been a more descriptive name for the group.
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#8
(02-19-2016, 02:56 PM)Sleeprider Wrote: Phill, since you joined in November, you have never posted any machine data, and aside from you original Dx of severe sleep apnea provided nothing that would help us to help you.  If it is your decision to quit CPAP, do it, but don't look to us to enable what is probably a bad decision, and blame the clinic that diagnosed you.  We're here to help you help yourself, but to do that, we need a window into the problems you're having.  Post some ResScan or better, Sleepyhead data.  If there is a problem with the therapy, we're pretty darn good at identifying ways to deal with it.  If you're determined to quit, there is nothing we can do or say to stop that.

+1  Very well stated.

The people on the forum are VERY good at ferreting out issues with treatment, but DATA is needed to do that.
A lot of times it is the relationship of different elements of data thus the need for the charts.
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