Hello Guest, Welcome to Apnea Board !
As a guest, you are limited to certain areas of the board and there are some features you can't use.
To post a message, you must create a free account using a valid email address.

or Create an Account


New Posts   Today's Posts

5 year and still not working but have some new ideas
#1
Wink 
5 year and still not working but have some new ideas
Using CPAP for five years with very little success . However I recently found out this is mostly due to severe mask leek.  

 I have tried four or five mask with little results .  

 However I did see a specialist sleep technician and did have some new information .

 She said to change the settings so that it blows the highest setting all the time . 

 So instead of it going from 4 to 12, she told me to change it to go from 12 to 15 .   is this solid advice or is this just wrong ?


 Since doing it for the last three nights I keep waking up in the middle of the night  many times now .   Also another app says I am still snoring don’t know what to do at this stage 

 Have a mouth breather side sleeper not sure if anything will work .

 Develop severe depression exhaustion and now panic attacks 

Need help

What another mascara word a bite guard home what a chinstrap help I’ll try anything
Post Reply Post Reply






Donate to Apnea Board  
#2
RE: 5 year and still not working but have some new ideas
Ok What I meant to say should I try
1-chin strap
2-mouth guard 
3-another mask
4-lotion or gel

Regular cleaning with baby shampoo
Regular replacing since two months ago
Post Reply Post Reply
#3
RE: 5 year and still not working but have some new ideas
Most members here with severe leak problems in a full face mask find a soft cervical collar is the most effective secondary aid. The soft collar applies pressure to the back of the jaw helping to keep the mouth closed, stabilizing the mask and preventing obstructive positional apnea from chin-tucking. There are many different styles that can be effective and you just have to try some out. Full soft cervical collars like the Caldera Releaf are pretty popular as are the partial collars that put a wedge under the front of the jaw (Dr Dakaota Snoring Stop or Eliminator Snore relief).

I would start with something like that. I think the fact you have been suffering for five years with mask leaks your DME / Therapist should have tired different sizes and models of mask with you. Different full face mask models and sizes will have widely different effectiveness in fit and leak prevention. In addition there are hybrid masks that provide separate ports for the mouth and nose, and if all else fails a full-face mask.

I do not agree with the idea of increasing pressure to try to resolve a leak. Pressure is used for therapy, not to overcome a leak. This advise reflects a lack of knowledge of how these machines fundamentally work. A cpap machine will increase flow in order to achieve the set pressure. It will operate up to the full capacity of the blower to try to reach that pressure, and if leaks do not allow that pressure to be realized, the machine will register a large leak and is out of control. Increasing the pressure setting cannot produce more flow to overcome a leak. An open circuit leak will produce the same maximum flow without reaching pressure. As I said, your therapist needs some re-schooling.
Sleeprider
Apnea Board Moderator
www.ApneaBoard.com

____________________________________________
Download OSCAR Software
Soft Cervical Collar
Optimizing Therapy
Organize your OSCAR Charts
Attaching Files
Mask Primer
How To Deal With Equipment Supplier


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
Post Reply Post Reply
#4
RE: 5 year and still not working but have some new ideas
Thank you for your very prompt reply… Yeah I’m pretty upset with the treatment I’ve been getting .  

 I will try the product 

 I’ll probably set the settings back to just stay on 12 the whole time but if you don’t think that’s even going to help then I guess I’ll just send it back to the original setting .

So setting to 12 full time would not matter?
Post Reply Post Reply






Donate to Apnea Board  
#5
RE: 5 year and still not working but have some new ideas
Mouchet,
Good recommendations on controlling leaks, but we could better advise on your pressure settings if you would post a screenshot from SleepyHead here.

Download the software and then use the directions below to organize graphs and post here.

Five years is way too long to put up with inferior cpap treatment, and it seems that you need a little more help than your DME is providing.
OpalRose
Apnea Board Administrator
http://www.ApneaBoard.com


OSCAR Chart Organization
OSCAR - The Guide
Soft Cervical Collar
Optimizing therapy





INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE.  ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA.  INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
Post Reply Post Reply
#6
RE: 5 year and still not working but have some new ideas
Wow, 5 years. You are strong to hang in there so long. I found a TON of good advice here--these people know what they are doing.

I have so little faith in the DMEs and many of the so-called sleep Drs.

...and if you think...do try a new mascara! Wink
Post Reply Post Reply
#7
RE: 5 year and still not working but have some new ideas
I talked to be great sleep technician today named Carol at ABC supplies .   She agreed that my treatment has been total garbage .

 I am waiting for a power cord for my computer so I can install the sleepyhead app and will update soon.

 Are use Xanax for a week and have just stop taking it out .25 and believe this has increased my p periodic limb movement disorder .

 I am up now for some reason after only sleeping for two hours Wideawake . 

 I’ll figure it out from the sleep technician that my machine could be turning off for one very unique reason 

I had not been using the humidifier but my heat or was set at the highest level six-  this may have caused the machine to turn off due to try not to burn out . I recently gone back tonight and using the humidifier 

 However I did awake after two hours soaked in sweat and Wideawake 

 Does anyone know anything about periodic limb movement disorder and maybe taking Flexeril as Mirapex seems awful
Post Reply Post Reply






Donate to Apnea Board  
#8
RE: 5 year and still not working but have some new ideas
We really can't advise you on medications here. It sounds like you need a doctor's appointment to get some issues sorted out. With regard to your CPAP, we can help you learn how to change the settings and make things more comfortable, but it sounds like you may need a new mask. I hope Carol at ABC can help you get on the right path to be more comfortable.
Sleeprider
Apnea Board Moderator
www.ApneaBoard.com

____________________________________________
Download OSCAR Software
Soft Cervical Collar
Optimizing Therapy
Organize your OSCAR Charts
Attaching Files
Mask Primer
How To Deal With Equipment Supplier


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
Post Reply Post Reply


Possibly Related Threads...
Thread Author Replies Views Last Post
  [CPAP] the machine stopped working sleepyran 1 98 12-02-2021, 10:34 PM
Last Post: Sleeprider
  Any ideas Benno1981 4 182 12-02-2021, 07:01 AM
Last Post: Benno1981
  Resmed Aircurve V10 Auto Stopped Working holden4th 5 261 11-28-2021, 04:22 AM
Last Post: holden4th
  Help with optimizing PAP for 85-year-old QuestionableQuerant 41 1,193 10-20-2021, 09:53 AM
Last Post: SarcasticDave94
  Daytime sleepiness one year into ASV petemsw 15 668 10-16-2021, 10:37 AM
Last Post: quiescence at last
  Hunididfier not working? Chalkie 2 200 09-27-2021, 05:31 AM
Last Post: Chalkie
  Has my machine just plain stopped working? mgcunn27 7 259 09-23-2021, 07:43 PM
Last Post: SarcasticDave94


New Posts   Today's Posts






About Apnea Board

Apnea Board is an educational web site designed to empower Sleep Apnea patients.