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60 Days -Lesson Learned
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0rangebear Offline

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Posts: 340
Joined: Jan 2016

Machine: ResMed AirSence 10
Mask Type: Other
Mask Make & Model: Amara View
Humidifier: HumidAire (Built-in)
CPAP Pressure: APAP 12.8-15 EPR 3 (cmH2O)
CPAP Software: ResScan SleepyHead

Other Comments: Ramp off

Sex: Male
Location: Brighton Colorado

Post: #1
60 Days -Lesson Learned
I just hit my 60th Night on therapy and would like to say thank you to the forum-I was very frustrated when I found the forum; googling for some help.

Here are my lessons learned from my first two posts:
My first post was: 01-25-2016, Reason Frustration
On a scale of 0-10 for finding help/answers
Hospital-0
Allergy & Asthma Centers-0
Sleep Study/Sleep Center 1
DMEprovider-1
Respiratory Thereapist-2
Primary Car Doctor-3
Encocronologist-3
ENT-5
People I know on CPAP therapy-7
Apnea Board-10
Other CPAP forums-8
Best advice-OpalRose --Thanks
First, order the Provider (Clinicians Manual) for your machine. See link top of page (CPAP Setup Manuals.)
Then download the free Sleepyhead Software, see top of page also.
Once you download your data from your SD card to Sleepyhead, we will be able to help and advise you.


Second post was 02-13-2016, 08:18 PM Reason- Dehydrated
Lesson learned
Eliminating leaks to reduce total Air Flow
Run humidifier at highest tolerable level
The body adjust in time like any new exercise or injury 4-6 weeks
Tonged and Month position is important
Best advice-DariaVader Thanks
Tongue Suck Technique for prevention of mouth breathing: •Place your tongue behind your front teeth on the roof of your mouth
•let your tongue fill the space between the upper molars

First 60 days
Felt like CRAP for the first 6 weeks
Last two weeks noticeable improvement-
Can't say I feel better than when I started but at lease I know longer feel worse on the days I use the Machine

2004-Bon Jovi
it'll take more than a doctor to prescribe a remedy

Observations and recommendations communicated here are the perceptions of the writer and should not be misconstrued as medical advice.
03-07-2016 12:20 PM
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OpalRose Offline

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Posts: 3,159
Joined: Nov 2014

Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #2
RE: 60 Days -Lesson Learned
Orangebear,
Thanks for the feedback and to let us know how you are doing. like

Just realize that some feel improvement right from the start, and others may take several months to tweak everything and to feel good. Also, you will have good days and a few bad days along the way. Just don't give up, it's a journey.

OpalRose
03-07-2016 12:32 PM
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Rob S Offline

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Posts: 44
Joined: May 2015

Machine: ResMed S9 VPAP Adapt
Mask Type: Full face mask
Mask Make & Model: ResMed AirFit F10
Humidifier: ResMed H5i
CPAP Pressure: min EPAP 6, 90% IPAP16
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: New England. USA

Post: #3
RE: 60 Days -Lesson Learned
congrats on 60 day's and no longer feeling worse with treatment.

took me about the same amount of time. hope you continue to see improvements.
03-07-2016 05:33 PM
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0rangebear Offline

Advisory Members

Posts: 340
Joined: Jan 2016

Machine: ResMed AirSence 10
Mask Type: Other
Mask Make & Model: Amara View
Humidifier: HumidAire (Built-in)
CPAP Pressure: APAP 12.8-15 EPR 3 (cmH2O)
CPAP Software: ResScan SleepyHead

Other Comments: Ramp off

Sex: Male
Location: Brighton Colorado

Post: #4
RE: 60 Days -Lesson Learned
(03-07-2016 05:33 PM)Rob S Wrote:  congrats on 60 day's and no longer feeling worse with treatment.

took me about the same amount of time. hope you continue to see improvements.

I see you've been doing it a few months longer, do you find it makes you feel better now?

Do you do the therapy every night?Dancing

2004-Bon Jovi
it'll take more than a doctor to prescribe a remedy

Observations and recommendations communicated here are the perceptions of the writer and should not be misconstrued as medical advice.
03-07-2016 07:18 PM
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Rob S Offline

Preferred Members

Posts: 44
Joined: May 2015

Machine: ResMed S9 VPAP Adapt
Mask Type: Full face mask
Mask Make & Model: ResMed AirFit F10
Humidifier: ResMed H5i
CPAP Pressure: min EPAP 6, 90% IPAP16
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: New England. USA

Post: #5
RE: 60 Days -Lesson Learned
(03-07-2016 07:18 PM)0rangebear Wrote:  
(03-07-2016 05:33 PM)Rob S Wrote:  congrats on 60 day's and no longer feeling worse with treatment.

took me about the same amount of time. hope you continue to see improvements.

I see you've been doing it a few months longer, do you find it makes you feel better now?

Do you do the therapy every night?Dancing
i think in general i'm feeling better, improvements might be slow and steady at this point and because of that maybe less noticeable? i sleep much more now but still fragmented(2-4 hour segments, 2-6 times a day). a big plus is i'm no longer terrified to fall asleep and actually look forward to putting my mask on and sleeping as much as i possibly can.
i use my machine every time i sleep the entire time. the 1 time i was stranded away from home for a night (car broke down) i chose not to sleep at all. the fear of not breathing, like before i started treatment was just to strong.
03-07-2016 07:39 PM
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trish6hundred Offline

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Posts: 6,430
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #6
RE: 60 Days -Lesson Learned
Hi 0rangebear,
It's great to hear that you are noticing improvements with CPAP therapy, keep up the good work.

trish6hundred
03-07-2016 09:41 PM
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0rangebear Offline

Advisory Members

Posts: 340
Joined: Jan 2016

Machine: ResMed AirSence 10
Mask Type: Other
Mask Make & Model: Amara View
Humidifier: HumidAire (Built-in)
CPAP Pressure: APAP 12.8-15 EPR 3 (cmH2O)
CPAP Software: ResScan SleepyHead

Other Comments: Ramp off

Sex: Male
Location: Brighton Colorado

Post: #7
RE: 60 Days -Lesson Learned
(03-07-2016 07:39 PM)Rob S Wrote:  
(03-07-2016 07:18 PM)0rangebear Wrote:  
(03-07-2016 05:33 PM)Rob S Wrote:  congrats on 60 day's and no longer feeling worse with treatment.

took me about the same amount of time. hope you continue to see improvements.

I see you've been doing it a few months longer, do you find it makes you feel better now?

Do you do the therapy every night?Dancing
i think in general i'm feeling better, improvements might be slow and steady at this point and because of that maybe less noticeable? i sleep much more now but still fragmented(2-4 hour segments, 2-6 times a day). a big plus is i'm no longer terrified to fall asleep and actually look forward to putting my mask on and sleeping as much as i possibly can.
i use my machine every time i sleep the entire time. the 1 time i was stranded away from home for a night (car broke down) i chose not to sleep at all. the fear of not breathing, like before i started treatment was just to strong.

I know it is none of my business but why were you terrified to fall asleep?

2004-Bon Jovi
it'll take more than a doctor to prescribe a remedy

Observations and recommendations communicated here are the perceptions of the writer and should not be misconstrued as medical advice.
03-07-2016 10:41 PM
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Rob S Offline

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Posts: 44
Joined: May 2015

Machine: ResMed S9 VPAP Adapt
Mask Type: Full face mask
Mask Make & Model: ResMed AirFit F10
Humidifier: ResMed H5i
CPAP Pressure: min EPAP 6, 90% IPAP16
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: New England. USA

Post: #8
RE: 60 Days -Lesson Learned
(03-07-2016 10:41 PM)0rangebear Wrote:  I know it is none of my business but why were you terrified to fall asleep?

because i always woke up with a full blown panic attack, sweating and gasping for air.
03-07-2016 10:47 PM
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0rangebear Offline

Advisory Members

Posts: 340
Joined: Jan 2016

Machine: ResMed AirSence 10
Mask Type: Other
Mask Make & Model: Amara View
Humidifier: HumidAire (Built-in)
CPAP Pressure: APAP 12.8-15 EPR 3 (cmH2O)
CPAP Software: ResScan SleepyHead

Other Comments: Ramp off

Sex: Male
Location: Brighton Colorado

Post: #9
RE: 60 Days -Lesson Learned
(03-07-2016 10:47 PM)Rob S Wrote:  
(03-07-2016 10:41 PM)0rangebear Wrote:  I know it is none of my business but why were you terrified to fall asleep?

because i always woke up with a full blown panic attack, sweating and gasping for air.

That would be terrifying! Oh-jeez, I hope the therapy has eliminated that experience. No wonder you use it every night. That would be a hugh motivator.

2004-Bon Jovi
it'll take more than a doctor to prescribe a remedy

Observations and recommendations communicated here are the perceptions of the writer and should not be misconstrued as medical advice.
03-08-2016 09:35 AM
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Rob S Offline

Preferred Members

Posts: 44
Joined: May 2015

Machine: ResMed S9 VPAP Adapt
Mask Type: Full face mask
Mask Make & Model: ResMed AirFit F10
Humidifier: ResMed H5i
CPAP Pressure: min EPAP 6, 90% IPAP16
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: New England. USA

Post: #10
RE: 60 Days -Lesson Learned
it has. current 30 day average AHI 0.5 all hypopnea and all just barely long enough to be flagged.
03-08-2016 12:23 PM
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