Post Reply 
AWAKE Support Groups
Author Message
Sparkle Offline

Preferred Members-2

Posts: 131
Joined: Jan 2015

Machine: Res Med Air Sense 10 Auto Set
Mask Type: Full face mask
Mask Make & Model: ResMed Quattro
Humidifier: ResMed S10 37028
CPAP Pressure: 4-14
CPAP Software: SleepyHead

Other Comments: 3 brothers on CPAP; rescue mom to Bootsie Bella; wishes the APAP matched the decor in my bedroom :)

Sex: Female
Location: Northeastern MA

Post: #1
AWAKE Support Groups
Hi Everyone ~
The snow is causing a state of emergency and I have the next two days off - WooHoo!

I wanted to share this - though you all probably know about this.

In my recent internet searches I came across these AWAKE in person support groups. They have a link to a list of the various support groups throughout the country - the link is at the bottom of this email.

There is a support group that meets quarterly very close to my home at a hospital. I contacted the group administrator and there is a meeting Feb 26th. The meetings are free and open to the public.

She asked me if I had any questions she could help me with prior to the meeting. I told her I had a full face mask and I was thinking about getting a second mask - maybe a nasal mask and asked if that was recommended. I told her I hesitated to switch masks and that I got a full face mask because I thought I might sleep with my mouth open though I couldn't be sure.

She replied saying that insurance won't pay for a second mask and they could be expensive but she had a nasal mask she could give me.

So, I am really excited that I reached out to her. I will let you know how the meeting is. If you want to check out and see if there are meetings in your area here is the link:

http://www.sleepapnea.org/support/a.w.a.k.e.-network-map.html

01-26-2015 09:05 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
SuperSleeper Offline

Administrators

Posts: 9,976
Joined: Feb 2012

Machine: PR System One REMstar Auto (DS560)
Mask Type: Nasal pillows
Mask Make & Model: ResMed Mirage Swift II
Humidifier: none
CPAP Pressure: 12.5 - 18.5 cmH20 (auto range)
CPAP Software: SleepyHead

Other Comments: Have diabetes Type II

Sex: Male
Location: Illinois, USA

Post: #2
RE: AWAKE Support Groups
The AWAKE groups are really a good alternative for sleep apnea patients to help each other, especially for folks that don't have Internet access or aren't too technically-minded. My dad has sleep apnea, but doesn't get into Internet forums, and he has found the local group here helpful. Not quite the plethora of info and instant-help you can find on a world-wide forum, but the groups are helpful, nonetheless.

It would really be good if some of our more experienced and knowledgeable folks here would start their own AWAKE group in their locale. Most groups meet about once a month and have a special speaker or someone who's knowledgeable concerning OSA and treatment to speak to the group with questions afterwards.

SuperSleeper
Apnea Board Administrator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.

01-26-2015 11:17 PM
Find all posts by this user Post Reply Quote this message in a reply
TheManseHen Offline

Preferred Members-2

Posts: 243
Joined: Jan 2015

Machine: RedMed A10 Airsense 10 Autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: One that came with machine
CPAP Pressure: 7.6-14.0 EPR 3
CPAP Software: ResScan SleepyHead

Other Comments: Started C-pap Boxing Day 2014. Tortured sleep more or less since 2000. Trigeminal Neuralgia.

Sex: Female
Location: San Francisco

Post: #3
RE: AWAKE Support Groups
Hi Sparkle,
Let us know how it goes. I was going to go to the December meeting of our local A.W.A.K.E meeting (I mean come on they were having refreshments and everything! Not to mention my Sleep Doctor was the speaker) but I was....wait for it...TOO TIRED to go! It was after I was diagnosed but before I had my machine. (which I think I got in record time by literally perkily happily friendly like... sitting on the DME folk, okay, not literally, but I had them everything they needed to fill my script in an hour and kept asking for a report on where we were in the process and when can I come get machine? Same folk, can't be gotten ahold of now for love or money...So common)

I will try and go to the February meeting. Here they are every other month. So when you tell us about yours, how many folk were there, were there just super newbies or newbies and oldbies? Did they have SNACKS? (-:

Susan
01-27-2015 02:51 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
Sparkle Offline

Preferred Members-2

Posts: 131
Joined: Jan 2015

Machine: Res Med Air Sense 10 Auto Set
Mask Type: Full face mask
Mask Make & Model: ResMed Quattro
Humidifier: ResMed S10 37028
CPAP Pressure: 4-14
CPAP Software: SleepyHead

Other Comments: 3 brothers on CPAP; rescue mom to Bootsie Bella; wishes the APAP matched the decor in my bedroom :)

Sex: Female
Location: Northeastern MA

Post: #4
RE: AWAKE Support Groups
(01-27-2015 02:51 PM)TheManseHen Wrote:  Hi Sparkle,
Let us know how it goes. I was going to go to the December meeting of our local A.W.A.K.E meeting (I mean come on they were having refreshments and everything! Not to mention my Sleep Doctor was the speaker) but I was....wait for it...TOO TIRED to go! It was after I was diagnosed but before I had my machine. (which I think I got in record time by literally perkily happily friendly like... sitting on the DME folk, okay, not literally, but I had them everything they needed to fill my script in an hour and kept asking for a report on where we were in the process and when can I come get machine? Same folk, can't be gotten ahold of now for love or money...So common)

I will try and go to the February meeting. Here they are every other month. So when you tell us about yours, how many folk were there, were there just super newbies or newbies and oldbies? Did they have SNACKS? (-:

Susan

Hi Susan!

Ugh - I know that feeling all too well. I would ask myself "When did I become this person of good intentions but no follow through?"

I will absolutely post about the meeting. I am looking forward to it. I am grateful to the organizer reaching out to me and being interested in my interest in their group Smile I look forward to meeting her as well. I am so curious about who will be there and what it will be like. All I know right now is that it is from 6:30 to 8:30.

I'll be sure to keep you posted! :grin:
01-27-2015 03:51 PM
Find all posts by this user Post Reply Quote this message in a reply
TyroneShoes Offline

Preferred Members-2

Posts: 505
Joined: Oct 2014

Machine: Resmed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10
Humidifier: Resmed H5i
CPAP Pressure: 10-14
CPAP Software: SleepyHead

Other Comments:

Sex: Undisclosed
Location:

Post: #5
RE: AWAKE Support Groups
Bummer. Closest one to where I live (a city of 4 million people) is 200 miles away. I would really go. If the reports are good, maybe I'll try to start my own here. I'm going to raise the question with my sleep doc in March.
01-27-2015 08:51 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
Post Reply 


Possibly Related Threads...
Thread: Author Replies: Views: Last Post
  Need opinions about breathing waveforms - REM sleep? awake? don't know? green wings 10 244 Today 08:40 AM
Last Post: green wings
  Am I awake? mcsheltie 4 242 11-14-2016 02:38 PM
Last Post: mcsheltie
  Ever try to call Philips Respironics for tech support? old dude 9 5,085 11-14-2016 12:27 AM
Last Post: Md Hoq
  Newb looking for support Emolpi123 13 391 11-03-2016 02:31 PM
Last Post: trish6hundred
Question [Pressure] Dream Station Auto Bi pap configuration of pressure support function dangood_47 6 488 10-27-2016 04:37 PM
Last Post: OpalRose
  Power Outage: Stay Awake Or Sleep W/O CPAP? player 11 723 10-26-2016 08:29 PM
Last Post: sonicboom
  Why Are AHI High When Wide Awake? Dreams of Green 7 670 10-18-2016 09:35 PM
Last Post: 0rangebear

Forum Jump:

Who's Online (Complete List)