(11-03-2015, 11:06 AM)jec335 Wrote: I have to say something about this. Although I know it seems harmless enough, it is not harmless!
You asked to show you a law or rule and the rule is you cannot change your own prescriptions. That is why it is required to have a prescription! lol
There really are many dangers associated with it. What if you increase it too much and cause central apnea to increase? What if you have lung disease or a heart condition? What if you turn it down too much and still have OSA and suffer the consequences of untreated apnea? Quality sleep can be complicated. Simply adjusting your own cpap as a way to improve your sleep is reckless at best.
I speak up about this with good intentions for everyone to take a minute to think about it first. It is not a good idea.
jec335, welcome to the forum.
You would be wise to take a minute and educate yourself about this. Your machine -- the Sleepeasy you list in your profile -- is a "brick" machine that records absolutely no treatment data. So if you think your doctor has any idea how well your machine is working for you, or what your pressure should be, or whether your apnea is truly under control, you're very much mistaken. Your doctor has no more information than you do about what your machine is doing.
Someone in your position, with a no-data machine, should not be making changes to your pressure because you have no way to monitor the result. Sadly, neither does your doctor.
We never advocate that people adjust their pressures without understanding what they are doing and why they are doing it, and how to do it responsibly. First, you need a machine that reports actual treatment data. Then you need to learn what the data means. We patients now have excellent software that allows us to understand our treatment data and to manage our PAP therapy, often more effectively than our doctors have the time (or interest) to do.
If you spend some time on the sleep apnea and CPAP forums you will soon find yourself reading accounts of doctors ordering wrong machines, wrong pressures, and having poor working knowledge of the intricacies of PAP therapy (even in cases where the data is available from the machine). And some of those medical mistakes have involved serious risks to patients. We also hear stories of people whose doctors tell them at follow-up appointments that they're doing great, when in fact they, like you, are using brick machines -- so when the doc says "you're doing fine" what that means is "I see you're using your machine" because a count of total use hours is all the data the doc has. Reckless at best?
If you feel you are doing well and you are comfortable with you and your doctor being in the dark about how your machine is actually performing, that is your choice. Just be aware that nowadays it is possible for patients to have a more active and responsible role in their own health when it comes to PAP therapy, just like diabetic patients learning how to read a glucose meter and use that data to appropriately adjust their medication dose. Always in partnership with our doctors.
Should you ever wish to understand or evaluate your CPAP treatment with a machine that can actually give you that information, we'll be here to help you.