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Advice appreciated
#31
RE: Advice appreciated
Thank you, Dave.    I will continue  as I've been doing recently,   for now.    This OSCAR and oximetry  monitoring  has just been in the last   six or ten months, so it's still fairly new to me.    I see my dr. again in January...oh, it's almost January!    So we can review some of this then.   
I plan to write a letter to my dr,    to hand to him when I go to my appointment, next time and every time.   It's too easy to forget to mention something that I think may be important.


Thank you again!
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#32
RE: Advice appreciated
You're welcome.

Let me suggest what I have done for my PAP therapy and other pulmonary needs. Whether it is mental or written form doesn't matter much, but whichever works best for you. Make notes that you understand, even if it's some made up shorthand or abbreviations, notes should include symptoms that linger or cause complaints of some sort, things yet to be addressed and similar. These also can be positive like PAP setting edits, changed this to that value and that area improved type of thing. I've found if you tell the doc you changed settings, include values of old and new and can point to the positive change, then include a question like what do you think doc? This includes doc and keeps feathers from ruffling too much. Notes of some sort is the general idea, you come up with the format that works best for you. Maybe it'll help with the treatment, etc.
Dave

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INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEBSITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
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#33
RE: Advice appreciated
Thank you for the suggestions, including the "what do you think?" part.
I do have low-tech graphs --large paper graphs--that I started making about a year ago. I take those in to each appointment. One day my dr. asked some question... may have been how do you feel after such and such... or is the leak problem when your mask is wearing out? ... and I had to say, that I didn't have a system for recording that. He suggested that would be a good thing to include.
The graphs have evolved. First it was just Resmed Myair information each day--that was simpler--an overall score, hours of use, AHI (they call it events), leaks per minute, and "on and off" number of times. The leaks drove me nuts. Increased pressures did not seem to decrease events of apnea. Sometimes Resmed Myair is described as measuring compliance. And the story goes on and on, which may explain why my first entry was very brief!
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#34
RE: Advice appreciated
Can you  tell how long the OAs were about  0340 ?    There were numbers   on  some screens,   56?     Does that mean apnea period 56 seconds?   or 56  OAs in a cluster?    It looks like a short cluster on the event graph.   


I seem to be doing well.     The graphs look good to us.    I sleep well usually.


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#35
RE: Advice appreciated
I will try to include the section that I was asking about,   approx 0340 this morning.


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