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Advice for a newbie
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yellow99 Offline

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Posts: 3
Joined: Jul 2012

Machine: S9
Mask Type: Nasal mask
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Humidifier: unsure
CPAP Pressure: unsure
CPAP Software: ResScan

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Sex: Female
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Post: #1
Advice for a newbie
I was wondering if you can give me some advice. I'm only in my teens and I was recently diagnosed with mild sleep apnea. I'm always tired and have no energy during the day. I've tried CPAP for about a month and the AHI is now below 5 but I still don't feel any different at all. My weight is normal and all my blood tests are normal so I don't understand why I have this condition. Know anyone in a similar situation? Should I continue with CPAP?

Any feedback is welcome. Thanks in advance!
07-25-2012 09:23 PM
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trish6hundred Offline

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Posts: 6,450
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #2
RE: Advice for a newbie
Hi yellow99, First of all, Welcome! to the forum.! I would encourage you to continue using your CPAP machine; you have only been on it for a month and sometimes it takes a while to get caught up on your sleep. I know it's hard but, CPAP therapy can take LOTS OF PATIENCE,! but hang in there and keep checkin' back into this forum as others will have suggestions for you. Good luck and don't give up.

trish6hundred
07-25-2012 09:45 PM
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zonk Offline

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Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #3
RE: Advice for a newbie
(07-25-2012 09:23 PM)yellow99 Wrote:  Should I continue with CPAP?

Any feedback is welcome. Thanks in advance!
Everyone is different. Some folks are helped right away but for most it can takes weeks. If you don't use it, it won't help at all.
If you want encouragement and help with problems, this forum is the most helpful.
Proper sleep and oxygen are essential for your well-being. Consider yourself lucky been diagnosed at early age.
I encourage you to continue using your CPAP and stay with it.
07-25-2012 11:51 PM
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cbramsey Offline

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Posts: 900
Joined: Mar 2012

Machine: ResMed S9 Autoset
Mask Type: Nasal mask
Mask Make & Model: ResMed Mirage FX
Humidifier: ResMed H5i with ClimateLine
CPAP Pressure: 6 - 12
CPAP Software: ResScan

Other Comments: Supreme Overlord of Web Darkness

Sex: Male
Location: NC, USA

Post: #4
RE: Advice for a newbie
Welcome to the forum!!! We are glad you joined us!!! Welcome

Like others have said, some are helped right away. Others may take awhile. Unsure

My thoughts to you would be to keep using the CPAP and follow up with your sleep doc if you have one.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
07-26-2012 02:15 AM
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zimlich Offline

Preferred Members-2

Posts: 392
Joined: Feb 2012

Machine: Respironics PR System One BiPap Auto SV Advanced
Mask Type: Nasal mask
Mask Make & Model: ResMed gel Nasal Mask
Humidifier: System One
CPAP Pressure: 8-20 ASV, 8 EPAP,PS 12
CPAP Software: Not using software

Other Comments: I use the Quattro FFM when necessary

Sex: Female
Location: Norfolk, VA

Post: #5
RE: Advice for a newbie
yellow99. Hang in there, it takes some of us longer than others to feel better. I think there are two basic components to therapy. The first is using the machine 100% of sleep time. The second is to make sure you're getting good quality, unfragmented slleep. It's always helpful (though boring) to review and work at your sleep hygiene to make sure you're geting good sleep. The machine can't help if you're not sleeping well. Good luck- hang in there. Use the machine all the time you sleep, don't stop or you will never feel better.
(This post was last modified: 07-26-2012 06:28 AM by zimlich.)
07-26-2012 06:26 AM
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mjbearit Offline

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Posts: 605
Joined: May 2012

Machine: REMstar Auto AFlex DS550
Mask Type: Nasal pillows
Mask Make & Model: RESMed Swift FX
Humidifier: Heated humidifier - 2
CPAP Pressure: 12.5-20
CPAP Software: SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: So Cal

Post: #6
RE: Advice for a newbie
(07-25-2012 09:23 PM)yellow99 Wrote:  I was wondering if you can give me some advice. I'm only in my teens and I was recently diagnosed with mild sleep apnea. I'm always tired and have no energy during the day. I've tried CPAP for about a month and the AHI is now below 5 but I still don't feel any different at all. My weight is normal and all my blood tests are normal so I don't understand why I have this condition. Know anyone in a similar situation? Should I continue with CPAP?

Any feedback is welcome. Thanks in advance!

Hi Yellow99! Welcome

Everyone has already said it....it takes time. We've all been through what you have and we can all understand. There are nights that it is all I can do to put that mask on to go to sleep, but then I remember how bad I felt before and it helps. You just need to get to the point where you punch through that fog and get some quality sleep and you will understand as well. I hope that is very soon for you!
Did you get a sleep study done in a sleep lab where they could look at other potential sleep issues? I have RLS as well and it really does a number on me getting a good nights sleep sometimes. On those nights you would never know from the numbers my machine shows that anything is wrong. You may wish to revisit this whole thing with your sleep doc. Maybe you have a combo of issues that are working against you. Good luck!

As always, YMMV! You do not have to agree or disagree, I am not a professional so my mental meanderings are simply recollections of things from my own life.

PRS1 - Auto - A-Flex x2 - 12.50 - 20 - Humid x2 - Swift FX
07-26-2012 07:44 AM
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jdireton Offline

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Posts: 149
Joined: Feb 2012

Machine: Resmed S9 Elite
Mask Type: Nasal mask
Mask Make & Model: Resmed Mirage FX
Humidifier: Resmed H5i
CPAP Pressure: 12
CPAP Software: ResScan

Other Comments: ClimateLine Hose

Sex: Male
Location: Florida

Post: #7
RE: Advice for a newbie
Yellow,

Welcome. Just as everyone else has said, the treatment can take time to be effective. Even then, you will likely have good days and bad days, or good weeks and bad weeks.

If you think you have unresolved symptoms (still excessively tired during the day), make sure you doctor is aware. You could have other underlying issues that are causing these. CPAP is not a cure all for everything.

One thing I hope you've picked up if you've read some of this forum. Whatever your issues, take control and be active in your treatment! Don't just go with whatever the doctor says after his five minutes exam with you. Ask about any medication or treatment your doctor prescribes. Take charge of your health!

Best of Luck!
07-26-2012 07:52 AM
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Sleepy Mama Offline

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Joined: Apr 2012

Machine: Respironics Bipap with AutoSV Advanced
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Humidifier: Whichever one goes with my machine
CPAP Pressure: 4-14
CPAP Software: Other Software

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Sex: Female
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Post: #8
RE: Advice for a newbie
Do you know if you have obstructive sleep apnea or central sleep apnea, or both? If the majority of your apneas are obstructive in nature a regular CPAP should be fine for you. But, if the majority of your apneas are central apneas then a regular CPAP would not be the proper machine to treat you. It's been found that traditional CPAP does not treat central apneas adequately and will leave you feeling tired, even you are compliant with wearing it every night. I don't know what the results of your sleep study were, but it would be worth looking into and asking your sleep provider the question. If you take nothing else away from all the replies to your post know that you are not alone. A lot of people struggle with this issue!
07-30-2012 10:00 PM
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yellow99 Offline

New Members

Posts: 3
Joined: Jul 2012

Machine: S9
Mask Type: Nasal mask
Mask Make & Model:
Humidifier: unsure
CPAP Pressure: unsure
CPAP Software: ResScan

Other Comments:

Sex: Female
Location:

Post: #9
RE: Advice for a newbie
I have obstructive sleep apnea from my sleep study results. However, when using CPAP, I get mostly central sleep apnea. Is there a different way to treat CSA?
08-05-2012 11:34 AM
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Sleepster Offline
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Posts: 4,995
Joined: Feb 2012

Machine: ResMed AirCurve10 VAuto
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: HumidAir and SlimLine Hose
CPAP Pressure: MaxI 13.6 | MinE 5.2 | PS 4.4
CPAP Software: ResScan SleepyHead

Other Comments: Diagnosed Nov 2011. Conquered aerophagia.

Sex: Male
Location: Houston, Texas

Post: #10
RE: Advice for a newbie
(08-05-2012 11:34 AM)yellow99 Wrote:  I have obstructive sleep apnea from my sleep study results. However, when using CPAP, I get mostly central sleep apnea. Is there a different way to treat CSA?

If you have more CA's than OA's but your AHI is below 5, I doubt your doctor would be interested in adjusting your pressure. The usual remedy is to lower the pressure a bit, but that can cause your OA and hypopnea indices to increase, which would raise your AHI.

If I were you I'd discuss the situation with your doctor.

Which S9 do you have? Is it the autoset or the elite?

Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
08-05-2012 11:53 AM
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