Poll: Have you messed with your settings within the first month of treatment?
yes
no
[Show Results]
 
Post Reply 
Advice for new users wanting to "tweak" settings
Author Message
jackazz76 Offline

Preferred Members

Posts: 25
Joined: Aug 2012

Machine: S9 Escape Auto
Mask Type: Full face mask
Mask Make & Model: Quattro FX
Humidifier: H5i
CPAP Pressure: 5-7 tentatively
CPAP Software: ResScan

Other Comments:

Sex: Male
Location: North Eastern US

Post: #51
RE: Advice for new users wanting to "tweak" settings
Sleep and Supersleeper, The guy who gave me the mask IS the owner. I have one close friend (from way back in high school) who is a salesperson there and one acquaintance whose mom I am friends with who works the billing department. Small town mentality. Of course they need to make money otherwise they are a charitable organization.

I'm not sure if medicare works differently than the medicaid managed care programs (I have medicaid neighborhood health plan). All I know is I had to sign a carbon copied receipt of merchandise that listed machine, mask, humidifier and hose even. So far they have "given" me three masks with no signature, I BELIEVE they are being kind to me possibly due to my connections in the company. This DME is a one store, one family owned and operated business. I'm not trying to say that I know all about them, but I've heard nothing but good things... they make serious money on the motorized scooters and such.
10-27-2012 09:32 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
Sleepster Offline
Wiki Editor
Moderators

Posts: 4,989
Joined: Feb 2012

Machine: ResMed AirCurve10 VAuto
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: HumidAir and SlimLine Hose
CPAP Pressure: MaxI 13.6 | MinE 5.2 | PS 4.4
CPAP Software: ResScan SleepyHead

Other Comments: Diagnosed Nov 2011. Conquered aerophagia.

Sex: Male
Location: Houston, Texas

Post: #52
RE: Advice for new users wanting to "tweak" settings
(10-27-2012 09:32 AM)jackazz76 Wrote:  So far they have "given" me three masks with no signature, I BELIEVE they are being kind to me possibly due to my connections in the company.

That's great. I'm glad you're being treated well.

Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
10-27-2012 10:05 AM
Find all posts by this user Post Reply Quote this message in a reply
SuperSleeper Offline

Administrators

Posts: 9,961
Joined: Feb 2012

Machine: PR System One REMstar Auto (DS560)
Mask Type: Nasal pillows
Mask Make & Model: ResMed Mirage Swift II
Humidifier: none
CPAP Pressure: 12.5 - 18.5 cmH20 (auto range)
CPAP Software: SleepyHead

Other Comments: Have diabetes Type II

Sex: Male
Location: Illinois, USA

Post: #53
RE: Advice for new users wanting to "tweak" settings
Who knows, Jack... your DME could be the exception to the rule. I'm just going by what several Apnea Board members and visitors have told me as far as their personal experience. Granted, I probably hear more of the negative than the positive experiences, I realize.

If you found a helpful and patient-centered, altruistic DME, I'm happy for you. I do believe that as far as brick-and-mortar DMEs, those in small towns are probably less susceptible to corruption than the average high-volume big-city DMEs.

I only put a word of caution out there because I see a lot of people who get abused by their DME because they lack the knowledge of how the system works, so-to-speak.

Coffee

SuperSleeper
Apnea Board Administrator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.

10-28-2012 12:30 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
Sleepster Offline
Wiki Editor
Moderators

Posts: 4,989
Joined: Feb 2012

Machine: ResMed AirCurve10 VAuto
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: HumidAir and SlimLine Hose
CPAP Pressure: MaxI 13.6 | MinE 5.2 | PS 4.4
CPAP Software: ResScan SleepyHead

Other Comments: Diagnosed Nov 2011. Conquered aerophagia.

Sex: Male
Location: Houston, Texas

Post: #54
RE: Advice for new users wanting to "tweak" settings
But the DME did you the greatest disservice possible when he stuck you with a brick. That's something that he should be willing to undo if, like you say, he's really out to help you.

Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
10-28-2012 09:57 AM
Find all posts by this user Post Reply Quote this message in a reply
Ugly Offline

Preferred Members

Posts: 568
Joined: Oct 2012

Machine: ResMed S9 AutoSet
Mask Type: Nasal mask
Mask Make & Model: ResMed Mirage Micro
Humidifier: ResMed H5i
CPAP Pressure: 7-14
CPAP Software: ResScan SleepyHead

Other Comments: Hydrocephalus, myopia, depression, chronic ugliness, stupidity, tinnitus, mixed sleep apnea.

Sex: Male
Location: Barrie Ontario Canada

Post: #55
Wink RE: Advice for new users wanting to "tweak" settings
(09-23-2012 09:01 PM)PollCat Wrote:  Heck, until 2009 I didn't know you could change your own pressure; it wasn't until I stumbled onto this forum that I learned what I could do. Thanks

Oh yeah. But my 1997 vintage machine needed a screwdriver. Clockwise to increase the pressure, counter-clockwise to decrease and it recommended a manometer to check the pressure. I didn't have the means to do it. My new one... I'm still trying to figure it out. I don't know if Philips would issue a service manual upon request or if I have to be a doctor or something. On a positive note, last night was my fourth night on the REMstar SE and despite the doctor not changing my setting of 8, I am sleeping better. It's quite likely that my old clunker was flaky. We're all amazed at it being almost silent - the Tranqulity Quest generated constant "white" noise. But -- am I waking up refreshed and rested? No. I'm quite tired still. I'm just not getting the feeling I'm being smothered despite wearing my CPAP. I'm told that a new hose and mask is ready for me to pick up at Vitalaire. I have still been using my old ones.
10-28-2012 11:16 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
Ugly Offline

Preferred Members

Posts: 568
Joined: Oct 2012

Machine: ResMed S9 AutoSet
Mask Type: Nasal mask
Mask Make & Model: ResMed Mirage Micro
Humidifier: ResMed H5i
CPAP Pressure: 7-14
CPAP Software: ResScan SleepyHead

Other Comments: Hydrocephalus, myopia, depression, chronic ugliness, stupidity, tinnitus, mixed sleep apnea.

Sex: Male
Location: Barrie Ontario Canada

Post: #56
RE: Advice for new users wanting to "tweak" settings
(09-22-2012 11:51 AM)PaulaO2 Wrote:  The problem with docs saying that is this: Most docs will jump up a pressure setting two or more points and not give warnings at all. You raised it by .8 and got a lecture. See the difference?

So many times we hear this from users. Where the doc says "don't change it or you risk death!". Then the doc jumps up several points and doesn't say "bring me your data in two weeks and let's see how it is doing".

And changing your pressure after only a month is not advisable. If you feel good and the AHI is below 5, don't muck with it.

And I wish there was a way to tell the AHI. But I was handed the S9 Escape before I really knew any better. I was told that I couldn't get a better machine without the doctor's prescription. I tried to plead my case to my RT and I guess she put in the word to the doctor. Now I have to wait to hear back on his own sweet merry little time.
12-10-2012 06:10 PM
Find all posts by this user Post Reply Quote this message in a reply
zimlich Offline

Preferred Members-2

Posts: 392
Joined: Feb 2012

Machine: Respironics PR System One BiPap Auto SV Advanced
Mask Type: Nasal mask
Mask Make & Model: ResMed gel Nasal Mask
Humidifier: System One
CPAP Pressure: 8-20 ASV, 8 EPAP,PS 12
CPAP Software: Not using software

Other Comments: I use the Quattro FFM when necessary

Sex: Female
Location: Norfolk, VA

Post: #57
RE: Advice for new users wanting to "tweak" settings
Please don't base your tweaking, or results from "simulating apneas"- it's just not accurate. A month is a good length of time to see how your results are and tweak if necessary.
Good luck,
Mary
12-11-2012 10:30 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
jackazz76 Offline

Preferred Members

Posts: 25
Joined: Aug 2012

Machine: S9 Escape Auto
Mask Type: Full face mask
Mask Make & Model: Quattro FX
Humidifier: H5i
CPAP Pressure: 5-7 tentatively
CPAP Software: ResScan

Other Comments:

Sex: Male
Location: North Eastern US

Post: #58
RE: Advice for new users wanting to "tweak" settings
(12-10-2012 06:10 PM)Ugly Wrote:  And I wish there was a way to tell the AHI. But I was handed the S9 Escape before I really knew any better. I was told that I couldn't get a better machine without the doctor's prescription.
Ugly, you can find your AHI with an Escape model, the model up gives a bit more info like leak detection and if you have had OSA or CSA events. There is also a mask fit option and auto on/off through inhaling through the mask. I did want the "better" machine, but the escape blows air just fine. To find your last nights AHI without using the software, just go into clinician mode and then press the info key that usually only tells you hrs used, it will show AHI in that mode.

Mary, Thank you, I've learned that simulating is not the right way to go... only tried it a few times to see how and when the Auto setting would engage. A little knowledge is a dangerous thing and I've since set my machine to auto because my prescribed 8cm fills me up with air and I don't seem to have apneas on my side. I'm still around 5 or 6 AHI on auto... so I will probably set it back to 8 eventually, once I have enough data to look at.


Sorry this is so late, I've been "out of it" lately. Considering melatonin to try to help me get into the last two stages of sleep which my studies show I don't go into very much.
01-04-2013 12:52 PM
Find all posts by this user Post Reply Quote this message in a reply
JJJ Offline

Advisory Members

Posts: 751
Joined: Apr 2012

Machine: ResMed S9 Autoset
Mask Type: Nasal mask
Mask Make & Model: Most recent: Wisp, Pilairo, Mirage Vista
Humidifier: ResMed S9 Autoset
CPAP Pressure: 17-20
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: USA 97217

Post: #59
RE: Advice for new users wanting to "tweak" settings
(01-04-2013 12:52 PM)jackazz76 Wrote:  ... Considering melatonin to try to help me get into the last two stages of sleep which my studies show I don't go into very much.

Melatonin has a very short half life - 30 to 45 minutes - whether it's melatonin produced by your body or taken as a supplement. In theory, your body starts producing melatonin when it gets dark, and an hour or so later it makes you sleepy. As long as it stays dark your body continues to produce it, but when it gets light out your body automatically stops production.

Unfortunately, in the modern age this natural system often gets messed up. We have electric lights so we can stay up much later. Now, some people's bodies are smart enough to tell the difference between the electric light and daylight, but for some of us the eyes get fooled into thinking it's still daylight.

Because it has such a short half life, if you want to take supplemental melatonin to help you stay asleep, you need a time release version. If you're in the US the cheapest that I have found is Natrol brand 10 mg. controlled release, about $10 for 60 tablets. I take a regular 3 mg. tablet about an hour before bedtime, then one of the 10 mg. Natrol tablets when I go to bed. It doesn't completely solve my frequent arousals during the night, but it does seem to help.

One thing that I have been unable to find information about is how much your body is supposed to produce naturally. And, is more actually better? For example, if you take more than you need of most vitamins your body just excretes the excess - no harm, but also no benefit. Without additional information it's hard to tell what an optimum dose is.
01-04-2013 01:22 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,065
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #60
RE: Advice for new users wanting to "tweak" settings
(01-04-2013 12:52 PM)jackazz76 Wrote:  Ugly, you can find your AHI with an Escape model, the model up gives a bit more info like leak detection and if you have had OSA or CSA events. There is also a mask fit option and auto on/off through inhaling through the mask. I did want the "better" machine, but the escape blows air just fine. To find your last nights AHI without using the software, just go into clinician mode and then press the info key that usually only tells you hrs used, it will show AHI in that mode.

That would be incorrect. The Escape Auto may show the AHI and Mask Fit, but the Escape does not.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
01-04-2013 01:56 PM
Find all posts by this user Post Reply Quote this message in a reply
Post Reply 


Possibly Related Threads...
Thread: Author Replies: Views: Last Post
  advice for diagnosis steps to take odoyle 12 431 Yesterday 11:50 PM
Last Post: Sleeprider
  Question for Airfit F10 Users PaytonA 2 122 Yesterday 05:29 PM
Last Post: PsychoMike
  [Equipment] Advice on transitioning from pillows to FFM? Strat0caster 8 188 12-02-2016 10:58 PM
Last Post: PaulaO2
  Dream Station Ramp and Pressure Settings knowoneuno 15 299 12-02-2016 06:50 PM
Last Post: Sleeprider
  Dream Station Settings Autumnseer 15 484 11-26-2016 07:01 AM
Last Post: Weird Tolkienish Figure
  ADVICE ON THIS DATA Gazz 3 246 11-21-2016 11:13 AM
Last Post: OpalRose
  new user wants advice Gazz 3 221 11-19-2016 11:06 AM
Last Post: trish6hundred

Forum Jump:

Who's Online (Complete List)