I have been diagnosed with Irregular Delayed Sleep Wake Phase Disorder since I was a toddler, it prevents me from having any kind of set schedule with my sleeping routine. I have had 5 separate sleep studies done and have not been able to fully complete a single one. The only data I have is from 1 hour and 45 minutes I was able to sleep during one study where I had the flu, was running a fever, had taken 650 MG of Hydrocodone and 300mg of Gabapentin for back pain and was up for 49 hours prior to the study (the sleep tech was surprised I was able to sleep at all.) It was this study that diagnosed me with sleep apnea with the recommendation for auto CPAP. I should also add I do not snore and I don't breathe through my mouth.
I have had my Dreamstation for almost 8 weeks and have a total of 0 nights spent actually sleeping with my machine/mask. It is extremely difficult for me to sleep under normal conditions due to my circadian rhythm disorder so as you can imagine getting used to CPAP has been incredibly difficult and frustrating. I have tried several different masks so far as well as a range of starting pressure settings to no avail. I have tried each mask type and a few of the same type. Each mask I have tried has major flaws which I have not been able to get used to. Some cause pain while others are uncomfortable, loud or flat out don't fit me. When I first got my machine I spent a great deal of time wearing it during the day to get used to the sensation of positive air pressure. I think I can get used to the pressure with time if I could only find a mask that does not make me rip it off in frustration or pain after several hours of trying to sleep. I have even tried using my CPAP when I was awake for 57 hours and still could not fall asleep, even cycling between my different masks. I have also tried to associate my therapy with pleasant thoughts and positive affirmation that this will help improve my quality of life to no avail.
My sleep doctor basically told me I am S.O.L and J.W.F if I can't find a mask I can work with and my DME will not let me try a new mask for another 2 months as I have tried several with them already. My sleep quality has been deteriorating and I am incredibly desperate to find any solution that will help me actually sleep with my machine. I am about ready to give up and just accept the fact that not only can I not keep any sleep schedule, but the sleep that I do get is very poor in quality and makes me feel as if I have not slept at all. The impact it is having on my mental health and social life is becoming too much to bear.
I am asking for any advice on what I can do to actually start getting the therapy I need. My DME won't let me try any more masks and I feel as if my sleep doctor has written me off. Any help would be much appreciated.
Masks I have tried so far
Dreamwear, Airfit P10, Nuance/Nuance Pro Gel, Wisp, Mirage Quatro, Amara Gel, Swift FX, Pilairo Q, Mirage Swift.