At this point you're going to have to "man-up" and get the hours, or self-finance your machine. This is basic Medicare / insurance guidelines. You can use the machine while sitting around watching TV, or try to get some quality sleep. It doesn't matter but you've simply run the clock down. Most insurance plans and Medicare consider the first 90 days a trial, and will not pay for the therapy unless you show "compliance". You have 3-months to show that in any 30 day period, you used the machine at least 4-hours per day on at least 70% of days. So you need 22 days of 4 hours or more, or they repossess the machine. If you run the clock and don't show this minimal compliance, you are out of the program and not covered. No exceptions.
You need to get over your complaining, and buckle down, or accept that you will pay for your own equipment, or not be treated. Tough love. Quit complaining and do what it takes, or accept that you are one of the 50% of patients that fail.
Sounds like the main problem is you can't fall asleep easily. Machine is only good when you are actually sleeping. I'd try to tackle the sleep problem if I were you. I'm surprised you can stay up for that long without feeling sleepy.
You probably have tried taking a hot bath, drank a cup of milk, or listening to music before sleeping.
Tough love didn't work....oh well.
You might want to try the Sleep Weaver Elan cloth mask listed in my equipment profile. It is typically a mask that is recommended but I have found it is the only one I can tolerate.
Supposedly, it is hard to master the leaks but I haven't have had any trouble in controlling them.
Obviously, your milage will vary but what you do have to lose by trying it?
09-13-2016, 03:59 PM
(This post was last modified: 09-13-2016, 04:09 PM by BadGoodDeb.)
For the P10 -- yes, there are now clips that'll make the strap be tighter. No, they don't automatically come with the "For Her" mask kit (at least, they didn't in April, tho the clip was still new then). For 10-20 bucks, you can buy them yourself, from one of the vendors in our list up above. [ Well, except that I can't find them anywhere .... ] The "For Her" kit has a *strap* which is an inch or so shorter than the regular one. That might help. $29 at, for instance, #10 on the list. They don't advertise the strap as different in length, but I got two kits side-by-side (by accident) and was able to measure them.
Also, try the lanolin. It's sold in the nursing mothers section of any store; they use it for ease of the nipples (sorry)- brand name Lansinoh in the USA. A teeny tiny bit of that rubbed on the inside edge of the nostrils kept me from having the sores you refer to. It is much thicker than the AYR gel (which is water based) so it also kinda sticks to the mask and provides a seal. Yet, it isn't petroleum based, so it won't harm the vinyl of the mask.
Re hours: the machine only *helps* when you are asleep, but I think you can get "compliance hours" in while you are awake and watching TV or something. That might also help adjust you to the mask too.
Glad to hear they've finally acknowledged you have a problem, and have given you more leeway with the time frame.
I will try lanolin, the AYR didn't work any better than my homemade saline solutions. I am also going to pick up some cloth medical tape tomorrow as well to try on my Dreamwear (I want this mask to work so much). I have adjusted my P-10 strap with another Velcro strip, so far it is fitting well while laying down but I can't get it to stay in place while sitting upright without it being too tight and hurting my nares. Progress has been made, at least it does not leak even when I tossed and turned for several minutes testing.
Here goes night #1 with the newly fitted P-10.