09-14-2016, 06:56 PM
(This post was last modified: 09-14-2016, 06:57 PM by BadGoodDeb.)
I've not tried this (don't need it), so it may or may not work. But you could try tying a knot in the whole headstrap, near the face (so you won't try to sleep on it). However, this gives a rather non-adjustable amount of length difference, so it might be too much.
Just trying to think of easy options ....
09-15-2016, 09:01 AM
Well I am at the trying phase for masks and machines. I just saw an add for cheek pads. They are cloth and fit over the silicone part of the mask to seal and make it comfortable. I would like to trial them, but not available in Australia. Post from the USA would be US$15. A bit expensive.
Also, having looked at different forums and seeing other people with problems, I believe we all want that "magic" solution to all our problems.
Let me know if anyone finds such a device. I would buy in, no problems>
Some of the masks come with cloth pads, I know my Dreamwear did and my DME gave me some when I was using the Wisp. With what I have experienced personally and read on the interwebs there is no magic solution for everyone, we all have different needs. I am still in the trial and error phase myself but you should continue to peruse the forums and ask for advice if you need it. There are lots of friendly people that can help you out like they have for me.
Thought I would give an update on my situation. I still have not gotten any sleep while wearing a mask and receiving my APAP therapy. The p-10 winded up being a failure due to unmanageable pain in the nares, though I did manage to find a comfortable fit for the head strap. I tried the Dreamwear and my other masks again testing them out with Lanolin, AYR, medicated cloth tape and a homemade gel concoction I have been making with honey, coconut oil, witch hazel and olive oil on my skin where the mask seals but to no avail.
I have also tried the Amara View, Sleepweaver Advance and Sleepweaver Elan. The sleepweaver masks are by far the best experience I have had with masks as far as comfort goes, the Amara View was far too cumbersome and put similar pressure on my sinuses that have prevented me from using nasal masks. Both of the sleepweaver masks cause me no irritation and are comfortable enough, I have gotten used to the fabric feel on my face. I have some issues with leaking on both masks but I have gotten them down to a minimum with the Advance mask. Since I started using the Elan/Advance 29 days ago I have been able to go up to 9 hours wearing the mask! Unfortunately I still am unable to sleep with the therapy, I have now added 5 additional attempts while being deprived of sleep for 48-79 hour intervals. What is the longest time period anyone has taken to become acclimated the the positive pressure therapy? I feel like my body has adjusted but I just cannot fall asleep with the machine on no matter what I do.
My DME has basically refused to help me any further in acclimating to my therapy until 90 days after I received my Sleepweaver Advance have passed and have in general been extremely rude when I have asked for further advice. My current sleep doctor dropped my insurance from the network on October 1st (last appointment October 12th) and I should be seeing my next sleep doctors within the next week pending a referral.
On a positive note my physical therapy has been improving my range of motion and my pain has decreased enough that my primary care physician has started tapering off some of the medications I have been taking.
You may need to consult on a hypersensitivity disorder to find a comfortable CPAP solution.
This: "Lanolin, AYR, medicated cloth tape and a homemade gel concoction I have been making with honey, coconut oil, witch hazel and olive oil on my skin" is just weird. No one can sleep with that kind of crap on their skin and it is probably the problem, not the solution.
Your problem is not with CPAP pressure, but with the interface. You seem to tolerate cloth better than silicone, and that may be a clue to the root of the problem. I would encourage you to stop adding your home-made salve to the problem, and focus on overcoming the sensitivity you have to something in contact with your facial skin through the night. The physical pain and discomfort is not normal. That is the problem, not CPAP, and this is why your supplier has given up. There is nothing they can do until you overcome this problem that has nothing to do with CPAP.