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Advice needed for struggling CPAP user
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Sleeprider Online
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Advisory Members

Posts: 3,307
Joined: Dec 2014

Machine: Resmed Aircurve 10 Vauto
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: Resmed Climateline
CPAP Pressure: Auto Bilevel 18/9, PS 3
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: Where they make Respironics

Post: #21
RE: Advice needed for struggling CPAP user
Remember the P-10 is tighter when the split straps are together at the crown of your head, and looser when spread apart. Pulling the back-most strap almost to your neck should help security and loosen the fit.

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09-14-2016 07:39 AM
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Fubblin Offline

Members

Posts: 18
Joined: Jul 2016

Machine: Phillips Respironics Dreamstation Auto CPAP
Mask Type: Nasal mask
Mask Make & Model: Phillips Respironics Dreamwear
Humidifier: DreamStation Heated Humidifier
CPAP Pressure: 7.5-18 cmH20
CPAP Software: EncorePro

Other Comments: Diagnosed with IDSPS/IDSPD. Recovering from L3-S1 herniated discs.

Sex: Male
Location: USA

Post: #22
RE: Advice needed for struggling CPAP user
(09-14-2016 07:39 AM)Sleeprider Wrote:  Remember the P-10 is tighter when the split straps are together at the crown of your head, and looser when spread apart. Pulling the back-most strap almost to your neck should help security and loosen the fit.

Yes, my lets call it aerodynamically shaped head makes it awkward, anything lower than the middle of my head causes it too severely loosen which is ok but it changes the angle at which the pillows secure to my nose.

The headgear and pillow fit was very snug last night while laying down. I managed to clock 6h 23 minutes which is the longest I have been able to wear any mask so far, unfortunately I still have not actually slept. My nose is very sore but I will be trying the lanolin tonight.

I have to readjust to the positive air pressure as well since I have not used my machine in weeks. Overall I am making some progress which is refreshing, just need to sleep with the mask now. Thank you for the help.
09-14-2016 01:25 PM
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Sleeprider Online
Wiki Editor
Advisory Members

Posts: 3,307
Joined: Dec 2014

Machine: Resmed Aircurve 10 Vauto
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: Resmed Climateline
CPAP Pressure: Auto Bilevel 18/9, PS 3
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: Where they make Respironics

Post: #23
RE: Advice needed for struggling CPAP user
Ah, the football shaped skull! I pity you ever trying to fit a motorcycle helmet! (just kidding).

All of this is part of adapting and getting more comfortable. What works for me, may not work for you, and that's fine, especially if you're making progress in the right direction. Good on you for sticking with it and making that happen.

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09-14-2016 06:38 PM
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BadGoodDeb Offline

Advisory Members

Posts: 210
Joined: Apr 2015

Machine: ResMed Airsense 10 autoset
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 for Her
Humidifier: no
CPAP Pressure: 8 (testing 7.8-10)
CPAP Software: SleepyHead

Other Comments: New to AirSense 10 and AirFit P10, but 4 years on prev unit

Sex: Female
Location: Chicago outskirts (Aurora, IL)

Post: #24
RE: Advice needed for struggling CPAP user
I've not tried this (don't need it), so it may or may not work. But you could try tying a knot in the whole headstrap, near the face (so you won't try to sleep on it). However, this gives a rather non-adjustable amount of length difference, so it might be too much.

Just trying to think of easy options ....
(This post was last modified: 09-14-2016 06:57 PM by BadGoodDeb.)
09-14-2016 06:56 PM
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HGMonaro Offline

Preferred Members

Posts: 24
Joined: Feb 2016

Machine: Philips Respironics System One 60 Series
Mask Type: Nasal pillows
Mask Make & Model: Resmed P10
Humidifier: inbuilt
CPAP Pressure: 8 -12
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Melbourne, Aust

Post: #25
RE: Advice needed for struggling CPAP user
(09-14-2016 01:25 PM)Fubblin Wrote:  Yes, my lets call it aerodynamically shaped head makes it awkward, anything lower than the middle of my head causes it too severely loosen which is ok but it changes the angle at which the pillows secure to my nose.

I use a P10 and have noticed something similar... and my head is normal... I assure you Smile

I've found I need the straps to sit pretty high so they pull the nasal pillow up towards my nostrils, not back towards the back of my noggin.

It's all in the angle of the dangle!
09-15-2016 01:02 AM
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Fubblin Offline

Members

Posts: 18
Joined: Jul 2016

Machine: Phillips Respironics Dreamstation Auto CPAP
Mask Type: Nasal mask
Mask Make & Model: Phillips Respironics Dreamwear
Humidifier: DreamStation Heated Humidifier
CPAP Pressure: 7.5-18 cmH20
CPAP Software: EncorePro

Other Comments: Diagnosed with IDSPS/IDSPD. Recovering from L3-S1 herniated discs.

Sex: Male
Location: USA

Post: #26
RE: Advice needed for struggling CPAP user
(09-14-2016 06:56 PM)BadGoodDeb Wrote:  I've not tried this (don't need it), so it may or may not work. But you could try tying a knot in the whole head strap, near the face (so you won't try to sleep on it). However, this gives a rather non-adjustable amount of length difference, so it might be too much.

Just trying to think of easy options ....

The knot was my first failed attempt at a comfy fit. The velcro strap is working much better. I just can't get the fit right while being upright (won't be a problem once I can sleep.) I will need a few more days to see if it is the nasal pillows or the overall fit that is holding me back from sleeping without the nose pain.
09-15-2016 01:40 AM
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Nusi Offline

New Members

Posts: 2
Joined: Sep 2016

Machine: none
Mask Type: Full face mask
Mask Make & Model: resmed airlift f10
Humidifier: none
CPAP Pressure: 11
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: australia

Post: #27
Surprised RE: Advice needed for struggling CPAP user
Well I am at the trying phase for masks and machines. I just saw an add for cheek pads. They are cloth and fit over the silicone part of the mask to seal and make it comfortable. I would like to trial them, but not available in Australia. Post from the USA would be US$15. A bit expensive.

Also, having looked at different forums and seeing other people with problems, I believe we all want that "magic" solution to all our problems.

Let me know if anyone finds such a device. I would buy in, no problems>
09-15-2016 09:01 AM
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Fubblin Offline

Members

Posts: 18
Joined: Jul 2016

Machine: Phillips Respironics Dreamstation Auto CPAP
Mask Type: Nasal mask
Mask Make & Model: Phillips Respironics Dreamwear
Humidifier: DreamStation Heated Humidifier
CPAP Pressure: 7.5-18 cmH20
CPAP Software: EncorePro

Other Comments: Diagnosed with IDSPS/IDSPD. Recovering from L3-S1 herniated discs.

Sex: Male
Location: USA

Post: #28
RE: Advice needed for struggling CPAP user
Some of the masks come with cloth pads, I know my Dreamwear did and my DME gave me some when I was using the Wisp. With what I have experienced personally and read on the interwebs there is no magic solution for everyone, we all have different needs. I am still in the trial and error phase myself but you should continue to peruse the forums and ask for advice if you need it. There are lots of friendly people that can help you out like they have for me.
09-15-2016 01:11 PM
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Fubblin Offline

Members

Posts: 18
Joined: Jul 2016

Machine: Phillips Respironics Dreamstation Auto CPAP
Mask Type: Nasal mask
Mask Make & Model: Phillips Respironics Dreamwear
Humidifier: DreamStation Heated Humidifier
CPAP Pressure: 7.5-18 cmH20
CPAP Software: EncorePro

Other Comments: Diagnosed with IDSPS/IDSPD. Recovering from L3-S1 herniated discs.

Sex: Male
Location: USA

Post: #29
RE: Advice needed for struggling CPAP user
Thought I would give an update on my situation. I still have not gotten any sleep while wearing a mask and receiving my APAP therapy. The p-10 winded up being a failure due to unmanageable pain in the nares, though I did manage to find a comfortable fit for the head strap. I tried the Dreamwear and my other masks again testing them out with Lanolin, AYR, medicated cloth tape and a homemade gel concoction I have been making with honey, coconut oil, witch hazel and olive oil on my skin where the mask seals but to no avail.

I have also tried the Amara View, Sleepweaver Advance and Sleepweaver Elan. The sleepweaver masks are by far the best experience I have had with masks as far as comfort goes, the Amara View was far too cumbersome and put similar pressure on my sinuses that have prevented me from using nasal masks. Both of the sleepweaver masks cause me no irritation and are comfortable enough, I have gotten used to the fabric feel on my face. I have some issues with leaking on both masks but I have gotten them down to a minimum with the Advance mask. Since I started using the Elan/Advance 29 days ago I have been able to go up to 9 hours wearing the mask! Unfortunately I still am unable to sleep with the therapy, I have now added 5 additional attempts while being deprived of sleep for 48-79 hour intervals. What is the longest time period anyone has taken to become acclimated the the positive pressure therapy? I feel like my body has adjusted but I just cannot fall asleep with the machine on no matter what I do.

My DME has basically refused to help me any further in acclimating to my therapy until 90 days after I received my Sleepweaver Advance have passed and have in general been extremely rude when I have asked for further advice. My current sleep doctor dropped my insurance from the network on October 1st (last appointment October 12th) and I should be seeing my next sleep doctors within the next week pending a referral.

On a positive note my physical therapy has been improving my range of motion and my pain has decreased enough that my primary care physician has started tapering off some of the medications I have been taking.
11-01-2016 07:51 PM
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Sleeprider Online
Wiki Editor
Advisory Members

Posts: 3,307
Joined: Dec 2014

Machine: Resmed Aircurve 10 Vauto
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: Resmed Climateline
CPAP Pressure: Auto Bilevel 18/9, PS 3
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: Where they make Respironics

Post: #30
RE: Advice needed for struggling CPAP user
You may need to consult on a hypersensitivity disorder to find a comfortable CPAP solution.

This: "Lanolin, AYR, medicated cloth tape and a homemade gel concoction I have been making with honey, coconut oil, witch hazel and olive oil on my skin" is just weird. No one can sleep with that kind of crap on their skin and it is probably the problem, not the solution.

Your problem is not with CPAP pressure, but with the interface. You seem to tolerate cloth better than silicone, and that may be a clue to the root of the problem. I would encourage you to stop adding your home-made salve to the problem, and focus on overcoming the sensitivity you have to something in contact with your facial skin through the night. The physical pain and discomfort is not normal. That is the problem, not CPAP, and this is why your supplier has given up. There is nothing they can do until you overcome this problem that has nothing to do with CPAP.

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Robysue's Beginner's Guide to Sleepyhead
11-01-2016 08:31 PM
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