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Afib board
#1
AFib (Atrial fibrillation) is often associated with sleep apnea. Can any of you suggest an AFib board (of this quality) that you would recommend?

Thank you
#2
Did you try the ubiquitous Google search engine?
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#3
I purposely did not try the "ubiquitous Google search engine" because I preferred asking people in a board with which I have had experience and whom I respect.


#4
(02-15-2014, 07:51 PM)AfibApnea Wrote: I purposely did not try the "ubiquitous Google search engine" because I preferred asking people in a board with which I have had experience and whom I respect.
Here couple threads found while searching the forum
OSA and your HEART http://www.apneaboard.com/forums/Thread-...your-HEART
Sleep Apnea and Heart Disease http://www.apneaboard.com/forums/Thread-...rt-Disease

#5
Thank you for the kind replies. But I’m still looking for an AFib forum.

I know I have AFib and I know I have sleep apnea (the AFib was diagnosed first). I also know that (very probably) many of you have AFib. I have specific questions to ask about AFib, and treatments relative to AFib, that would be inappropriate to ask in this forum.

I assume that some of you with AFib, since you took the time to get involved with this forum, probably have had some experience with forums devoted to AFib (and treatments related to AFib). (If you’re really interested, what I need to learn more about is the 14-day Zio patch, a Halter-like device that I recently was prescribed… I want to know what it does; how it does it; what kind of output it provides; etc.)

That’s the reason I’m asking if any of you have had positive experiences with a forum devoted to AFib I’d appreciate knowing the name/url for that forum. If no one on this forum has any problems with atrial fibrillation, congratulations, I’m very happy for you.
#6
Since I'm new to this board, I'm not allowed to post links so I'll do my best to give you the info without actually providing links or hint of links. The spam filters in this forum are super tight as I've tried numerous ways to provide the info and every attempt gets flagged.

There are a few sites and forums I would highly recommend to learn more about atrial fibrillation:

For this site, add dot com after the name and then /forum/

LivingWithAtrialFibrillation

For this site, add forum dot to the front of the name:

StopAfib
(this is a dot org site)

For this site, add dot net to the end (you'll find their board on the home page):

[commercial website removed - see admin note below]


With the exception of my forum on LivingWithAtrialFibrillation, which I just launched so it has very little activity, the rest of these have been around for a long time but between all of these sites, you should be able to find the answers to all of your afib questions.

Good luck to you!

Travis


#7
I have had AFIB (treated with Amiodarone aka Pacerone).

Usually I would locate a forum on anything such this of interest to me, but in this case, I just read a couple of cardiology books and watched some study guides for cardiology boards until I had a pretty good grip on the subject.

My AFIB converted about about 2 days on the antiarrhythmic, took it for some months with a taper, and then went without it for a few months before my AFIB reoccurred.

My cardiologist put me back on the medicine and it converted again in 1-2 days and I am still on a low dose.
Sweet Dreams,

HerbM
Sleep study AHI: 49 RDI: 60 -- APAP 10-11 w/AHI: 1.5 avg for 7-days (up due likely to hip replacement recovery)

"We can all breathe together or we will all suffocate alone."
#8
(02-16-2014, 02:26 PM)tvanslooten Wrote: There are a few sites and forums I would highly recommend to learn more about atrial fibrillation:

For this site, add dot com after the name and then /forum/

LivingWithAtrialFibrillation

For this site, add forum dot to the front of the name:

StopAfib
(this is a dot org site)

For this site, add dot net to the end (you'll find their board on the home page):

[commercial website removed - see admin note below]


With the exception of my forum on LivingWithAtrialFibrillation, which I just launched so it has very little activity, the rest of these have been around for a long time but between all of these sites, you should be able to find the answers to all of your afib questions.

Thank you very much (you did a good job with explaining the urls as well)

#9

"I have had AFIB (treated with Amiodarone aka Pacerone)"

Keep an eye on your thyroid function when taking amiodarone.
I think I read somewhere when a friend's mother was on it that you need
to have regular thyroid tests when taking this medication.


#10
(02-17-2014, 06:44 AM)Lukie Wrote: "I have had AFIB (treated with Amiodarone aka Pacerone)"

Keep an eye on your thyroid function when taking amiodarone.
I think I read somewhere when a friend's mother was on it that you need
to have regular thyroid tests when taking this medication.

I was on Amiodarone for just two years before it totaly destroyed my Thyroid.......I had all the required tests every six months for lung function, thyroid, and one other periodic test that is required when on this drug. It is extremely toxic and causes a lot of long-term problems......I now have to take synthetic thyroid hormone every day as a result of this drug killing my thyroid gland. I would get off that drug as soon as possible and do an ablation or some other procedure for your A-Fib.



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