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Air escaping from mouth with XPAP
#11
I may be misreading OPs problem,
But seems shes concerned about air escaping her mouth.
OP it doesnt matter in a ffm if it does.
I recommend a Simplus ffm.
But everyone has different masks they like.
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#12
For several years I have been taping my mouth shut with Micropore paper tape - 2" wide - can get a box of 6 rolls for about $9 from amazon. Someone said to me that this was dangerous, but I don't see why this would be so, so I'm assuming that concern is not well founded (but if someone has a good reason to think otherwise, I'm all ears). Plus it's the only thing that has worked for me so far. Nasal systems give me a bad mouth leak, full face masks give a bad overall leak. That said, I'm hoping to make a full face mask work and am now experimenting (again) to see if I can use one without a terrible leak.

Has anyone here used a special pillow (side sleeping pillow, etc) to take the pressure off the edge of a full face mask and thus (hopefully) prevent it from getting dislodged and leaking?
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#13
VisitorX,

Here is my take on what it takes to get a full face mask to fit right with few leaks. If the notch in your chin under your lower lip and your cheekbones, and the deepest part of the bridge of your nose are all in the same plane then most of the FFMs should be satisfactory. I do not think that this is the case very often. There is another qualifier for this statement. The bridge of your nose is not inset too far from your forehead.

If the 3 features of your face that were previously mentioned are not close to being in the same plane and/or the bridge of your nose is recessed too far from your forehead, there are only 2 FFMs that I know of that will work. These two masks are Resmed's Mirage Quattro and Fisher and Paykel's Simplus. You must first get the size right. Use the manufacturer's sizing but be ready to change sizes to fit your particular needs. The Resmed sizing tool and Fisher and Paykel's both said I needed a medium size. A small actually works better for me in both cases. Found out through trial and error. One other mask that might work under these conditions is the PR Fitlife mask which is a Total Face Mask.

When trying to eliminate leaks for a FFM, one needs to do it thoughtfully.

Best Regards,

PaytonA
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#14
Here is some info that I have dug up back when I was trying to determine what size ResMed Mirage Quattro mask to order.

Xsmall = 75 mm. (3")
Small = 85 mm. (3 3/8")
Med. = 95 mm. (3 3/4")
Large = 107 mm. (4 1/4")

These are the measurements from
center to center of the mask cushion
from top to bottom.

Choose the measurements above that most closely matches the measurement from the notch in your chin under your lower lip to the deepest part of your nose bridge.

I'm not saying that they will automatically give you a ResMed Mirage Quattro mask but if you determine what size you are before going in, it'll put you one step ahead of the person doing your fitting for any mask and give you some idea of what they should be selecting for you.

Dude
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#15
Thanks for that, Payton.
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#16
(10-08-2015, 06:40 AM)VisitorX Wrote: For several years I have been taping my mouth shut with Micropore paper tape - 2" wide - can get a box of 6 rolls for about $9 from amazon. Someone said to me that this was dangerous, but I don't see why this would be so, so I'm assuming that concern is not well founded (but if someone has a good reason to think otherwise, I'm all ears). Plus it's the only thing that has worked for me so far. Nasal systems give me a bad mouth leak, full face masks give a bad overall leak. That said, I'm hoping to make a full face mask work and am now experimenting (again) to see if I can use one without a terrible leak.

Has anyone here used a special pillow (side sleeping pillow, etc) to take the pressure off the edge of a full face mask and thus (hopefully) prevent it from getting dislodged and leaking?

I have yet to wear a FFM successfully and not for lack of trying!
I'm taping now and it makes a huge improvement however if one were to vomit could be a beeeg problem. I now bend the tape back on itself on the sticky side about 3/8" making a flap that is easy to grab and yank if it becomes necessary for a quick removal. I field tested it and it hurts like heck but it does make it easy for an emergency tape untape.

This is all quite the PITA.
Put on chin strap.
Put on nasal mask.
Tape mouth shut.

I use my PAP machine nightly and I feel great!
Updated: Philips Respironics System One (60 Series)
RemStar BiPAP Auto with Bi-FlexModel 760P -
Rise Time x3 Fixed Bi-Level EPAP 9.0 IPAP 11.5 (cmH2O)
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#17
>I now bend the tape back on itself on the sticky side about 3/8" making a flap that is easy to grab and yank if it becomes necessary for a quick removal. I field tested it and it hurts like heck but it does make it easy for an emergency tape untape.

>This is all quite the PITA.
Put on chin strap.
Put on nasal mask.
Tape mouth shut.

-----

I also fold over the tape at the edge to make it easier to remove, BUT I've also discovered the "obvious": that if you need to open your mouth, just take a single finger and poke it right through the tape into your mouth--much easier than removing it. Then you can simply put a new layer of tape on top when you want to close up again. I can actually get up, poke hole, make it a bit bigger, and have some water or tea and retape it (if you're careful not to get the tape wet).

I also have a real PITA arrangement: tape, mask, a day pack with a large plastic container in it (to keep off my back). I also elevate the head of my be six inches. And I'm about to start experimenting with a chin strap and cervical collar to prevent my neck from "tucking." Unfortunately, I seem to have so-called "complex" sleep apnea (a.k.a. treatment-emergent central sleep apnea) in which central apneas and hypopneas start to develop when you apply the pressure of CPAP. Not good.
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