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Alarmingly High AHIs from sleep study
#1
Hows it going? Ive recently gotten the results from my sleep study and something doesnt seem to add up to me. My mother who's been a nurse for 30+ years seems to agree. Id like to ask if anyone else has experienced something like this and what the probability of this being bad data is?


Ive been told I have a Rem-Related AHI of 103 and a Non-Rem of 165 with an oxygen saturation of 93 during Rem and 92 Non-Rem. Looks like the overall AHI was 154.7.

This also showed a Central Apnea Index of 123.9.

The oxygen saturation only increased a few percentage points while on CPAP during the study. Looks like the apnea indexes improved for a short while to 76.8 but increased back up into the 120s-150s.

No other issues noticed in the cardiac data

Being able to function during the day (despite being exhausted) seems to contradict these findings. Am I off in thinking something is up with the data? I would think that these sorts of numbers, if correct, would result in me being unable to function day to day or would have resulted in serious health issues.

Any thoughts on this? I do have another sleep study scheduled with a Bipap ASC to see whats going on but its a few weeks out due to insurance unfortunately.
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#2
Should add that I am 30 years old...
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#3
The findings, if true, would be extraordinary with an apnea of at least 10 seconds, occurring every 22 seconds on average. Regardless of the numbers, the majority of the problem is central, that gets worse with CPAP pressure. What doesn't add up is an oxygen desaturation only into the low 90s. With an event rate this high, I would have expected oxygen to have been much lower for this event rate. As a result of the finding of very severe central apnea, you have been scheduled for evaluation on a bilevel ASV (Adaptive Servo Ventilator). You should ask for complete records of the study including the polysomongraphy trace. This will show you and anyone else you wish to consult exactly what happened during this study.

I understand insurance takes some time to secure approval for studies and to obtain a high level machine like ASV, but in your case I think this is rather urgent. If your oxygen saturation is really at a nadir of 92 then there may be less urgency, however the severity of your problem, probably means your claim or authorization should be expedited. Talk to your specialist or primary doctor about expediting the insurance and study scheduling, as well as dispensing of the machine that will inevitably be prescribed.

ASV is a specialized bilevel machine that can detect your breathing on a breath by breath basis, and will provide pressure support to cause a breath when you do not spontaneously initiate breathing. This is a noninvasive positive air pressure machine that delivers pressure through a CPAP hose and mask. We have a number of members on the forum that use this, however the abundance of your apnea is not something I have ever seen.
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#4
Hi 98taco3,
WELCOME! to the forum.!
Hang in there for more answers to your questions and I wish you good luck at your Bi-Level/ASV sleep study and also, good luck to you on your CPAP journey.
trish6hundred
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#5
(02-08-2017, 11:17 AM)98taco Wrote: Being able to function during the day (despite being exhausted) seems to contradict these findings. Am I off in thinking something is up with the data? I would think that these sorts of numbers, if correct, would result in me being unable to function day to day or would have resulted in serious health issues.

Any thoughts on this? I do have another sleep study scheduled with a Bipap ASC to see whats going on but its a few weeks out due to insurance unfortunately.

Not necessarily. Your overall oxygen is still fairly good with the low of 92%.  Even though you have chronic interruptions in breathing resulting in your not getting good rest, your body is still getting good oxygen.   So yay for that!
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#6
Well got a call last night at 8pm saying the sleep lab had a cancellation so I ended up going in for the second study.  That was fast haha. 

Was put on the ASV all night and it was mentioned that it was able to take care of the apneas that I was having when they got the pressures setup correctly.  Didnt notice much change in my rest but I had a lot of issues falling asleep with it, probably only got 3-4 hours of sleep tops. 

Im curious to see the results of this study to see if they match the first one.  Hope there were some issues with the first one and the data was incorrect hahaha.
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#7
(02-08-2017, 11:17 AM)98taco3 Wrote: ......Being able to function during the day (despite being exhausted) seems to contradict these findings. Am I off in thinking something is up with the data? I would think that these sorts of numbers, if correct, would result in me being unable to function day to day or would have resulted in serious health issues.

There is not necessarily a contradiction there. I was able function for a number of years with severe sleep apnea and have since been diagnosed and treated.

Best Regards,

PaytonA
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#8
I hope you will share the results of your test, and hopefully will get setup with ASV soon.  I don't see much alternative to deal with this.  Good luck!
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#9
While not as bad, AHI of 81. My oxygen saturation was between 85-88%. I could function welll. I had learned to deal with the fatigue an heachaches, morning fog an just chalked it up to getting older. It wasn't until other medical issues prompted a sleep study that I dis covered sleep apnea was the problem.
An ASV machine is a wonderful thing as that's what I've got.
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#10
Well had the second sleep study and it held up the first study's results unfortunately. 

Have been on an ASV machine for a few weeks now and dont know how I did without it!  HUGE difference although I am still fatigued somewhat, but it is improving.
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