Post Reply 
Almost divorced over CPAP
Author Message
SassySW Offline

Members

Posts: 4
Joined: Jul 2015

Machine: Phillips Respironics
Mask Type: Full face mask
Mask Make & Model: Remstar Plus
Humidifier: C2
CPAP Pressure: 9.0 cmH2O
CPAP Software: ResScan

Other Comments:

Sex: Male
Location:

Post: #1
Almost divorced over CPAP
Hello, I am new to this forum and in desperate need of guidance. My husband has OSA and has struggled with his CPAP machine for our whole marriage- seven years now. He had his deviated septum repaired (over 70% deviated) two months ago and still says he has no relief with the machine. He always pulls the mask off at night and has maybe has a hand full of nights that he has kept it on. His personality and mood have noticeably changed in the past few years. He's always been a little "off" when he doesn't sleep well and over the last few months he is increasingly angry, short-tempered, and difficult to live with. We have a 5-year-old son who is always asking "why is daddy so mad" because he slams doors, kicks things, and yells when he's angry. We have slept separately for our entire marriage because of his snoring. I have tried on occasion sleeping with him to help him keep the mask on and I have such anxiety about it that I cannot sleep. Also, when I have woken him up because he pulled the mask off I am met with him throwing the machine on the floor and going to another room to sleep. I'd like to think I could tough it out by remaining in the room with him overnight for as long as it takes, but it makes no sense to me for both of us to be sleep deprived since we have a child and two full-time jobs.

What is the next step besides CPAP? Are there other options? Is there something physical we're missing? I've thought about going to a highly ranked sleep center out-of-state if needed. I need something, anything to try because I am almost at the point of walking away from my marriage. I am constantly walking on egg shells and never know what kind of mood he will be in when he comes home or when he wakes up. Any direction would be greatly appreciated. Thank you!
07-20-2015 11:07 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
OpalRose Offline

Monitors

Posts: 3,167
Joined: Nov 2014

Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #2
RE: Almost divorced over CPAP
SassySW,
Is your husband "open" for suggestions? Or does he shut you out with "all things CPAP related"?

Has he seen a sleep specialist in the last seven years? What machine, mask does he use? What pressure is he on. Does he use software to track his data? If you could fill out the profile, we may be able to give some helpful suggestions.

With the right machine, mask, and pressure settings, it would be an improvement for him and you.

OpalRose
07-20-2015 11:33 AM
Find all posts by this user Post Reply Quote this message in a reply
SassySW Offline

Members

Posts: 4
Joined: Jul 2015

Machine: Phillips Respironics
Mask Type: Full face mask
Mask Make & Model: Remstar Plus
Humidifier: C2
CPAP Pressure: 9.0 cmH2O
CPAP Software: ResScan

Other Comments:

Sex: Male
Location:

Post: #3
RE: Almost divorced over CPAP
I will check his machine tonight and get the info on the settings. I think he is open to just about anything at this point. He had a repeat sleep study less than a year ago and they still say he is in the "moderate" range with 5-10 events per however many minutes they measure. He has primarily treated this with a primary care physician and ENT. I'm wondering if we need someone else. I am truly afraid that his life is in danger if we don't get some help.
07-20-2015 11:41 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
player Offline

Advisory Members

Posts: 412
Joined: Feb 2015

Machine: Resmed A10 Autoset For Her
Mask Type: Nasal pillows
Mask Make & Model: Resmed A10
Humidifier: Resmed A10 Autosset
CPAP Pressure: 11-16
CPAP Software: SleepyHead

Other Comments: It's a... mad world...

Sex: Male
Location: Canada

Post: #4
RE: Almost divorced over CPAP
He should join this forum. The medical route for practical advice is not always the best... Here you get hundreds of eyes on your questions that are actual users and sufferers...

Is he a mouth breather? What model mask is he using? Which masks has he tried? Does he have a heated hose? What machine?

He needs to get proactive. Install sleepyhead and start learning what's happening... and take action to correct things to get under 5 events per hour.
07-20-2015 11:52 AM
Find all posts by this user Post Reply Quote this message in a reply
me50 Offline

Advisory Members

Posts: 2,559
Joined: Aug 2013

Machine: resmed S9 VPAP Auto
Mask Type: Nasal mask
Mask Make & Model: Wisp and Silicone Head gear
Humidifier: resmed H5i
CPAP Pressure: 18/8
CPAP Software: SleepyHead

Other Comments:

Sex: Undisclosed
Location: USA

Post: #5
RE: Almost divorced over CPAP
(07-20-2015 11:41 AM)SassySW Wrote:  I am truly afraid that his life is in danger if we don't get some help.

have you asked him what he feels like when he has the need to pull the mask off? maybe his pressure is set wrong. I bet he also could use a newer machine that has been improved on if he is using a 7 year old machine.
07-20-2015 12:15 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
me50 Offline

Advisory Members

Posts: 2,559
Joined: Aug 2013

Machine: resmed S9 VPAP Auto
Mask Type: Nasal mask
Mask Make & Model: Wisp and Silicone Head gear
Humidifier: resmed H5i
CPAP Pressure: 18/8
CPAP Software: SleepyHead

Other Comments:

Sex: Undisclosed
Location: USA

Post: #6
RE: Almost divorced over CPAP
There is a chance that his machine isn't data capable if it is approximately 7 years old
07-20-2015 12:16 PM
Find all posts by this user Post Reply Quote this message in a reply
jaypeebee63 Offline

New Members

Posts: 3
Joined: Jul 2015

Machine: ResMed AirSense 10 AutoSet
Mask Type: Other
Mask Make & Model: Oracle 452
Humidifier: Built in
CPAP Pressure: 4-15
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: The good ol' USA

Post: #7
RE: Almost divorced over CPAP
(07-20-2015 11:52 AM)player Wrote:  He should join this forum. The medical route for practical advice is not always the best... Here you get hundreds of eyes on your questions that are actual users and sufferers...

Is he a mouth breather? What model mask is he using? Which masks has he tried? Does he have a heated hose? What machine?

He needs to get proactive. Install sleepyhead and start learning what's happening... and take action to correct things to get under 5 events per hour.

Sound advice, if I may say so. Okay
07-20-2015 02:52 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
JWR Offline

Monitors

Posts: 455
Joined: Sep 2013

Machine: DreamStation DSX700 , PR 760 bipap auto
Mask Type: Nasal mask
Mask Make & Model: Resmed mirage FX
Humidifier: DreamStation DSXH , system one
CPAP Pressure: min EPAP = 17.5max IPAP = 21
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: .

Post: #8
RE: Almost divorced over CPAP
Hi and welcome to Apnea board Hi
If you could get your hubby to come aboard here we might be able to help with suggestions that could help, also would be helpful if you could enter in the profile data as to which machine, mask, if using a humidifier and pressure. This would give us a starting point. Don't Give Up! Something as simple as pressure too low and giving him the feeling of being suffocated will make the mask come off in a hurry. Mask leaks in the eyes will do it too. List can go on. If you can get him to hang out and ask questions and explain what he feels is happening might help.. Trust me someone has or is still going through the same problem here.

07-20-2015 04:14 PM
Find all posts by this user Post Reply Quote this message in a reply
SassySW Offline

Members

Posts: 4
Joined: Jul 2015

Machine: Phillips Respironics
Mask Type: Full face mask
Mask Make & Model: Remstar Plus
Humidifier: C2
CPAP Pressure: 9.0 cmH2O
CPAP Software: ResScan

Other Comments:

Sex: Male
Location:

Post: #9
RE: Almost divorced over CPAP
(07-20-2015 12:15 PM)me50 Wrote:  
(07-20-2015 11:41 AM)SassySW Wrote:  I am truly afraid that his life is in danger if we don't get some help.

have you asked him what he feels like when he has the need to pull the mask off? maybe his pressure is set wrong. I bet he also could use a newer machine that has been improved on if he is using a 7 year old machine.


(07-20-2015 04:18 PM)SassySW Wrote:  
(07-20-2015 12:15 PM)me50 Wrote:  
(07-20-2015 11:41 AM)SassySW Wrote:  I am truly afraid that his life is in danger if we don't get some help.

have you asked him what he feels like when he has the need to pull the mask off? maybe his pressure is set wrong. I bet he also could use a newer machine that has been improved on if he is using a 7 year old machine.
Hi, thanks for the reply. I updated his settings in my profile. We are on the second machine and this one is about two years old I think. I will definitely ask about how he feels before he takes it off. Could there be a chance this is a Central apnea instead of or in addition to an obstructive one?
(This post was last modified: 07-20-2015 04:20 PM by SassySW.)
07-20-2015 04:18 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
JWR Offline

Monitors

Posts: 455
Joined: Sep 2013

Machine: DreamStation DSX700 , PR 760 bipap auto
Mask Type: Nasal mask
Mask Make & Model: Resmed mirage FX
Humidifier: DreamStation DSXH , system one
CPAP Pressure: min EPAP = 17.5max IPAP = 21
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: .

Post: #10
RE: Almost divorced over CPAP
Quote: I will definitely ask about how he feels before he takes it off. Could there be a chance this is a Central apnea instead of or in addition to an obstructive one?




Thank you for updating the profile, just need a little more info Respironics is the brand name. Is it possible to get the model # from underneath the unit . First remove the water tub in the humidifier. # will be like 550, 560, ect. If we know the model we can tell you if the machine is a Data capable one or not. If it is you can download the Sleepyhead program. By reading the sd card (depending on machine model) the data will show what is going on and could show central events if that is whats going on .

(This post was last modified: 07-20-2015 05:12 PM by JWR.)
07-20-2015 05:00 PM
Find all posts by this user Post Reply Quote this message in a reply
Post Reply 


Forum Jump:

Who's Online (Complete List)