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Any advice before my appointment?
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jessamnda Offline

Members

Posts: 19
Joined: Jul 2016

Machine: Resmed AirSense 10 Auto
Mask Type: Nasal mask
Mask Make & Model: Mirage FX
Humidifier: ?
CPAP Pressure: 4-20
CPAP Software: Not using software

Other Comments:

Sex: Male
Location: Orange County, CA

Post: #1
Any advice before my appointment?
Hey guys, new to the forum. Here's my story:

So I had a sleep study done about 8 or 9 years ago. Tried a cpap and I couldn't get used to it. I felt as though air was being forced through my nose as I was trying to exhale, making me feel like I was getting the wind knocked out of me(even though it was getting knocked IN to me). I could not adjust. So I went on a crash diet and lost 30 lbs real quick and stopped snoring and stopped apnea'ing(sp), from what I could tell.

The weight is back but I've done fine stomach sleeping. I got sick a couple months ago(swollen throat) and the apnea came back with a vengeance. Even though I'm well now, it has been kicking my butt no matter what position I sleep. I fell asleep in my bosses office as he was talking to me! I fall asleep standing up, while I'm texting, typing, on hold on the phone. It's insane.

Did a sleep study the other night, came back as a 107 AHI.

I'm in the process of being setup to get my cpap. I asked for a bpap considering my previous issues and they told me I would have to do another sleep study, showing them the cpap wouldn't work for them to move me to a cpap.

So, any advice before I go into my appointment to be "fitted"?

Thanks!
07-08-2016 02:16 PM
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KSMatthew Online

Advisory Members

Posts: 180
Joined: Jul 2016

Machine: PR DreamStation Auto
Mask Type: Nasal pillows
Mask Make & Model: ResMed Swift FX
Humidifier: none
CPAP Pressure: 7
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Kansas, United States

Post: #2
RE: Any advice before my appointment?
Sounds like the choice of machines is being insurance driven? Maybe ask about paying the difference out of pocket, or ask your doc to modify the prescription. The supplier is only able to give you what was prescribed, at the best cost.
07-08-2016 02:59 PM
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Mosquitobait Offline

Advisory Members

Posts: 746
Joined: Apr 2015

Machine: Resmed AirSense 10 For Her
Mask Type: Nasal pillows
Mask Make & Model: Airfit P10
Humidifier: integrated, Climate line tube
CPAP Pressure: 9-12
CPAP Software: ResScan SleepyHead

Other Comments: RLS and Bradycardia

Sex: Female
Location: Minneapolis

Post: #3
RE: Any advice before my appointment?
First, make sure that you get a top-of-the-line machine. You want one that gives you ALL the data, not just some of it. These machines also allow you to have less pressure for breathing out - up to 3 cm less which very much improves the comfort.

My recommendation for machine is an S9 Auto, an Airsense Auto, a Respironics Auto (either the 560 series or the new DreamStation). I would insist on an auto machine even if you are not going to be using auto to start off with. The auto machines give the most data to perfect your therapy and they do have the option of cpap (straight pressure) or auto (multiple pressures). Since you will have this machine at least 5 years, you want what is going to be the most flexible, especially since therapy didn't work for you before.

I also recommend asking for a heated hose - the power supplies are different. If you later wanted a heated hose, you would have to pay out of pocket for that power supply.

Lots of info to read, but when you are dead tired, it's hard to go through it all.
07-08-2016 03:29 PM
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trish6hundred Offline

Advisory Members

Posts: 6,450
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #4
RE: Any advice before my appointment?
Hi jessamnda,
WELCOME! to the forum.!
I wish you much success on your second time around with CPAP therapy and good luck at your fitting.

trish6hundred
07-08-2016 09:29 PM
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richb Offline

Advisory Members

Posts: 537
Joined: Jun 2015

Machine: Resmed AirCurve 10 ASV
Mask Type: Nasal mask
Mask Make & Model: ResMed Mirage FX
Humidifier: Built in
CPAP Pressure: Epap 6 Ipap 8 Auto ASV
CPAP Software: ResScan SleepyHead

Other Comments: Idiopathic Central Apnea

Sex: Male
Location: Vermont

Post: #5
RE: Any advice before my appointment?
Hi jessamnda,

Another "Welcome to the Forum" . Mosquitobait has some very good advice about getting the best machine to start with. I have had 3 machines and 5 sleep studies before getting it right. Using an "Auto" and Data Capable machine will allow for more adjustment ability to help fine tune your therapy. You will want to read your data using Sleepyhead Software. Or, at least be able to post snippets of your results to get very helpful advice from this Forum. Getting the right mask is at least half the battle. If the first one isn't right keep trying.

Rich

Apnea Board Member RobySue has posted a Beginners Guide to Sleepyhead Software here: http://www.apneaboard.com/wiki/index.php...SleepyHead
07-09-2016 08:29 AM
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OpalRose Offline

Monitors

Posts: 3,181
Joined: Nov 2014

Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #6
RE: Any advice before my appointment?
hi jessamnda,
Welcome to Apnea Board,
All I can suggest right now is to educate yourself as to the newest machines available.
Don't let a DME or supplier give you what we call a "brick"...a machine that produces little or no data.
And defiinetly ask your doctor to write a prescription for a fully data capable APAP. Here is a link to guide you in
your decision.

http://www.apneaboard.com/wiki/index.php...ne_Choices

OpalRose
07-09-2016 08:40 AM
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justMongo Offline

Monitors

Posts: 3,853
Joined: Sep 2013

Machine: ResMed VPAP Auto (S9)
Mask Type: Full face mask
Mask Make & Model: ResMed Mirage Quattro
Humidifier: ResMed H5i
CPAP Pressure: 18 IPAPmax - 11 EPAPmin, PS=5
CPAP Software: Other Software

Other Comments: μολὼν λαβέ

Sex: Male
Location: Калифорния

Post: #7
RE: Any advice before my appointment?
Best advice before picking up a machine:

"You never have more power than just before you take the machine." -- Mongo 2016

Translation: It's sort of like haggling when buying a car. You have to show them your willing to go elsewhere to get a machine.
An MD will have written a prescription. Get a paper copy of it and your sleep test (polysomnography) before you haggle over machines.

Oh, and stop eating the clam chowder at the Crab Cooker... that will put weight on you. Cool

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
(This post was last modified: 07-09-2016 09:06 AM by justMongo.)
07-09-2016 09:05 AM
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NorthernGuy Offline

Preferred Members

Posts: 49
Joined: May 2016

Machine: Philips Dreamstation Auto CPAP
Mask Type: Full face mask
Mask Make & Model: F&S Full face
Humidifier: Dreamstation integrated
CPAP Pressure: 8-14
CPAP Software: SleepyHead

Other Comments: New (couple months) APAP user.

Sex: Male
Location: New York State, USA

Post: #8
RE: Any advice before my appointment?
I second (or third) the idea of requesting a machine that has full data capabilities and 'Auto'. There is an enormous amount of helpful information stored every night on those type of machines. The Auto machines can always be programmed (sometimes remotely) as a standard CPAP, but not vice-versa. I also recommend that you get the humidifier option unless you live where it is extremely humid, year-round. Turning the heat on in the winter drops the indoor humidity to desert levels and the machines are blowing a lot (excess amounts) of this dry air directly into the mask (and maybe out the mask vents in some cases).
07-09-2016 09:39 AM
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jessamnda Offline

Members

Posts: 19
Joined: Jul 2016

Machine: Resmed AirSense 10 Auto
Mask Type: Nasal mask
Mask Make & Model: Mirage FX
Humidifier: ?
CPAP Pressure: 4-20
CPAP Software: Not using software

Other Comments:

Sex: Male
Location: Orange County, CA

Post: #9
RE: Any advice before my appointment?
Thanks for all the replies!

I mis-typed in my original post, it should have read:

I'm in the process of being setup to get my cpap. I asked for a bpap considering my previous issues and they told me I would have to do another sleep study, showing them the cpap wouldn't work for them to move me to a bpap.

I have a feeling they'll try to dump a "brick" on me first round so I'll be sure to negotiate.

I'm really hoping this works out, they basically said if the cpap doesn't work that the wait for a sleep study to move on to a bpap is several months wait. Maybe they'll have something like Mosquitobait mentioned that eases up the pressure on exhale.

I'm pretty stressed and feeling a bit rushed. What prompted this was my wife recording me sleeping, freaked me the f out since it looks like I'm gonna die every couple minutes. I dread going to bed every night now.

Thanks for all the info...thanks for the link, OpalRose. I'll report back after I meet with the provider.
(This post was last modified: 07-09-2016 12:18 PM by jessamnda.)
07-09-2016 12:17 PM
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kwhenrykerr Online
Wiki Editor
Advisory Members

Posts: 245
Joined: May 2016

Machine: DreamStation Auto, AirSense 10 Auto
Mask Type: Full face mask
Mask Make & Model: Amara View
Humidifier: Philips, AirSense 10
CPAP Pressure: 12-20
CPAP Software: SleepyHead

Other Comments: 2L added oxygen with CMS50F to check usage

Sex: Male
Location: Florida

Post: #10
RE: Any advice before my appointment?
Give her a big hug. My wife would have told me I was fine and raised my life insurance pay out. Dielaughing

Just my personal opinion. My posts are not medical advice or a statement of fact. Please consult a qualified physician or other qualified medical personnel. Please comply with all applicable laws, codes, regulations, and protocols.
07-09-2016 07:29 PM
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