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Are You Monitored By A Sleep Dr?
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trish6hundred Offline

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Machine: Resmed S9 AutoSet for Her
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Sex: Female
Location: Missouri, USA

Post: #11
RE: Are You Monitored By A Sleep Dr?
Hi Spy Car,
WELCOME! to the forum.!
I just see a nurse-Practicianer once a year and I do mention my CPAP treatment, and she will ask how I am doing with it and I say fine, and that's about it.
I wish you good luck with your CPAP therapy, hang in there for more responses to your post.

trish6hundred
09-09-2016 08:47 PM
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Ghost1958 Offline

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Machine: PRS1 Series Sixty Auto Aflex
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Other Comments: Moderate to Severe SA Obstructive. Rapid O2 desat off the machine.

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Location: KY

Post: #12
RE: Are You Monitored By A Sleep Dr?
I never met my original prescribing doc.
I met once at 30 days with a pulmonoligist, for compliance, at 90 with my primary care nurse for the last face to face.
Now if i need anything that needs a rx she writes it, no questions asked. She does my annual recert.
Great gal who knows next to nothing about cpap, but knows I do.
My machine doesnt call anyone. And if my next one has that capability it soon wont.
(This post was last modified: 09-09-2016 08:51 PM by Ghost1958.)
09-09-2016 08:49 PM
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PaulaO2 Offline
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Post: #13
RE: Are You Monitored By A Sleep Dr?
I saw the sleep doc before the sleep test.
I saw him 3 months after the sleep test.
I saw him 3 or 4 yrs later after a blood pressure scare and the cardiologist wondered if the sleep apnea could be related.
I've not seen him since.

He does not believe in auto-titrating machines.
Even after the blood pressure scare, he does not think I should have a data-capable machine. Had I had one, I could have prevented the scare, the stress tests, the heart cath, and the other tests I endured while we tried numerous medications in an effort to prevent a stroke.

My GP doesn't know much about sleep apnea (except the dangers of it going untreated) or CPAPs. But she knows patient empowerment is a good thing. She writes all my scripts now for sleep apnea related stuff. Unless Medicare or Medicaid insists I go to a sleep doc, I'm happy the way it is now.

PaulaO2
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09-10-2016 09:38 AM
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old82 Offline

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Post: #14
RE: Are You Monitored By A Sleep Dr?
(09-10-2016 09:38 AM)PaulaO2 Wrote:  I saw the sleep doc before the sleep test.
I saw him 3 months after the sleep test.
I saw him 3 or 4 yrs later after a blood pressure scare and the cardiologist wondered if the sleep apnea could be related.
I've not seen him since.

He does not believe in auto-titrating machines.
Even after the blood pressure scare, he does not think I should have a data-capable machine. Had I had one, I could have prevented the scare, the stress tests, the heart cath, and the other tests I endured while we tried numerous medications in an effort to prevent a stroke.

My GP doesn't know much about sleep apnea (except the dangers of it going untreated) or CPAPs. But she knows patient empowerment is a good thing. She writes all my scripts now for sleep apnea related stuff. Unless Medicare or Medicaid insists I go to a sleep doc, I'm happy the way it is now.

---------------------------------------------------------------
Paula
From reading yours and other's remarks about not having to see a sleep doctor I have my question answered regarding that.

But what can you share about this "annual compliance report" that SOMEONE has to write if a sleep doctor is not on your appointment schedule. Does Medicare request this report from your GP doctor? Is it requested from the DME? Do GP's who are treating you know they are required to write this annual report? If I stop seeing my "sleep doctor" do I have to alert my GP that it's now his responsibility to write a annual report? How does it all work and what is my responsibility to see that the requirement is met for continued Medicare coverage?
Thanks
old82
09-10-2016 10:18 AM
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SaldusMiegas Offline

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Post: #15
RE: Are You Monitored By A Sleep Dr?
(09-09-2016 06:09 PM)Spy Car Wrote:  I sort of wish I had an expert looking at my data (not that I'm a severe case).

Bill

Hi Bill,

Your're in luck. I know a guy who knows a guy...

Welcome to the apneaboard forum.

We're not doctors (not all guys either) but here you will find experts who are fellow apnea sufferers with deep personal insights into what sleep apnea patients struggle with and the data the machine captures.

And they are happy to provide helpful advice on issues you are dealing with, analysis of what the sleepyhead data is telling you, and suggestions for tweaks you might make to improve the effectiveness of your therapy

Feel free to share any apnea-related issues you are wrestling with, post your sleepyhead data, and ask lots of questions.

Chances are someone here knows the answers and will provide helpful info, encouragement, and non-medical advice in this online community of patients helping one another.

The best thing you can do is be proactive with your therapy, and you are already on a good path.

Saldus Miegas
09-10-2016 10:44 AM
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Mosquitobait Offline

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CPAP Software: ResScan SleepyHead

Other Comments: RLS and Bradycardia

Sex: Female
Location: Minneapolis

Post: #16
RE: Are You Monitored By A Sleep Dr?
I would guess that you are with Kaiser and the person misspoke (sp?). While you probably could go two years, CA also requires prescriptions for CPAP supplies, so I would guess they would just send you a reminder notice when they NEED to see you with the understanding that if you are having problems that you will call them. Most people see a PA or NP unless there are complications after an initial visit at many sleep clinics.

I saw the sleep doctor at my initial visit, but not at subsequent visits. However, the doctor/owner of the sleep clinic reviews my data beyond compliance. She actually appreciated the Sleepyhead data that showed the entire year and the pattern of broken sleep. She wants another printout in two months to see what the med is doing as well as weekly oximeter readings (since I have it). I am not the first person to present Sleepyhead data, I guess.
(This post was last modified: 09-10-2016 11:50 AM by Mosquitobait.)
09-10-2016 11:42 AM
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PaytonA Offline
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Post: #17
RE: Are You Monitored By A Sleep Dr?
I did not see a sleep doctor for the first 3 years that I was on CPAP. My PCP arranged for the sleep test and wrote the prescription for my equipment. My new PCP (the old one retired) referred me to a sleep doc concerning mask leakage problems. At the end of my initial visit with the sleep doc he told me that my only problem was my DME, Apria.

He sent me to a different DME and that is when I got a mask that fixed my leak problems. I have since been forced back to Apria and since I have been on this forum I have not needed any advice from Apria's RTs anyway. I will say that it sure seems that Apria knows how to work (game?) the system.

PaytonA
09-10-2016 12:18 PM
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Rcgop Offline

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Post: #18
RE: Are You Monitored By A Sleep Dr?
(09-10-2016 12:18 PM)PaytonA Wrote:  At the end of my initial visit with the sleep doc he told me that my only problem was my DME, Apria.

I have not had any problems with Apria. However, I do not look to them for any advice either. I treat them like any other store I deal with and feel I have choices. There are insurance issues and I hear a lot about compliance but I think all are achievable.

Information is power and this sight is full of information and power.

Use it to the fullest and take charge of your life, your entire life.

HuhDont-knowI am an accountant so any advice given here is not medical. If I give any financial advice, you can take it to the bank. However, you will have a hard time cashing it in. Okay
09-10-2016 03:13 PM
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pupcamper Online

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Other Comments: Lung cancer survivor since 11/2004; CPAP since 11/2015

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Post: #19
RE: Are You Monitored By A Sleep Dr?
My sleep doctor handles all compliance visits. He has several techs who are all on cpap and are very knowledgeable that I use for everything else. They seem to know more than the doctor on the day to day cpap experience.

"....respiration,—a troublesome practice, but one which custom has rendered necessary to our easy existence...." Oliver Twist, Charles Dickens- 1837

I use FlashPAP to load data from a FlashAir III wifi sd card in my machine to my computer and display it with SleepyHead .
robysue's Beginner's Guide to SleepyHead
09-10-2016 04:05 PM
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Spy Car Online

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Post: #20
RE: Are You Monitored By A Sleep Dr?
(09-09-2016 08:47 PM)trish6hundred Wrote:  Hi Spy Car,
WELCOME! to the forum.!
I just see a nurse-Practicianer once a year and I do mention my CPAP treatment, and she will ask how I am doing with it and I say fine, and that's about it.
I wish you good luck with your CPAP therapy, hang in there for more responses to your post.

Thanks for the welcome!

(09-10-2016 10:44 AM)SaldusMiegas Wrote:  Hi Bill,

Your're in luck. I know a guy who knows a guy...

Welcome to the apneaboard forum.

We're not doctors (not all guys either) but here you will find experts who are fellow apnea sufferers with deep personal insights into what sleep apnea patients struggle with and the data the machine captures.

And they are happy to provide helpful advice on issues you are dealing with, analysis of what the sleepyhead data is telling you, and suggestions for tweaks you might make to improve the effectiveness of your therapy

Feel free to share any apnea-related issues you are wrestling with, post your sleepyhead data, and ask lots of questions.

Chances are someone here knows the answers and will provide helpful info, encouragement, and non-medical advice in this online community of patients helping one another.

The best thing you can do is be proactive with your therapy, and you are already on a good path.

Saldus Miegas

This seems like an amazing resource. I figure as long as I'm using a machine, and it is possible to data mine, and there is a supportive community that's willing to share their expertise, I might as well empower myself with knowledge.

I've got a lot to learn.

Bill
09-10-2016 04:56 PM
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