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Back to CPAP -- and some questions at the bottom
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skookum Offline

New Members

Posts: 1
Joined: Feb 2016

Machine: Respironics REMStar Pro M
Mask Type: Full face mask
Mask Make & Model: ResMed Quattro FX
Humidifier: Respironics
CPAP Pressure: 10.0cm
CPAP Software: Not using software

Other Comments:

Sex: Male
Location:

Post: #1
Back to CPAP -- and some questions at the bottom
After a few years struggling with an oral appliance to treat my OSA, I'm done. My front teeth are crowding and I've have bite alignment issues now as the appliance has pulled my jaw forward over time.

I was a member here (I think--but I don't remember my screen name) way back when, which is what got me started. I really struggled at first with having to use CPAP, I was in my mid 20's, and you guys helped me to see that it's no big deal (it is--but there's a lot of comraderie/support out there).

For background purposes I'm 33, 6'4 and about 250...not a small guy, active, but not gym-fit. My whole genetic line has thick necks, apnea, our nasal passages came from Pugs, I think). I was a former CPAP user for 2 years until 2011 when I gave up trying to find a mask that fit well (air leaks, facial sores, etc) and also for the freedom of not having to strap a "gas mask" to my face in bed (although, for some, that kind of thing is exciting in the bedroom? lol).

So, on Friday, 2 days ago, I called my sleep doc to see about getting back on CPAP. He's booked out until late April (Thanks, Obama -- No, really, I suspect his popularity is up partly due to the increased number of insured patients now seeking treatment for apnea, this is a VERY good thing). It had been too long since my last visit so he was unwilling to re-up my CPAP prescription over the phone. Understandable.

So, I pulled my old machine out of the closet (Respironics REMstar Pro M, circa 2008). I called a local DME and took an absolute chance on a mask after reading a few reviews-- the Resmed Quattro Fx. Cost me ~$160 out of pocket, ouch, but didn't have a prescription, so I bought the mask frame and head gear separately to side-step that requirement. I'll see if my insurance will reimburse me for the mask later.

Got home, cleaned everything up (still works!), test-fit the new mask, and finished out the rest of my day until bedtime. I went down around 10pm after a few yanks and pulls on the headgear to combat a few leaks. 10.0cm pressure is the current pressure on the machine. Didn't notice any air leaks or discomfort (I was out cold).

I was up the next morning at 6am. Best night of sleep in years....I had energy, I felt like my batteries were fully charged. NO marks on my face from the mask. (Seriously...f*** DME's...going my own way and choosing a mask I thought looked cool and might fit well did me better than 2 years fighting with DME's that were only giving me 2-3 different mask choices to choose from).

---

So...am I missing anything?

Anything I should be careful about?
I'm kinda going off the books and doing my own thing until I can be seen.

I've got an appointment on the books for April to see my Doc, but didn't want to struggle another ~2 months.

I'm hoping to keep my old CPAP machine cobbled together until I can get a new prescription. The blower hours are only ~2,000, but the thing is cumbersome and I have a lot of trips I want to take this year, so a smaller form factor would be GREAT.

If I get a new machine, I know it's illegal to SELL my old one. But can I give it away? Are there organizations that take them as donations--that will GIVE them to someone who needs one (prescribed to have one, but maybe can't afford one?).

Not sure if he'll require a new sleep study. But my compliance data is being recorded on a smart card, which I'll give to him, and hopefully that will show good data. I recently did an at-home ApneaLink sleep test with the oral appliance and that's where I got my last AHI reading of 15. That's about the lowest I've been able to get it. Completely untreated I'm around 25, probably more now. On CPAP, my AHI was next to zero, or whatever the doc said--it's a very effective treatment aside from previous compliance issues. That's what caused me to go back to it.
(This post was last modified: 02-07-2016 11:59 AM by skookum.)
02-07-2016 11:51 AM
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DariaVader Offline
Apnea Board Facebook Editor
Monitors

Posts: 1,824
Joined: Nov 2014

Machine: Resmed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Airfit P10 for Her
Humidifier: H5i humidifier with ClimateLine heated hose
CPAP Pressure: 8-15
CPAP Software: SleepyHead

Other Comments: diabetes II, Thyroidectomized, Primary Immune Deficiency, and the list goes on :P

Sex: Female
Location: Oregon

Post: #2
RE: Back to CPAP -- and some questions at the bottom
ASAA accepts donations of machines, but I think they want newer models...

http://www.sleepapnea.org/resources/cpap...chine.html Wrote:We accept the following machines from non-smoking households with up to 6,000 hours use (approximately 3 years use):

CPAP
AutoCPAP
BiLevel *We do not accept ASV devices
We are in need of the following specific brands and models:

ResMed – S9 or S10 models with integrated humidifier
Philips Respironics – System One or DreamStation with integrated humidifier
Fisher & Paykel Healthcare - Icon models

Supplier #30 offers Rx and testing services and will bill insurance - if you feel inclined to DIY but i would check with them first re: Insurance, because if you have in/out of network differences, they are likely to be out.

with respect to the mask Big Grin awesome that you found one that works right away.... don't be too fast to blame the DME for your former failure, though - things have come a long way in a decade.

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
Tongue Suck Technique for prevention of mouth breathing:
  • Place your tongue behind your front teeth on the roof of your mouth
  • let your tongue fill the space between the upper molars
  • gently suck to form a light vacuum
Practising during the day can help you to keep it at night

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
02-07-2016 12:02 PM
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DariaVader Offline
Apnea Board Facebook Editor
Monitors

Posts: 1,824
Joined: Nov 2014

Machine: Resmed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Airfit P10 for Her
Humidifier: H5i humidifier with ClimateLine heated hose
CPAP Pressure: 8-15
CPAP Software: SleepyHead

Other Comments: diabetes II, Thyroidectomized, Primary Immune Deficiency, and the list goes on :P

Sex: Female
Location: Oregon

Post: #3
RE: Back to CPAP -- and some questions at the bottom
oh, and when you get to the point of selecting a machine, whether you buy out of pocket or go insurance/dme route, Archangle's wiki article is indispensable

http://www.apneaboard.com/wiki/index.php...ne_Choices

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
Tongue Suck Technique for prevention of mouth breathing:
  • Place your tongue behind your front teeth on the roof of your mouth
  • let your tongue fill the space between the upper molars
  • gently suck to form a light vacuum
Practising during the day can help you to keep it at night

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
02-07-2016 12:05 PM
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OpalRose Offline

Monitors

Posts: 3,180
Joined: Nov 2014

Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #4
RE: Back to CPAP -- and some questions at the bottom
Although you are using an older Cpap, if there is an SD card in the machine. You should be able to download the Sleepyhead software and read some data off the card. I'm not sure exactly what data your machine will show though, mabye someone else here will know.
http://www.sleepfiles.com/SH2/

Glad your getting back on the Cpap wagon. Start looking at some of the different machines available. Here is a link to help sort it out.
http://www.apneaboard.com/wiki/index.php...ne_Choices

OpalRose
02-07-2016 12:09 PM
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partsman Offline

Members

Posts: 11
Joined: Feb 2016

Machine: Respironics Solo Plus LX
Mask Type: Nasal mask
Mask Make & Model: Resmed Mirage Activa LT
Humidifier: none
CPAP Pressure: 12
CPAP Software: Not using software

Other Comments:

Sex: Male
Location: Eugene - Home of the Ducks!

Post: #5
RE: Back to CPAP -- and some questions at the bottom
My 2 cents? If it works, don't mess with it! Sounds like you may start dropping pounds and feeling awesome very soon. I've hauled my old dinosaur all over the place - "too many carryons? Oh no, this bag is medical equipment."

And, if it's illegal to sell your old CPAP, where does Supplier #2 get theirs?
02-07-2016 06:18 PM
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