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CA (cluster?) events not reducing
#61
RE: CA (cluster?) events not reducing
I'm so sorry to hear about your continuing problems, and I wish I had some suggestions to make. Unfortunately, narcolepsy is something I don't know anything about.

It sounds to me as though your best bet is to return to the neurologist. Before you do that, you might want to keep a journal for several weeks detailing your pattern of sleep and wakefulness in detail. If you live with someone who witnesses your pattern, perhaps that person could come with you to the appointment to confirm the accuracy of your journal.
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#62
RE: CA (cluster?) events not reducing
Looking at your blood tests, I would bet your testosterone is well below normal. Fits symptoms and low blood counts (hemoglobine, hematocrit). Might be worth checking on the next test cycle. There are so many potential issues and drugs here that are out of my lane. All I can say is the problems are likely outside of your PAP therapy.
Sleeprider
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#63
RE: CA (cluster?) events not reducing
thanks dormeo & sleeprider for your directions. I will continue the follow ups with the dr for now. good to know that pap therapy is not my concern anymore. i can focus on the mecidinal routes.
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