(08-13-2014, 09:25 AM)surferdude2 Wrote: I agree, it's way too depressing to discuss COPD since in my case (emphysema) there is no cure.
There ya go! Something positive to start us off...
Actually there isn't anything all that depressing about our emphysema any more than any other inconvenience.. Sore gizzards can be the pits! Then take Herb for instance: He's going to miss the starting lineup with the Cowboys because he's got a funky hip, and funkier knees. Peter too! So we don't have it so bad. It could be rabies or something serious.
Besides, the emphysema won't kill you. It'll be the flu you catch from some jerk that "never gets the flu shot because I got one twenty years ago and it made me sick!" that'll kill you. No big thing.
(08-13-2014, 09:25 AM)surferdude2 Wrote: Apnea on the other hand is has cures as well as effective treatments. However those little jewels aren't easily accessed by those who are also affected with some form of COPD. Therein lie the basis for this thread and as hopeless as it may be, I will be willing to discuss it until I turn blue in the face (poor choice, I know).
Well now, you are just a little ray of sunshine, Surfie... Let's work on our attitude a little. First of all, there is nothing "hopeless" on God's green earth, and especially nothing hopeless about treatment for sleep apnea.
Currently I am average 5 or 6 events......... A week....... I have been at zero now for the last 3 days. I feel great! Yeah, I can't run with the big dogs yet, but I can cheer them on... I have fine tuned my therapy over the past few months to the point where there really isn't anything to improve. I've worked with the pressures, the epr settings, the leaks, the mask, and with my sleeping positions and diet. I've lost 10 pounds which is not nearly what I want to lose, but just that much made a decidable difference in my daytime ability to function. I take some of my prescriptions, such as Singulair as I'm supposed to. Others like Combivent I use maybe once a day instead of 4 times a day. I pay attention to what I need to do to keep feeling well.
It's all manageable, and like I said not really a big deal. Every day I see so many people with serious issues. I will not allow my piddly little "severe" emphysema to be a major problem.
But the first and most important thing I needed to do when they handed me my machine was to embrace the possibility that this would be something to make me feel and function better, and not some sort of idiot award for smoking too many years.
(08-13-2014, 09:25 AM)surferdude2 Wrote: I will add something constructive when I think of something but it may take a while...hmm...let's see now..last night I raised my pressure to 11cm of agua and got the first whole hour without any flagged items. That may not seem like much but it's a major milestone for me.
Yes, that is positive. And yes, we do need to sneak up on our sweet spot rather than take a shotgun approach.
(08-13-2014, 09:25 AM)surferdude2 Wrote: I have had to sneak up on the higher pressures since initially I couldn't stand anything over 7.6 and thought I'd suffocate and die if I tried to go as high as my Pulman suggested (that's be 10).
Are you running with your EPR on? If you set your pressure at 10 with your EPR at 3, then your exhale pressure would be a puny little 7 which you have indicated you can handle without feeling you're suffocating. Then you could slide it gently up from there in a few days if it seems needed to control the apneas.
And watch your sleeping position. I find it very very helpful to sleep with my head a little elevated. I am sleeping on my back and my side equally well and I love it.
(08-13-2014, 09:25 AM)surferdude2 Wrote: Now that I'm over that hump things look a little brighter. It reminds me of when I got my first motorcycle and couldn't ride too fast lest the wind hitting me in the face bothered me to no end. In a couple of weeks I was hitting 90 and loving life...well up until that horse fly hit me tween the eyes. There I go getting off topic again.
OK, retirded_Man, errr...retired_guy, your turn.
Gee... can't think of anything to say.......
Ann? Where ya at?