(07-20-2014, 03:20 AM)Katmacd Wrote: I have COPD with air trapping. I have had my machine for 4 months and during that time I haven't been able to get off steroids. Now I have diabetes.
The other night I fell asleep without my CPAP and woke up in less respiratory distress than ever! I am not using it and have been able to start weaning the steroid. Don't need 6 to 10 nebulizer treatments per day just to be able to sit in a chair!
I believe the CPAP was over inflating my lungs. I also started to get pitting edema which is resolving without the CPAP.
My problem is that I woke up with that apnea headache yesterday.
Is there a way to make the CPAP pressure stop so I can fully exhale and then have it sense my inhalation and give me the CPAP at that time?
"Air trapping" is sort of what COPD is all about. I have emphysema. At my appointment last week it was pointed out to me that I have 26 percent of "normal" lung function. But I chug along pretty good, without oxygen and so forth. Because, I feel, I do not allow myself to give into the thing. I focus on breathing exercises to get rid of the trapped air when I'm in trouble, and I stay very committed to using the cpap therapy at night.
There are some interesting studies you can google up. At Mayo, a test was done on critical COPD ICU patients. Normally they were immediately strapped up to oxygen. But in this case they were put on CPAP. The mortality dropped significantly. What exactly does that mean? Well, I don't know, except I think our body is a lot more capable of fixing itself than is often given credit.
About the albuterol thing.... I have learned the worst thing I can do is overuse the nebulizer treatments (no longer allowed in the house). They're great to use when you're in distress once in awhile. But in my case I found that the more I used them, the more times I would end up in distress. That's true of the rescue inhalers as well.
Manage the diabetes, but don't worry too much about it. It probably will go away once you defeat the prednisone. As you no doubt know, lowering prednisone can be very tricky and take considerable time.
I assume with your copd they have you on one of the steroidal inhalers? If not, you certainly should.
Now, as to the CPAP stuff, you certainly want to continue using it. The guys more familiar with your machine can advise you better than I as to what tweaks you can make to get better comfort. Sleeping on your side is a biggie for you.