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[CPAP] CPAP isn't working for me HELP
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Ralph Jensen Offline

New Members

Posts: 1
Joined: Oct 2012

Machine: Respironics SE2010
Mask Type: Full face mask
Mask Make & Model: respironics
Humidifier: unsure
CPAP Pressure: 10
CPAP Software: Not using software

Other Comments:

Sex: Male
Location:

Post: #1
CPAP isn't working for me HELP
I have been trying to use the machine for 5 months. I have never been able to get to sleep with it. I tried the nasal mask, the pillow mask and now the full face. If I try for several hours I take it off and go to sleep. After a few weeks of this I just go down hill as I must get up at 530am for work. I am almost ready to give up any suggestions my specialist said I am slowly killing myself with this condition.
10-22-2012 06:56 PM
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PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,067
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #2
RE: CPAP isn't working for me HELP
Your specialist is right.

What kind of problem are you having? Mask leaks? General uncomfortableness?

My first suggestion for all new users is to sit up with the mask and machine on during the day. This helps to get used to the noise, the pressure, the everything. Wear it while watching television for just an hour or so.

The next suggestion is to research 'sleep hygiene'.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
10-22-2012 07:32 PM
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JJJ Offline

Advisory Members

Posts: 751
Joined: Apr 2012

Machine: ResMed S9 Autoset
Mask Type: Nasal mask
Mask Make & Model: Most recent: Wisp, Pilairo, Mirage Vista
Humidifier: ResMed S9 Autoset
CPAP Pressure: 17-20
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: USA 97217

Post: #3
RE: CPAP isn't working for me HELP
(10-22-2012 06:56 PM)Ralph Jensen Wrote:  I have been trying to use the machine for 5 months. I have never been able to get to sleep with it. I tried the nasal mask, the pillow mask and now the full face. If I try for several hours I take it off and go to sleep. After a few weeks of this I just go down hill as I must get up at 530am for work. I am almost ready to give up any suggestions my specialist said I am slowly killing myself with this condition.

Your specialist is probably correct. The body repairs itself during deep and REM sleep, so if you're not getting proper sleep your body can't do proper maintenance.

A little additional information would help people here give you suggestions:

1) Did you have a sleep study? What were the results? (You are legally and ethically entitled to a copy of the sleep study results.)

2) What makes/models of masks have you tried? Ask anyone here and they will agree that the mask is the hardest part of this to get right. I went through eight masks before I finally found one that I can live with.

I note from your profile information that you are not using software. I am unfamiliar with your machine, but if there is software for it I highly recommend it. Being able to see the results every day makes a big difference. Perhaps someone else here can make further suggestions for viewing the data.
10-22-2012 07:37 PM
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trish6hundred Offline

Advisory Members

Posts: 6,452
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #4
RE: CPAP isn't working for me HELP
Hi Ralph,
First of all, WELCOME! to the forum.!
I'm sorry you are having such a rough time with CPAP therapy but I just encourage you to stick with it. Sometimes it takes many different masks 'till you find the one that works best for you. Just keep trying and don't give up. To get used to your mask, I would doo what PaulaO2 said further back in this thread.
Best of luck to you.

trish6hundred
10-22-2012 08:29 PM
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zonk Offline

Advisory Members

Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #5
RE: CPAP isn't working for me HELP
how did you get this machine .. insurance or out of pockets
the Sleep Easy is an older machine ... some of the newer machines data capable and more comfortable therapy
10-22-2012 08:54 PM
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archangle Offline
Wiki Editor
Advisory Members

Posts: 3,159
Joined: Feb 2012

Machine: ResMed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: ResMed Swift FX
Humidifier: ResMed S9 H5i
CPAP Pressure: 16-20
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments: Happy PAPper

Sex: Undisclosed
Location: USA

Post: #6
RE: CPAP isn't working for me HELP
What specifically bothers you about wearing the mask? Hard to exhale, claustrophobia, etc.?

Get the free SleepyHead software here.
Useful links.
Click here for information on the main alternative to CPAP.
If it's midnight and a DME tells you it's dark outside, go and check it yourself.
10-23-2012 05:55 AM
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zimlich Offline

Preferred Members-2

Posts: 392
Joined: Feb 2012

Machine: Respironics PR System One BiPap Auto SV Advanced
Mask Type: Nasal mask
Mask Make & Model: ResMed gel Nasal Mask
Humidifier: System One
CPAP Pressure: 8-20 ASV, 8 EPAP,PS 12
CPAP Software: Not using software

Other Comments: I use the Quattro FFM when necessary

Sex: Female
Location: Norfolk, VA

Post: #7
RE: CPAP isn't working for me HELP
The questions about anything in particular bothering you will help other forum members help you, so please answer them if you can. Many will disagree but I am all about pharmaceuticals to make our lives better. Would your doctor be willing to prescribe a sleeping pill or sedative, short term for you to be able to relax and sleep? Another remedy is one of the PM pain relievers with benadryl (diphenhydramine). The pain reliever will help with any low level pain you are barely, if even, aware of. The benadryl will help you sleep. You can also take benadry by itself. Benadryl has a long half life so take it early since you get up early, or experiment on a weekend. I think these medicines are safe and help especially in the short term. I routinely take Lunesta. Good luck, Ralph.
Mary
10-23-2012 08:20 AM
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