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[CPAP] Getting my son to use his machine
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AnnainWyoming Offline

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Post: #1
Getting my son to use his machine
Hello. I have just joined this forum on behalf of my teenage son who was diagnosed with obstructive sleep apnea. His recent sleep study indicated that his oxygen level dropped to 76 percent during the test! He has severe depression, high blood pressure, and is generally NOT in a good mood. We have been given a Bipap machine to use, and my son has tried the full face mask, the nasal mask, and the face mask that fits over the nose and mouth. He says he does not like any of them, and that he awakens when he does try to use the mask and it shifts when he moves in his sleep.
With his symptoms, he REALLY NEEDS to give this therapy a try! He is definitely too young to be experiencing any of these symptoms. Could someone, anyone please offer some advise on things to try to make this a success??? I know that once my son grows accustomed to the machine and apparatus, he will definitely begin to feel better.
Please help!
10-23-2012 02:50 PM
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trish6hundred Offline

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Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
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CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #2
RE: Getting my son to use his machine
Hi AnnainWyoming,
WELCOME! to the forum.!
So that your son can get used to the mask and machine, see if he will try wearing his mask and using the machine while watching tv a couple hours during the evening. Hopefully this will help him.
Hang tight for more suggestions and best of luck to you.

trish6hundred
10-23-2012 03:02 PM
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britincanada Offline

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Posts: 81
Joined: Aug 2012

Machine: Respironics BiBpapautoSV Advanced
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Sex: Male
Location: Canada

Post: #3
RE: Getting my son to use his machine
Have a look at the CPAP PRO mask

it might be the answer for him

I am not aloud to put a link to the site

but click on this link its the top one
http://www.google.ca/search?sugexp=chrom...p+pro+mask
10-23-2012 03:02 PM
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ConnCarl Offline

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Posts: 8
Joined: Sep 2012

Machine: ResMed Escape S8
Mask Type: Nasal mask
Mask Make & Model: ResMed Mirage Activa LT
Humidifier: none
CPAP Pressure: 13-15
CPAP Software: Other Software

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Sex: Male
Location: Southern Connecticut

Post: #4
RE: Getting my son to use his machine
Welcome to Apnea Board, Anna!

I went through a similar challenge, since I'm a pretty active sleeper. Every time I moved, the mask would leak.

What worked for me have been various initerations of the Mirage Activa line of masks from ResMed.

There have been many changes to them over the years, but the basic concept remains the same. The masks have both an inner an outer seal, and the space between them is essentially inflated by the CPAP machine.

They offer both full-face and nasal models, but the nasal type ua especially forgiving of movement during therapy.

Good luck and please keep us posted!
10-23-2012 03:46 PM
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PaulaO2 Offline
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Posts: 8,068
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

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Location: western NC, USA

Post: #5
RE: Getting my son to use his machine
The mask is by far the hardest part of all this.

Not two masks in any category is the same. Each is a little different.

Keep working on masks. And like Trish said, have him sit up during the day with it on, to get used to the feel and sensations.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
10-23-2012 03:51 PM
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big_dave Online

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Posts: 411
Joined: Apr 2012

Machine: PR System One DS560
Mask Type: Nasal pillows
Mask Make & Model: F&P Pilairo Q or ResMed Mirage Activa
Humidifier: PR System One
CPAP Pressure: 14 - 20
CPAP Software: SleepyHead

Other Comments: Former ResMed S8 Autoset II user

Sex: Male
Location: Eugene, Oregon

Post: #6
RE: Getting my son to use his machine
He may need to try a different size headgear or an entirely different headgear. If the mask shifts around, it will wake him up. I had to try several different headgear before I found one that worked for me.
10-23-2012 04:15 PM
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Sleepster Offline
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Machine: ResMed AirCurve10 VAuto
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: HumidAir and SlimLine Hose
CPAP Pressure: MaxI 13.6 | MinE 5.2 | PS 4.4
CPAP Software: ResScan SleepyHead

Other Comments: Diagnosed Nov 2011. Conquered aerophagia.

Sex: Male
Location: Houston, Texas

Post: #7
RE: Getting my son to use his machine
(10-23-2012 02:50 PM)AnnainWyoming Wrote:  With his symptoms, he REALLY NEEDS to give this therapy a try!

So, he's a teenager. And he doesn't want to wear his mask.

The first step is to get him a comfortable mask. That's going to be difficult, but persistence is required here. Nasal masks are more comfortable, so that's the route to try as long as he's not leaking air out his mouth. Some people prefer nasal pillows so try that out. It's very normal for anyone to have to try out different masks to get one that fits right. So, at least that part of it is not due to him being a teenager.

The second issue here is trying to get a teenager to be compliant when he doesn't want to be. He probably looks at it as just one more thing that his parents are making him do, and he rebels as all teenagers tend to do. This is by far the more serious issue.

If he suffers from depression he's probably already seeing a therapist? This is something that needs to be discussed during his therapy. If he doesn't comply with this therapy he will live a miserable sleep-deprived life and die early of a heart attack or stroke.

What does he want out of life? What are the things that are important to him? Find a way to connect all of these quality-of-life issues with his disorder. Every goal he has, every thing he wants to acheive in life, will be so much easier for him if gets good sleep. Conversly, without CPAP therapy nothing will go right for him.

Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
10-23-2012 04:26 PM
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JJJ Offline

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Machine: ResMed S9 Autoset
Mask Type: Nasal mask
Mask Make & Model: Most recent: Wisp, Pilairo, Mirage Vista
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CPAP Pressure: 17-20
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Post: #8
RE: Getting my son to use his machine
(10-23-2012 04:26 PM)Sleepster Wrote:  So, he's a teenager. And he doesn't want to wear his mask.

I have been amazed at how many people find me sexually more attractive after starting CPAP therapy.
10-23-2012 08:02 PM
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kitley Offline

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Post: #9
RE: Getting my son to use his machine
Welcome to the Forum. I too am a very active sleeper. One thing that really helped me is to thread the long hose up and through a part of my headboard. Without all the weight from the hose, my mask does not shift as much Remind him that it will get easier, and the rewards will be well worth the struggle. I started with nasal pillows and then switched to the true blue nasal mask....and found heaven. It just worked from the first night I used it. I do still wake up and catch myself checking my mask, but , generally go right back to sleep. I think an active sleeper will just take a bit longer to adapt. But, keep trying and eventually you will find the right mask. I can only imagine what it must be like to be a teenager and facing CPAP. Even for myself, I was quite upset once I was actually diagnosed, though all through the testing I knew I had apnea and thought it was no big deal. Best of luck to you both! Maybe there is a forum specifically for kids....that would be of help, to chat with other young people with the same issues????
10-23-2012 08:06 PM
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PaulaO2 Offline
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Moderators

Posts: 8,068
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #10
RE: Getting my son to use his machine
(10-23-2012 08:02 PM)JJJ Wrote:  
(10-23-2012 04:26 PM)Sleepster Wrote:  So, he's a teenager. And he doesn't want to wear his mask.

I have been amazed at how many people find me sexually more attractive after starting CPAP therapy.

Good one!

But seriously, better sleep equals better mood, less baggy eyes, more smiles.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
10-23-2012 08:26 PM
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