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[CPAP] I'm FRREAKING out!
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SaldusMiegas Offline

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Machine: ResMed AirSense 10 AutoSet
Mask Type: Nasal pillows
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Humidifier: integrated
CPAP Pressure: Rx:14, Set:Auto 8.0-15.0
CPAP Software: ResScan SleepyHead

Other Comments: Woot! P-10 pillows plus Ruby chinstrap for side-sleeping mouth breathers

Sex: Male
Location: Virginia

Post: #11
RE: I'm FRREAKING out!
Hi Lorraine,

Welcome to apneaboard.

Lots of good ideas above.

One thing that might help us focus on what kind of suggestions to offer ... When you freak out with the mask on, what about it is bothering you most?

Some ideas address the discomfort with having a mask on.

Other ideas address the feeling of not getting enough air.

What freaks you out about the mask?

For me I consider the CPAP a big straw thru which I breath in life giving oxygen and restful sleep. I feel so much better with it than without it that I can't imagine sleeping a night without.

All the early experiments with mask type and pressure were just steps to the best nights sleep.

But I was so tired and miserable that I could have slept with a scuba mask and I didn't have any sense of panic about covering my face.

Their are many things which might freak you out, so take whatever ideas are useful to help calm your nerves.

If you can say a few words about what freaks you out I bet someone here can speak directly to it from their personal experience.

Best wishes

Saldus Miegas
09-03-2016 11:56 PM
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Dreams of Green Offline

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Machine: Resmed AirSense 10 AutoSet
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CPAP Pressure: 7 - 13
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Sex: Male
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Post: #12
RE: I'm FRREAKING out!
(09-03-2016 09:48 PM)Ockrocket Wrote:  ...nasal pillows will probably cause you discomfort with the air blowing straight up your nostrils.

I don't think that's fair to say, no one knows what will probably cause her discomfort. Tons of users love nasal pillows and find them liberating and don't feel any discomfort. She needs to find what works (and what's required) for her.
(This post was last modified: 09-04-2016 01:27 AM by Dreams of Green.)
09-04-2016 01:26 AM
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Ockrocket Offline

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Posts: 164
Joined: Jul 2016

Machine: Philips Dreamstation.
Mask Type: Nasal mask
Mask Make & Model: F&P Eson.
Humidifier: Philips Dreamstation.
CPAP Pressure: 7.0
CPAP Software: SleepyHead

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Sex: Male
Location: Windsor (near enough) NSW, Au.

Post: #13
RE: I'm FRREAKING out!
(09-04-2016 01:26 AM)Dreams of Green Wrote:  
(09-03-2016 09:48 PM)Ockrocket Wrote:  ...nasal pillows will probably cause you discomfort with the air blowing straight up your nostrils.

I don't think that's fair to say, no one knows what will probably cause her discomfort. Tons of users love nasal pillows and find them liberating and don't feel any discomfort. She needs to find what works (and what's required) for her.

You may be right.

But I figured a step away from the full mask to the less intimidating nose mask might help.

The air up the nostrils from the nasal pillows is vastly different from the air in a nasal or full face mask, it can be quite uncomfortable compared to the gentle flow from the other style of masks.

I tried the nasal pillows part way through my trial period, but quickly gave up and went back to the nose mask.

Unfortunately it is a difficult process trying to get sorted what is comfortable and works for each individual. Sad

I'm sure Lorraine will get it worked out with all the good advice and information within this group.
Coffee
09-04-2016 07:21 AM
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Lorraine Offline

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Machine: Resmed Air Sense 10
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Sex: Female
Location: United States

Post: #14
RE: I'm FRREAKING out!
Thanks!
Good suggestions from everyone. I've made a couple of adjustments: lowered the pressure by one, raised the humidity by one and I'm doing some relaxation breathing exercises. I'm also reducing my caffeine intake and drinking a cup of passion flower tea (calming) with a few drops of CBD oil about an hour before bed. So far I'm having better luck, but I can't wear it all night. I have a feeling this is going to take a long time. Sad
Lorraine
09-07-2016 06:23 PM
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cate1898 Offline

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Machine: PR System One 560BT Auto
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Other Comments: Began CPAP Therapy Sept. 11, 2015. Hx Hypertension, Post Graves Disease, chronic migraines.

Sex: Female
Location: Southern Ontario//SW Florida

Post: #15
RE: I'm FRREAKING out!
Glad to hear things are slowly getting a bit better. Slow and steady wins the race. Keep at it and as you can see, post any question that you have, and you'll get answers from more experienced users who've walked the walk.

Welcome to the forum, good luck with everything, and keep us posted!

APNEABOARD - A great place to be if you're a hosehead!! Rolleyes

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EVERY ACCOMPLISHMENT BEGINS WITH THE DECISION TO TRY!
09-07-2016 06:59 PM
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Lorraine Offline

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Location: United States

Post: #16
RE: I'm FRREAKING out!
Hi, this is Lorraine -
I've made more changes but am still having some difficulty. I'm hopeful that some of you can give me suggestions.
I've gone back to my nasal pillows which I think will work in the long run for me. Less equipment on my face is making me feel less anxious. The problem is that I sleep with my mouth open but cannot tolerate having the chin strap wrapped around my head. I tried using paper medical tape and taping my mouth shut but half way through the night it gets damp and just comes off.
I need another way to keep my mouth shut - any ideas out there?
09-10-2016 12:14 PM
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rkl122 Offline

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Machine: Philips Respironics System One 560P (Auto, Aflex, 60 Series)
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CPAP Pressure: low 8.5, high 12.5, expting
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Post: #17
RE: I'm FRREAKING out!
(09-10-2016 12:14 PM)Lorraine Wrote:  ..................
I need another way to keep my mouth shut - any ideas out there?
You might try a mouthguard. Some nights, I use a boil and bite guard on my lower teeth, and when I do, seems like I've eliminated the dry mouth I sometimes get, which I assume means I've diminished my open mouth breathing. Also seems like sleeping on my back is better tolerated with the mouthguard.

Just a thought. -Ron

We are such stuff
As dreams are made on, and our little life
Is rounded with a sleep.
09-10-2016 01:09 PM
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Lorraine Offline

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Machine: Resmed Air Sense 10
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Location: United States

Post: #18
RE: I'm FRREAKING out!
Ron,

I thought a mouth guard was for people who grind their teeth or clench their jaw? How does it work to keep my mouth shut? With nose pillows, if I open my mouth at all then the air going into my nose just goes out my mouth. I'm interested to know how this mouth guard works. Thanks!

Lorraine
09-10-2016 02:50 PM
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rkl122 Offline

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Posts: 74
Joined: Apr 2016

Machine: Philips Respironics System One 560P (Auto, Aflex, 60 Series)
Mask Type: Nasal pillows
Mask Make & Model: PR Dreamware Frame Med, Pillow MW
Humidifier: Remstar System One - Hose Unheated
CPAP Pressure: low 8.5, high 12.5, expting
CPAP Software: SleepyHead EncoreBasic

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Sex: Male
Location: NJ

Post: #19
RE: I'm FRREAKING out!
Yes, their prime use is for bruxism. But in the OSA context, the idea is that the guard forces the lower jaw down and forward, thereby countering collapse of the soft tissue at the back of the throat - ie. the airway remains more open more of the time. That in turn decreases the (autonomic) impulse to breath through the mouth. Someone please correct me if I've got that wrong.

Some dentists actually promote such devices as an alternative to xPAP therapy.

Here's a ref. <link to Apnea Mouth Guard Oral Appliance for Sleep Apnea Snoring removed by moderator.>

-Ron

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We are such stuff
As dreams are made on, and our little life
Is rounded with a sleep.
09-10-2016 03:18 PM
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Lorraine Offline

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Posts: 6
Joined: Sep 2016

Machine: Resmed Air Sense 10
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CPAP Pressure: 5.0
CPAP Software: Other Software

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Sex: Female
Location: United States

Post: #20
RE: I'm FRREAKING out!
Thank you.
09-10-2016 09:54 PM
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