Post Reply 
[CPAP] Mask panic after long term use
Author Message
ryan63 Offline

Members

Posts: 5
Joined: Mar 2015

Machine: Resmed s8 escape II
Mask Type: Full face mask
Mask Make & Model: Resmed mirage quattro
Humidifier: Resumed (s8)
CPAP Pressure: 12.4
CPAP Software: Not using software

Other Comments:

Sex: Male
Location: UK

Post: #1
Rainbow Mask panic after long term use
After successful use of CPAP for the last 11 years I have recently become unable to tolerate the treatment.
This began 3 months ago when I had a cold lasting 2 weeks, I have always had to suspend CPAP during a cold. There then followed 5 weeks of insomnia with only 3 or 4 hours broken sleep per night, with minimal use of the CPAP.
As sleep has become easier I started to try the CPAP again with limited success.
The best I have achieved is 3 consecutive nights with 3 then 4 then 5 hrs of CPAP use. That was 2 weeks ago since then I have been unable to cope with the mask due to feelings of panic when trying to get to sleep with the mask on.
I can tolerate the mask if I wear it to watch TV or read but I don't fall asleep, as I would if not wearing the mask.
If I try to fall asleep with the mask on i.e. Switch off the light put down the book etc I begin to feel panic, heart racing, rapid breathing etc and very quickly wrench the mask off. This can take between 5 and 30 minutes to kick in.
I have tried various sleep/relaxation aids, from warm milk, through breathing exercises, kalms sleep, even as far as a large Scotch at bedtime.
Nothing seems to work.
The problem seems to be getting worse as the anxiety of not being able to use the mask is adding to the panic I experience when I try to use the mask.
I would appreciate an help or advice on how to deal with this situation
03-09-2015 09:59 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
justMongo Offline

Monitors

Posts: 3,854
Joined: Sep 2013

Machine: ResMed VPAP Auto (S9)
Mask Type: Full face mask
Mask Make & Model: ResMed Mirage Quattro
Humidifier: ResMed H5i
CPAP Pressure: 18 IPAPmax - 11 EPAPmin, PS=5
CPAP Software: Other Software

Other Comments: μολὼν λαβέ

Sex: Male
Location: Калифорния

Post: #2
RE: Mask panic after long term use
I'm no expert; but I think you need cognitive behavior therapy to get past what seems to be a phobia.
From the description it might even be diagnosed as panic anxiety disorder.

Time to see a professional.

BTW -- Scotch fragments sleep as it is a biphasic drug. (First sedative then a stimulant.)
And avoid benzodaizapines -- it's easy to get hooked in a short time.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
03-09-2015 10:15 PM
Find all posts by this user Post Reply Quote this message in a reply
ryan63 Offline

Members

Posts: 5
Joined: Mar 2015

Machine: Resmed s8 escape II
Mask Type: Full face mask
Mask Make & Model: Resmed mirage quattro
Humidifier: Resumed (s8)
CPAP Pressure: 12.4
CPAP Software: Not using software

Other Comments:

Sex: Male
Location: UK

Post: #3
RE: Mask panic after long term use
Thanks for the reply.
GP appointment booked for tomorrow.
I hope he comes up with something but I'm not going to hold my breath waiting
Or maybe I am.
I'll update with the outcome.
Ryan63
(This post was last modified: 03-09-2015 10:27 PM by ryan63.)
03-09-2015 10:24 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
retired_guy Offline

Preferred Members-2

Posts: 2,744
Joined: Jan 2014

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: ResMed
CPAP Pressure: 10.6/14, EPR 3
CPAP Software: ResScan SleepyHead

Other Comments: Is it bedtime yet?

Sex: Male
Location: Beautiful, albeit very wet Oregon Coast

Post: #4
RE: Mask panic after long term use
Your machine is getting a bit old. So take it to some DME and ask to have it's pressure checked. You might be panicking because you aren't receiving enough air, or maybe too much air, or perhaps the pressure support isn't performing properly.

Also, consider a different style mask, specifically a pillows mask. The nice thing about those is there really isn't anything much on your face to panic about.
03-09-2015 10:28 PM
Find all posts by this user Post Reply Quote this message in a reply
Sleeprider Offline
Wiki Editor
Advisory Members

Posts: 3,390
Joined: Dec 2014

Machine: Resmed Aircurve 10 Vauto
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: Resmed Climateline
CPAP Pressure: Auto Bilevel 18/9, PS 3
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: Where they make Respironics

Post: #5
RE: Mask panic after long term use
Retired_Guy read my mind. You need a new machine, and it would be especially good if you could get some feedback on your therapy. It could be your current machine is doing nothing to help you, and it may be way out of calibration for pressure. You have no idea whether there are benefits to CPAP because your machine doesn't give you useful data. Time to change.

You're using a large heavy full face mask. Have you ever tried anything else? The nightweight nasal pillow masks are a lot nicer if you can avoid mouth breathing.

______________________________________________
Organize your SleepyHead Data
Post your SleepyHead Data from Imgur
Robysue's Beginner's Guide to Sleepyhead
03-10-2015 09:41 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
justMongo Offline

Monitors

Posts: 3,854
Joined: Sep 2013

Machine: ResMed VPAP Auto (S9)
Mask Type: Full face mask
Mask Make & Model: ResMed Mirage Quattro
Humidifier: ResMed H5i
CPAP Pressure: 18 IPAPmax - 11 EPAPmin, PS=5
CPAP Software: Other Software

Other Comments: μολὼν λαβέ

Sex: Male
Location: Калифорния

Post: #6
RE: Mask panic after long term use
The P10 twins... The Mirage Quattro is a great mask.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
03-10-2015 10:23 AM
Find all posts by this user Post Reply Quote this message in a reply
trish6hundred Offline

Advisory Members

Posts: 6,452
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #7
RE: Mask panic after long term use
Hi ryan63,
I'm sorry to hear that you are starting to have mask panic.
If you can swing it, you should get a new machine, as you would be much better served with the newer technology. Just make sure it is a fully data-capable machine.
Good luck to you with getting this straightened out.

trish6hundred
03-10-2015 10:50 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
trailrider Offline

Preferred Members-2

Posts: 304
Joined: Feb 2015

Machine: A10 Autoset for Her
Mask Type: Nasal mask
Mask Make & Model: Eson or P10
Humidifier: autoset
CPAP Pressure: 6-12 DME, 7-13 me
CPAP Software: SleepyHead

Other Comments: engineer. EPR at 3, unheated hose, humidity at 2. Routine hose entanglement.

Sex: Female
Location: Ontario

Post: #8
RE: Mask panic after long term use
I agree that the initial setting may be a bit too low. Lack of adequate air push can cause that unknown source of anxiety. I had it when I got my machine. Once I adjusted it up a notch or two I felt much more relaxed. My own congestion changes with the seasons, so I periodically adjust the machine start pressure until it feels right.
03-10-2015 12:07 PM
Find all posts by this user Post Reply Quote this message in a reply
ryan63 Offline

Members

Posts: 5
Joined: Mar 2015

Machine: Resmed s8 escape II
Mask Type: Full face mask
Mask Make & Model: Resmed mirage quattro
Humidifier: Resumed (s8)
CPAP Pressure: 12.4
CPAP Software: Not using software

Other Comments:

Sex: Male
Location: UK

Post: #9
RE: Mask panic after long term use
I talked this through with my GP today.
He initially offered citolopram but said it could take 3 to 4 weeks for the effect to begin!
He then suggested a 2mg dose of benzodiazepam to control the mask panic and break the cycle of increasing anxiety caused by failure to tolerate the mask.
Only 10 doses were supplied and I must see him again if the problem is not resolved before they are all used.
I have just taken the first dose and will update on results tomorrow.
Thanks for all your advice
Ryan63
Ps I have some highly accurate pressure recording equipment I use for my job, I will use this to check machine pressures.
03-10-2015 09:02 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
ryan63 Offline

Members

Posts: 5
Joined: Mar 2015

Machine: Resmed s8 escape II
Mask Type: Full face mask
Mask Make & Model: Resmed mirage quattro
Humidifier: Resumed (s8)
CPAP Pressure: 12.4
CPAP Software: Not using software

Other Comments:

Sex: Male
Location: UK

Post: #10
RE: Mask panic after long term use
Tried the "benzo" last night, no change to the mask anxiety!
Checked the pressures being delivered by the machine using a calibrated digital micro manometer.
Highest pressure achieved is consistently 1.4cm lower than the set pressure.
The exhale pressure reduction should be 3cm but is only dropping by 1cm.
Going to try a higher set pressure tonight and contact clinic for repair/replace of machine ASAP.
I'm in UK so no cost for this service but choice of machine/mask is limited.
Pros And Cons of National Health Service
03-11-2015 06:16 AM
Find all posts by this user Post Reply Quote this message in a reply
Post Reply 


Possibly Related Threads...
Thread: Author Replies: Views: Last Post
  Long time CPAP user now with a problem PrkChps 5 190 12-07-2016 09:07 PM
Last Post: PrkChps
  Does long term humidifier use affect lungs? Russatrice 11 477 12-06-2016 06:27 PM
Last Post: eseedhouse
  Two Long Weeks EnigmaGrey 20 932 10-12-2016 12:39 PM
Last Post: EnigmaGrey
  How long until changes in blood tests or medications? NorthernGuy 11 773 09-04-2016 07:46 PM
Last Post: Mosquitobait
  How long to show improvement amykathleen2005 6 408 09-04-2016 08:08 AM
Last Post: pupcamper
Question AHI Panic limit JamesW 4 370 08-08-2016 06:45 PM
Last Post: Ghost1958
  Why are hypopneas 10 seconds long? Rcgop 33 1,450 08-03-2016 09:26 AM
Last Post: PaytonA

Forum Jump:

Who's Online (Complete List)