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[CPAP] Need Help with CPAP
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sleepmore Offline

Members

Posts: 7
Joined: Sep 2012

Machine: RemstarPro Plus m series
Mask Type: Nasal pillows
Mask Make & Model:
Humidifier: RemstarPro m series
CPAP Pressure: 8
CPAP Software: Not using software

Other Comments:

Sex: Female
Location:

Post: #1
Need Help with CPAP
3 Questions:
  1. Why can't I INCREASE my pressure above 8? I've downloaded and used all instrustions. It will go DOWN but not UP.
  2. Even though I'm NOT sleeping and having difficulty breathing which is KEEPING me awake trying to breath, the CPAP is NOT RECORDING IT! I'm at best constantly waking gasping for air and It says my APN if 3.7. I've had to just GET UP tokeep breathing. My diagnosis was an APN >30 and when I just lie down it feels like the air shuts off.
  3. Also, I have a humifier and I do put a LITTLE water in it; however, when I ADD any HEAT to make it better, it DUMPS the fluid in my face! It also becomes TOO HOT even at the lowest setting. What can I do about this?

Now, you ask WHY haven't I called the supplier? or gone to the DR?
  • The Supplier just kept upping the bill every month WITHOUT supplying ANYTHING including any help. We separated.
  • I'm on disability and do NOT have the money to Pay more or for the Copays for more testing.
I've been on this for about 3 years and until recently I was doing well so have not even tried to change anything.
PLEASE HELP...any ideas are better than none.
09-27-2012 10:58 AM
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trish6hundred Offline

Advisory Members

Posts: 6,430
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #2
RE: Need Help with CPAP
Hi sleepmore, First of all, WELCOME! to the forum! I'm sorry you are having such a rough time with your CPAP therapy. Hang in there and someone will have suggestions to help you. Best of luck.

trish6hundred
09-27-2012 12:29 PM
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PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,064
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #3
RE: Need Help with CPAP
First, your machine is the Plus. If I remember correctly, the Plus models only record compliance data in terms of hours used.

I am not sure what the APN is. Do you mean AHI?

Take out the memory card, set the machine, but do not put the card back in. Does it retain the settings you made? If it does, then the card is resetting the pressure to what it was prescribed for. In this case, I would bet it is 8.

If the DME was raising the bill without providing a service or product, then that is called insurance fraud. Medicare would love to hear about it.

Water from the hose is called 'rain out'. Is your bedroom cold? If it is, then condensation is forming inside the hose and then it gets thrown into your face. There's a few things to do to fix that. One is to put the machine lower than the surface of the bed. That way the water runs back into the machine. Another is to insulate the hose. You can take several old socks, cut out the toes, and put the hose through it. If your bedroom is really cool (like you use an air conditioner) you can use several layers of socks. You can then hold it in place with string, tape, rubber bands, whatever. They make hose warmers but if money is an issue, home made will work just as well.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
09-27-2012 12:38 PM
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Sleepster Offline
Wiki Editor
Moderators

Posts: 4,988
Joined: Feb 2012

Machine: ResMed AirCurve10 VAuto
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: HumidAir and SlimLine Hose
CPAP Pressure: MaxI 13.6 | MinE 5.2 | PS 4.4
CPAP Software: ResScan SleepyHead

Other Comments: Diagnosed Nov 2011. Conquered aerophagia.

Sex: Male
Location: Houston, Texas

Post: #4
RE: Need Help with CPAP
It sounds like maybe your machine is broken. You should be filling the water reservoir, not putting in just a little bit.

Can you call your insurance company and tell them that you're unhappy with your equipment provider? See if you can switch to a different one.

Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
09-27-2012 12:39 PM
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dcgrafix Offline

Preferred Members-2

Posts: 203
Joined: Sep 2012

Machine: Philips Respironics System One RemStar Pro with C-Flex+ (461CA)
Mask Type: Full face mask
Mask Make & Model: ResMed Mirage Quattro Large
Humidifier: Respironics System one
CPAP Pressure: 8
CPAP Software: SleepyHead EncoreBasic Other Software

Other Comments: Diabetes type 2

Sex: Male
Location: BC Canada

Post: #5
RE: Need Help with CPAP
Hi sleepmore WELCOME! to the forum!
Sounds like you are having a bad time with it.
Being on disability would there be some medical benefits for you I know in Canada it seems being on disability gives you more medical options.

As far as the the fluid in your my face Is your CPAP up higher than your bed?
If so can you put down lower?

I don't think it is normal so there may be other members with more knowledge & experience then me with your model.
Did this just start lately?
09-27-2012 01:07 PM
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sleepmore Offline

Members

Posts: 7
Joined: Sep 2012

Machine: RemstarPro Plus m series
Mask Type: Nasal pillows
Mask Make & Model:
Humidifier: RemstarPro m series
CPAP Pressure: 8
CPAP Software: Not using software

Other Comments:

Sex: Female
Location:

Post: #6
RE: Need Help with CPAP
(09-27-2012 12:38 PM)PaulaO2 Wrote:  First, your machine is the Plus. If I remember correctly, the Plus models only record compliance data in terms of hours used.

I am not sure what the APN is. Do you mean AHI?

Take out the memory card, set the machine, but do not put the card back in. Does it retain the settings you made? If it does, then the card is resetting the pressure to what it was prescribed for. In this case, I would bet it is 8.

If the DME was raising the bill without providing a service or product, then that is called insurance fraud. Medicare would love to hear about it.

Water from the hose is called 'rain out'. Is your bedroom cold? If it is, then condensation is forming inside the hose and then it gets thrown into your face. There's a few things to do to fix that. One is to put the machine lower than the surface of the bed. That way the water runs back into the machine. Another is to insulate the hose. You can take several old socks, cut out the toes, and put the hose through it. If your bedroom is really cool (like you use an air conditioner) you can use several layers of socks. You can then hold it in place with string, tape, rubber bands, whatever. They make hose warmers but if money is an issue, home made will work just as well.
YES!!!!!!...THANK YOU!

Took the Card out & CHANGED it to 8.5

Regarding the DME, I was TOO SICK at the time to track everything. I will have to go back &INVENTORY what happened before I can say too much. There were a couple of questions about them: during the whole time they were "providing for me", even after REPEATED requests for filters, I only got 2-4 paper filters and 2 sponge ones for the whole time. When I requested "nose cusions", instead of sending MY SIZE, they sent a BAG of all different sizes & their charges! That was strange and beyond my ability to respond to at the time.

I WILL be digging out those SOCKS! Yes, my room is always cool or for some reason, I DO have trouble breathing - which doesn't really make sense.

QUESTION: (yes - AHI reads 3.7) Can I RESET this? Is it reporting an AVERAGE todate? I don't see HOW this could be correct for the last 2-3 weeks! Everyday has been getting WORSE. Last night was so BAD that I finally had to just get up and stay up TO BREATH. I felt like I was sufficating.


THANK YOU FOR THIS SITE AND FOR YOUR CORRECT ANSWERS!
09-27-2012 02:18 PM
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sleepmore Offline

Members

Posts: 7
Joined: Sep 2012

Machine: RemstarPro Plus m series
Mask Type: Nasal pillows
Mask Make & Model:
Humidifier: RemstarPro m series
CPAP Pressure: 8
CPAP Software: Not using software

Other Comments:

Sex: Female
Location:

Post: #7
RE: Need Help with CPAP
(09-27-2012 01:07 PM)dcgrafix Wrote:  Hi sleepmore WELCOME! to the forum!
Sounds like you are having a bad time with it.
Being on disability would there be some medical benefits for you I know in Canada it seems being on disability gives you more medical options.

As far as the the fluid in your my face Is your CPAP up higher than your bed?
If so can you put down lower?

I don't think it is normal so there may be other members with more knowledge & experience then me with your model.
Did this just start lately?

Sorry to say: being on Disability - for me at least- means LESS money to do anything with. I am trying to get an ONLINE Job. That WILL help. There are some extra helps for NOT having enough money, but they are NOT anywhere enough to get by on.

The CPAP is DOWN LOW. I will be trying the SOCK EFFECT suggested above - it sounds promising.

Thank you.

09-27-2012 02:26 PM
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PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,064
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #8
RE: Need Help with CPAP
An AHI of less than 5 is your goal. 3.7 is very, very good.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
09-27-2012 04:13 PM
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sleepmore Offline

Members

Posts: 7
Joined: Sep 2012

Machine: RemstarPro Plus m series
Mask Type: Nasal pillows
Mask Make & Model:
Humidifier: RemstarPro m series
CPAP Pressure: 8
CPAP Software: Not using software

Other Comments:

Sex: Female
Location:

Post: #9
RE: Need Help with CPAP
(09-27-2012 04:13 PM)PaulaO2 Wrote:  An AHI of less than 5 is your goal. 3.7 is very, very good.

Yes, it HAS BEEN, until about 2-3 weeks ago. Now, I'm afraid to go to bed; it's gotton so bad!
That's why I didn't sleep, got on computer EARLY this morning desperate for some answer that will help.

DOES THIS CPAP SUMMARIZE the AHI? I do understand why it HAS BEEN great - it was! Then, it changed and I don't know why.

DO you have any ideas WHY it would suddenly change?

Thanks again for ANY IDEAS.


09-27-2012 05:25 PM
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SuperSleeper Offline

Administrators

Posts: 9,961
Joined: Feb 2012

Machine: PR System One REMstar Auto (DS560)
Mask Type: Nasal pillows
Mask Make & Model: ResMed Mirage Swift II
Humidifier: none
CPAP Pressure: 12.5 - 18.5 cmH20 (auto range)
CPAP Software: SleepyHead

Other Comments: Have diabetes Type II

Sex: Male
Location: Illinois, USA

Post: #10
RE: Need Help with CPAP
(09-27-2012 05:25 PM)sleepmore Wrote:  DOES THIS CPAP SUMMARIZE the AHI? I do understand why it HAS BEEN great - it was! Then, it changed and I don't know why.

You list your CPAP machine as:

Machine:
RemstarPro Plus m series


But there are two types of REMstars - the Pro and the Plus. Assuming we're talking about a M series machine, the REMstar Pro is data-capable (shows AHI) while the REMstar Plus isn't data-capable (shows only compliance data - like how many hours you've used the machine each night).

The "plus" part could be the C-flex+ perhaps?

If you can see your AHI, you've got the REMstar Pro version, methinks. Thinking-about

SuperSleeper
Apnea Board Administrator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.

09-27-2012 05:33 PM
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