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[CPAP] New to CPAP and frustrated!
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dpp11 Offline

Members

Posts: 7
Joined: Aug 2013

Machine: Philips Respironics REMstar Auto A-Flex
Mask Type: Full face mask
Mask Make & Model: ResMed Quattro Air
Humidifier: Philips Respironics System One Heated Humidifier
CPAP Pressure: 6 to 12
CPAP Software: SleepyHead

Other Comments:

Sex: Female
Location: New York

Post: #1
Sad New to CPAP and frustrated!
Hi. Tonight is my day 9 and I have yet to sleep more than 3 hours with the mask. By reading your postings I have learned to turn off the humidifier, because I felt like I was suffocating with all that hot air. That has helped. Instead of going to sleep I lay here and wait to get tired enough so I can maybe fall asleep with that mask on. I called the nurse assigned to me about the mask and I'm going to be getting a new mask because the one I have pinches my nostrils and I cannot stand the way that feels. A newer version of the Quattro FX I think. I downloaded the SleepyHead software today and printed out lots of colorful charts on many pages....thanks for the link. I will try to learn what it all means. I'm sorry about complaining. I used to feel like a member of The Walking Dead, but I don't even know what I feel like now. Ten times worse. I am trying to focus on all the encouraging messages I have been reading on this forum. Thank you!
08-15-2013 10:38 PM
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zonk Offline

Advisory Members

Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #2
RE: New to CPAP and frustrated!
Hi there, welcome to the forum
CPAP can be frustrating at the start but once you sort out the problems and find that mask going to work for you ... can be a rewarding experience. This might be of some help ... Tips for new CPAP users
http://www.apneaboard.com/wiki/index.php...CPAP_users
08-15-2013 10:49 PM
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Tez62 Offline

Monitors

Posts: 837
Joined: Feb 2013

Machine: Resmed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: Resmed Mirage Quattro
Humidifier: Resmed
CPAP Pressure: 5-15
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Melbourne, Australia

Post: #3
RE: New to CPAP and frustrated!
dpp11, it's very hard at the start for some people but please try to continue on, it does get better, re the Sleepyhead software, there are youtbe video's or ask questions on here. The masks are the hardest part to get right, you may need to change it a few times till you get the one that suits you. Once you get the mask right, just try to relax and not think about it, you could try some sleep aids either over the counter or prescription for the first month or so until you get used to it. This is a long journey you are on so treat it as a marathon not a sprint, good luck, you will get there eventually.
08-15-2013 10:50 PM
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dpp11 Offline

Members

Posts: 7
Joined: Aug 2013

Machine: Philips Respironics REMstar Auto A-Flex
Mask Type: Full face mask
Mask Make & Model: ResMed Quattro Air
Humidifier: Philips Respironics System One Heated Humidifier
CPAP Pressure: 6 to 12
CPAP Software: SleepyHead

Other Comments:

Sex: Female
Location: New York

Post: #4
RE: New to CPAP and frustrated!
Thank you.
08-15-2013 11:01 PM
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Tez62 Offline

Monitors

Posts: 837
Joined: Feb 2013

Machine: Resmed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: Resmed Mirage Quattro
Humidifier: Resmed
CPAP Pressure: 5-15
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Melbourne, Australia

Post: #5
RE: New to CPAP and frustrated!
(08-15-2013 10:38 PM)dpp11 Wrote:  Hi. Tonight is my day 9 and I have yet to sleep more than 3 hours with the mask. By reading your postings I have learned to turn off the humidifier, because I felt like I was suffocating with all that hot air. That has helped. Instead of going to sleep I lay here and wait to get tired enough so I can maybe fall asleep with that mask on. I called the nurse assigned to me about the mask and I'm going to be getting a new mask because the one I have pinches my nostrils and I cannot stand the way that feels. A newer version of the Quattro FX I think. I downloaded the SleepyHead software today and printed out lots of colorful charts on many pages....thanks for the link. I will try to learn what it all means. I'm sorry about complaining. I used to feel like a member of The Walking Dead, but I don't even know what I feel like now. Ten times worse. I am trying to focus on all the encouraging messages I have been reading on this forum. Thank you!

Just on the Sleepyhead software the two most important figures are your AHI and leaks, if you know what your AHI was at your first sleep study, you can see how well you are doing. You want your AHI to be as low as possible but anything below 5 is good and normal. You don't want too many leaks, on the graph you want them to be as small as possible and don't want them to be over 25, hope that helps a bit
On the Mask , you may need tto go up a size, are you using a small?
(This post was last modified: 08-15-2013 11:34 PM by Tez62.)
08-15-2013 11:20 PM
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zonk Offline

Advisory Members

Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #6
RE: New to CPAP and frustrated!
24 L/min if using an S9 which report unintentional leak, If not mistaken .. PRS1 machine report total leak (intentional leak plus unintentional leak) and report leak differently on LCD ... % LL (large leak)
Using S9 comparison (24 L/min), might be something close to 45 L/min
08-15-2013 11:39 PM
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trish6hundred Offline

Advisory Members

Posts: 6,451
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #7
RE: New to CPAP and frustrated!
Hi dpp11,
WELCOME! to the forum.!
I know CPAP therapy can be frustrating at first but just stick with it. The mask is the hardest part of all this, so don't be afraid to try as many masks as you need 'til you find the one that works just right, for you.
Best of luck and let us know how things go.

trish6hundred
08-16-2013 02:30 AM
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