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CPAP Newbie
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ISnoreBadly Offline

Advisory Members

Posts: 117
Joined: Jul 2015

Machine: PR System One REMStar Pro 560
Mask Type: Nasal pillows
Mask Make & Model: PR DreamWear Nasal Mask
Humidifier: PR System One
CPAP Pressure: 12
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Lawn Guyland, Noo Yawk

Post: #1
CPAP Newbie
Hi everybody, I'm a CPAP newbie and have been lurking on this board for a few weeks. I figured it was time to tell me story.

I've been a snorer for as long as I can remember. My father was a big snorer, growing up I just assumed that's what people did. Fast forward a few (ok, maybe 20) years and I learn that I not only snore, but I snort, gasp and seem to stop breathing during the night. I never did anything about it because I was never aware of sleep apnea or how it related to snoring and not breathing.

Earlier this year I had abdominal surgery, afterwards the nurses told me they had a hard time getting me off of the anesthesia and had one of the worst sleep apnea cases they'd seen in a while. Having a medical professional tell me that gave me the push to talk to my doctor about it. He recommended a local ENT, who asked me a few questions, poked his instruments into all of the holes in my head and said that yep, based on my thick neck, out of place jaw I probably did have sleep apena. So off I went for a sleep test, the next morning I asked how I did and the tech told me "awful" and said I would be back soon to do another test with a CPAP. A few days later I heard from my doctor and I found out that I had an AHI of 63.9. During the sleep test I had 292 obstructive sleep apneas, 3 mixed apneas, 0 central apneas and 110 hypopneas. My oxygen desaturation was down to 75%.

So then I had another sleep test, this time with a CPAP. They kept increasing the pressure until the AHI came down, at 11 it was less than 3. So they recommended a CPAP with an empiric pressure of 12 cm H20 and that's what I've been using for the last week. I jumped in with both feet, determined to make it work and to keep using it for the rest of my life if necessary because well, I don't want to be dead or have a stroke or an aneurysm from my blood pressure going through the roof.

I've been reading the data every morning with SleepyHead, it shows that the AHI was been under 5 every night aside from the first night I switched from a nasal mask to nasal pillows.

For the last few years I haven't been able to concentrate on anything for very long, I was short-tempered, have gained weight, was wiped out by 5 PM almost every day and was grumpy and grouchy and my wife says it's gotten worse. I've had issues where I've woken up in the middle of the night and find that I can't move at all (sleep paralysis), I've always had OCD tendencies but find that it was getting worse over the last year. I haven't been able to read a book or newspaper in a while because I wasn't able to process what I was reading. Well, I could but it would take reading an article two or three times before it stuck. I've never been one to remember people that I've only met once or twice but it's gotten worse, I would run into somebody who obviously knew me but I had no idea who they were, my wife would tell me about when I met them and spent some time with them but I had no recollection of that at all.

I've been using the CPAP for just about a week and already feel the fog is lifting from my brain. I'm able to concentrate again, I feel that I'm less grumpy and am not as tired as I had been in the past. I'm still tired at the end of the work day but not falling asleep driving home tired or passing out in front of the TV at 6 PM. My wife says that I haven't snored at all since I started using it, she actually reached over to make sure I was actually in bed the first few nights because she didn't hear me making the noises she'd become accustomed to.

The only downside so far is I'm waking up earlier than I'd like to. On a normal work day I have my alarm set to 6:30 but I've been up at 5:45 or 6 PM a few days. That's never happened in the past, I was always hitting the snooze button 4 or 5 times before dragging myself out of bed. Thinking-about

So, that's my story! Lolabove I'm happy to be here, there looks like a lot of great information on this site and many people going through the same thing as me.
07-09-2015 02:39 PM
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LexTac Offline

Preferred Members

Posts: 48
Joined: Jul 2015

Machine: PR System One REMstar Auto 560
Mask Type: Nasal pillows
Mask Make & Model: PR Nuance Pro
Humidifier: PR System One Heated Humidifier
CPAP Pressure: 15.3 cm H2O (Auto 5 to 20)
CPAP Software: SleepyHead EncoreBasic Other Software

Other Comments: Other Software: SleepMapper | Modem: SleepMapper Module | FFM: PR Amara View

Sex: Male
Location: South Central Kentucky

Post: #2
RE: CPAP Newbie
Welcome to the Forum from another newbie! Sleep-well

Regards;
Lex Cool
07-09-2015 03:00 PM
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wp6529 Offline

Preferred Members

Posts: 34
Joined: Feb 2015

Machine: ResMed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: Quatro AIR
Humidifier: H5i
CPAP Pressure: 9-16
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location:

Post: #3
RE: CPAP Newbie
Don't knock the waking up earlier thing - you are acutally getting more useable hours in your day and that is *HUGE*. I used to sleep 8-9 hours minimum and now it's 6-7 typically. That's 2-3 more useable hours a day, or more notably 2.5 - 3.75 more *days* a month worth of time. It's better than an extra month a year of time to do what you like every year and feel vastly better while doing it.
07-09-2015 05:03 PM
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OpalRose Offline

Monitors

Posts: 3,163
Joined: Nov 2014

Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #4
RE: CPAP Newbie
Welcome to the Forum,

I experienced some of the same as you. I had major surgery about 4 years ago, and they had a hard time bringing me out of the anesthesia. At the time, I didn't know I had sleep apnea.
That was a scary experience.

I'm retired now, but when I was working, I set my alarm for 5:30am, and just couldn't seem to get up. Now after 8 months on CPAP, I don't set an alarm anymore, but wake up around 6:00am. The only difference is that now I feel pretty good at 6:00am. So I just get up early and enjoy the day!

Glad you are adapting to CPAP. It's a great feeling when you wake up and feel good!

OpalRose
07-09-2015 05:34 PM
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trish6hundred Offline

Advisory Members

Posts: 6,430
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #5
RE: CPAP Newbie
Hi ISnoreBadly,
WELCOME! to the forum.!
It sounds like you are off to a good start and you have a great attitude, which will go a long way toward your CPAP therapy.
Hang in there for more responses to your post and much success to you.

trish6hundred
07-09-2015 08:50 PM
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ISnoreBadly Offline

Advisory Members

Posts: 117
Joined: Jul 2015

Machine: PR System One REMStar Pro 560
Mask Type: Nasal pillows
Mask Make & Model: PR DreamWear Nasal Mask
Humidifier: PR System One
CPAP Pressure: 12
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Lawn Guyland, Noo Yawk

Post: #6
RE: CPAP Newbie
Thanks everyone!

Last night I decided to change the size of the nasal pillows I was using (changed from medium to large), it felt better in my nose but I guess it didn't work out so well. My wife woke me a little after midnight and said the hose was blowing air her (because the mask was no longer on my face), then when I woke up this morning I found the mask on the floor. SleepyHead says I had it on for a little over 3 hours for the whole night. Oh well, back to the original size I guess.
07-10-2015 09:22 AM
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Mosquitobait Online

Advisory Members

Posts: 746
Joined: Apr 2015

Machine: Resmed AirSense 10 For Her
Mask Type: Nasal pillows
Mask Make & Model: Airfit P10
Humidifier: integrated, Climate line tube
CPAP Pressure: 9-12
CPAP Software: ResScan SleepyHead

Other Comments: RLS and Bradycardia

Sex: Female
Location: Minneapolis

Post: #7
RE: CPAP Newbie
You could be like me. I feel that my nose is between sizes. The larger one more comfortable, but too many leaks after a week of use. The smaller seeming not to have enough air or a little tight. I turned on the ramp and set it to start at 8 and ramp up in 15 minutes (I have pressure at 11). This resolved most of the issues with the smaller nasal pillow. Looking the strap around your head a bit seems to actually be the solution that it g ers have been successful with. I did that with the Wisp and that worked. Haven't figured out how to do the P10 yet.
07-10-2015 09:41 AM
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ISnoreBadly Offline

Advisory Members

Posts: 117
Joined: Jul 2015

Machine: PR System One REMStar Pro 560
Mask Type: Nasal pillows
Mask Make & Model: PR DreamWear Nasal Mask
Humidifier: PR System One
CPAP Pressure: 12
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Lawn Guyland, Noo Yawk

Post: #8
RE: CPAP Newbie
(07-10-2015 09:41 AM)Mosquitobait Wrote:  You could be like me. I feel that my nose is between sizes. The larger one more comfortable, but too many leaks after a week of use. The smaller seeming not to have enough air or a little tight. I turned on the ramp and set it to start at 8 and ramp up in 15 minutes (I have pressure at 11). This resolved most of the issues with the smaller nasal pillow. Looking the strap around your head a bit seems to actually be the solution that it g ers have been successful with. I did that with the Wisp and that worked. Haven't figured out how to do the P10 yet.

Using the medium size wasn't uncomfortable but I've got a large nose so I thought the large size would be better. It felt better (wasn't squeezing as much in the middle) but no big deal, I can go back to the medium size. I have the ramp on my machine to start at 6 and go to 12 in 20 minutes and that's been fine for me so far.

I was just looking online and see that moving the straps around on your head loosens or tightens it, I'll try that and see if it makes a difference.
07-10-2015 09:48 AM
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