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[CPAP] Newbie here...
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crazyjohn Offline

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Posts: 1
Joined: Aug 2014

Machine: none
Mask Type: Not using mask
Mask Make & Model: none
Humidifier: none
CPAP Pressure: none
CPAP Software: Not using software

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Sex: Male
Location:

Post: #1
Brick Newbie here...
Hello everyone! I am glad to have found this forum. I've had sleep apnea for many years now and I am finally beginning to take it seriously. I don't have health insurance at the present moment and I am wondering if I can glean enough information from this forum to get a machine and set it up to suit my needs. My daughter tells me I need a prescription, but - again, I don't have health insurance, so I won't be able to do a sleep study unless it is free somewhere...

Where do I begin? Thank you in advance and have a great day!

Crazy John
08-29-2014 04:12 PM
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zonk Offline

Advisory Members

Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #2
RE: Newbie here...
(08-29-2014 04:12 PM)crazyjohn Wrote:  I've had sleep apnea for many years now and I am finally beginning to take it seriously. I don't have health insurance at the present moment and I am wondering if I can glean enough information from this forum to get a machine and set it up to suit my needs.
Welcome to the forum
Have you been diagnosed at all? Your GP can write a prescription

Supplier #2 have some good deals on used and new machines with warranty
http://www.apneaboard.com/forums/Thread-CPAP-Supplier-List

You want APAP machine, can calculate the pressure based on the severity of the events and adjust pressure to your needs throughout the night

Either ResMed AutoSet (not S9 Escape Auto) or Phillips Respironcis System One (PRS1) Auto , model number 550 or 560 is good choice and supported by free software whch you can download from this forum
PRS1 Auto is cheaper than the S9 AutoSet

Getting the clinical manual so you can set the machine and learn about the options and features is the easy part
Available via email from here http://www.apneaboard.com/adjust-cpap-pr...tup-manual

btw, you,re not crazy at all, well done on doing your homework Coffee
08-29-2014 05:38 PM
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herbm Offline

Preferred Members-2

Posts: 852
Joined: Jan 2014

Machine: ResMed AutoSet S9
Mask Type: Oral
Mask Make & Model: ResMed Airfit P10 Nasal Pillow
Humidifier: ResMed H5i
CPAP Pressure: 11-16
CPAP Software: ResScan SleepyHead

Other Comments: Backup Mask: Innomed Hybrid FFM -- Oral+Nasal Pillows

Sex: Male
Location: Austin, TX

Post: #3
RE: Newbie here...
Machine 'require' a prescription but that doesn't mean you can't get one without it (see Craigslist or Google).

You will first want to learn enough to get a decent machine.

Where do you live that there is no insurance for you?

We'll help.

Sweet Dreams,

HerbM
Sleep study AHI: 49 RDI: 60 -- APAP 10-11 w/AHI: 1.5 avg for 7-days (up due likely to hip replacement recovery)

"We can all breathe together or we will all suffocate alone."
08-29-2014 06:13 PM
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trish6hundred Offline

Advisory Members

Posts: 6,430
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #4
RE: Newbie here...
Hi crazyjohn,
WELCOME! to the forum.!
You could get a machine on Craig's list but, try to get it near where you live, so you can meet up with the person to test it to see that it works okay.
Hang in there for more suggestions and best of luck to you as you start your CPAP journey.

trish6hundred
08-29-2014 10:43 PM
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MAPnea Offline

Advisory Members

Posts: 182
Joined: May 2013

Machine: ResMed S9 AutoSet - currently "set" on CPAP mode
Mask Type: Other
Mask Make & Model: ResMed AirFit F10 and P10 - varies
Humidifier: ResMed H5i
CPAP Pressure: 8
CPAP Software: SleepyHead

Other Comments: New Sleep Doc + New DME = Trying new approach to PAP therapy.

Sex: Female
Location: near Great Basin National Park, Nevada

Post: #5
RE: Newbie here...
Hi, crazyjohn,

Welcome You've made the first step in keeping yourself healthy, so you are not "crazy"! I'm glad your daughter is encouraging you to get your sleep apnea treated. You'll find lots of help and encouragement here. Welcome!!
08-29-2014 10:45 PM
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Mac_Sheepcounter Offline

Preferred Members

Posts: 29
Joined: Aug 2014

Machine: ResMed S9 AutoSet
Mask Type: Nasal mask
Mask Make & Model: ResMed AirFit P10
Humidifier: none
CPAP Pressure: 5-10
CPAP Software: SleepyHead

Other Comments: Playing with the nice PO-300 Oximeter :-)

Sex: Male
Location: Germany

Post: #6
RE: Newbie here...
Hi crazyjohn,

@moderators: if i do something against the board-rules here, please delete the post and pm me.

i'm not a doctor, just an IT guy working a lot with medical IT equipment (and also suffering with sleep apnea), so all below is just an advice "as i know", not in any way a medical information.

There're two very important indicators to know, if you seek for relief of your apneas.
1st: How often do you have apneas while you sleep, and what's the duration?
2nd: How does it affect your blood oxygen level?

The first question may be answered by your wife. Like "Hell, you stop breathing for about a minute ten times a night!"
To answer the second question, i would strongly recommend to buy a pulse oximeter. Look for one with internal memory.
Then you may sleep with that thingy on your finger and the next day you're able to upload and see what your pulse rate and your blood oxygen level is doing at night.

If you see a lot of points, where your oxygen drops and your pulse will go up after x seconds, you "see" a typical apnea. You stop breathing.... one part of your brain picks up the phone, calling the other part "Hey, what's wrong, my O2 fuel is running out! Do something!" and the other part takes a look at crazyjohns meters, knocks at the O2 meter and say "Oh Sh**!, ok, let's put out some adrenaline and tell the guy to breath!"

That's the part bringing up stress at night, refusing you from good sleep.

Ok, in a professional lab, a lot more things will be measured. But Breathing, Pulse and O2 are the most important parts.

Like the foreposters mentioned: Try to pick up a cheap machine and a mask.

Than try to find the optimum pressure to reach the optimal situation, that your O2 level won't drop at night. That's the most complicated part but even for an MD it's more or less "trial and error".

As a last note: Please have in mind, that a CPAP/APAP machine is not the glory solution for everyone. Your problem may also be related, that your tongue will block the airway at night, so a "protusion splint" (sorry, don't know if it's the right term, had to google this) may be YOUR solution for a good sleep. This would be a job for a specialized dentist.

Ok, sorry for these tons of text, hope it's of some help for you

Mac
08-30-2014 03:57 AM
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justMongo Offline

Monitors

Posts: 3,840
Joined: Sep 2013

Machine: ResMed VPAP Auto (S9)
Mask Type: Full face mask
Mask Make & Model: ResMed Mirage Quattro
Humidifier: ResMed H5i
CPAP Pressure: 18 IPAPmax - 11 EPAPmin, PS=5
CPAP Software: Other Software

Other Comments: μολὼν λαβέ

Sex: Male
Location: Калифорния

Post: #7
RE: Newbie here...
Welcome Crazyjohn. Wait until you meet our crazy retired_guy!

The only thing the moderators might jump on -- since the board is located in the US; and US Federal law requires a prescription for a machine and certain supplies -- they cannot condone acquisition without an Rx.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
08-30-2014 06:22 AM
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SuperSleeper Offline

Administrators

Posts: 9,961
Joined: Feb 2012

Machine: PR System One REMstar Auto (DS560)
Mask Type: Nasal pillows
Mask Make & Model: ResMed Mirage Swift II
Humidifier: none
CPAP Pressure: 12.5 - 18.5 cmH20 (auto range)
CPAP Software: SleepyHead

Other Comments: Have diabetes Type II

Sex: Male
Location: Illinois, USA

Post: #8
RE: Newbie here...
So far in this thread, no one has yet "solicited or facilitated the sale, trade or transfer of any prescription-required items (such as CPAP machines, humidifiers, masks or mask parts)". That would be a violation of U.S. laws since neither party is a licensed Durable Medical Equipment supplier (DME).

I personally don't like the prescription requirement, but that's the law in the U.S. unfortunately.

If you choose to purchase a CPAP machine, as others have said, Craigslist or going through a Supplier who may "forget" to ask for your prescription might be one route to go. Also, while we're not offering medical advice here, I'm sure folks are more than willing to help you out with their own experiences and knowledge if you choose to go the "self-treatment" route.

Having said that, I still think that if you can any way afford it, it's best to get a sleep study, since self-diagnosis of sleep apnea may be problematic for you... you could have some other malady that mimics the symptoms of sleep apnea, but you'll never know for sure unless you have a sleep study done. Sometimes one can be done at home - those are usually much less expensive.

SuperSleeper
Apnea Board Administrator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.

08-30-2014 11:52 AM
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retired_guy Offline

Preferred Members-2

Posts: 2,744
Joined: Jan 2014

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: ResMed
CPAP Pressure: 10.6/14, EPR 3
CPAP Software: ResScan SleepyHead

Other Comments: Is it bedtime yet?

Sex: Male
Location: Beautiful, albeit very wet Oregon Coast

Post: #9
RE: Newbie here...
(08-30-2014 11:52 AM)SuperSleeper Wrote:  .......... That would be a violation of U.S. laws since neither party is a licensed Durable Medical Equipment supplier (DME).

But maybe I am.... Don't know for sure........... Is that the same thing as having a library card? I'll check with the voices...........
.........
.........

Well, they all agree (except for that one guy) that it is the same. So I can solicicate if I want to.

But I kind of forgot what we're talking about.

I think I'll go now.
08-30-2014 11:59 AM
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SuperSleeper Offline

Administrators

Posts: 9,961
Joined: Feb 2012

Machine: PR System One REMstar Auto (DS560)
Mask Type: Nasal pillows
Mask Make & Model: ResMed Mirage Swift II
Humidifier: none
CPAP Pressure: 12.5 - 18.5 cmH20 (auto range)
CPAP Software: SleepyHead

Other Comments: Have diabetes Type II

Sex: Male
Location: Illinois, USA

Post: #10
RE: Newbie here...
(08-30-2014 11:59 AM)retired_guy Wrote:  Is that the same thing as having a library card?

Yes, it's exactly the same, but you have to turn the CPAP back in on time or face rather hefty overdue fines. Cool Bigwink

SuperSleeper
Apnea Board Administrator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.

08-30-2014 12:24 PM
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