05-04-2014, 05:02 PM
(This post was last modified: 05-04-2014, 05:05 PM by retired_guy.)
This doesn't need to be that stressful an ordeal for you.
First let's establish a couple of goals:
1. You need a machine now. Not in 5 weeks. So you would be willing to accept a "loaner" if they have to order you one.
2. You want a data-capable machine so that you don't have any more 5th year surprises of "Oh! You're doing 7's! You should be less than 5." With a data capable machine you can know this daily. So you want a Resmed S9 Autoset. There are others, but you have already been using Resmed, so why not continue on.... They will probably say they don't have one right now, at which time you will be happy to accept a "loaner" while they order one. If they are hell bent not to provide you with a data capable machine, ask them for a copy of your prescription - which they legally should provide you, or go back to the sleep lab and get one, then order your machine from an on-line supplier that can handle your insurance situation for you.
3. Getting fitted just means they want to figure out what mask you need --- small, medium, large.... They won't really care if you use a full face, pillows, or nasal. That's up to you to decide. So since you're used to a nasal just tell them that. On the other hand, since you already have a nasal that works for you, you may want to try something else such as new Resmed N10 nasal, or the Resmed P10 pillows.
4. You're not the patient. You're the customer. Don't let them kid you into thinking otherwise.
p.s. "7" is really not a big deal. It's a bigger deal than you should have to have, but in the scheme of things still not a big deal. But if they "think" it's a big deal, then let them think that so they can justify getting you your gear as quickly as possible.
05-04-2014, 05:47 PM
(This post was last modified: 05-04-2014, 06:36 PM by vsheline.)
I sent you a Private Message with more info.
In brief, I urge you to inform the DME now, while things are still getting arranged, what machine you want and will accept. Be prepared to say "no" to the first couple machines they offer to sell you.
You might be stuck for 5 yrs with whatever machine you accept from the DME, so only accept a fully data capable model, and I highly recommend refusing anything but an Auto machine. An Auto machine can always be operated in fixed-pressure CPAP mode, if necessary, or can be operated in Auto mode. Two machines in one, so you can use an Auto even if (presently) your prescription is for a fixed pressure.
But also work now to get your prescription changed to the specific model you want and will accept.
Guidance on what machine to buy:
Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment. The Advisory Member group provides advice and suggestions to Apnea Board administrators and staff on matters concerning Apnea Board operation and administrative policies - not on matters concerning treatment for Sleep Apnea. I think it is now too late to change the name of the group but I think Voting Member group would perhaps have been a more descriptive name for the group.
Craigslist is not a bad idea... I recently looked at Craigslist in our area and found a S9 Autoset with no miles on it just 3 blocks away from where I live. Price they were asking? $500.00.
Hmm, maybe I should go get it as a backup myself.
Welcome to the forum, and take note of the great replies you've gotten thus far. I too am one of those guys that won't even take a nap without my dream machine~! My spare is nothing to brag about - a single pressure 'brick' model - but much better than doing without.
Fighting (if needed) now, is much better than dealing with what you don't want later. Also, you can choose to use whichever DME you want to use. Possible phone calls may land you at a good DME willing to do as you hope and expect, as you really are the customer, though most DMEs do not see to act like you are.
*I* am not a DOCTOR or any type of Health Care Professional. My thoughts/suggestions/ideas are strictly only my opinions.
"Only two defining forces have ever offered to die for you. Jesus Christ and the American Soldier. One died for your Soul, the other for your Freedom."
I got a S9 autoset for $350 with case masks hoses humidifier off CL. You could find lesser machines for temp use or back up even cheaper than that. I jump through no hoops, haven't talked to DME for awhile. I got my nasal pillows off auction site (new) by ordering short tube and pillow and headgear on separate auction. I am not saying going alone is for everyone but it's where I ended up.
Thanks for the advice everyone I appreciate it. I had my appointment to get my equipment today and got a resmed s9 autoset. After reading your replies yesterday I was concerned I was getting something else as I told the practioner that I was not certain if I would like auto pressure as she kept insisting most patients complained that they felt like they were suffocating using it. She told me I had to choose fixed or variable as a variable could not act as a fixed pressure machine. I chose fixed as that is what I am used to and did not want the problem of having to exchange a variable machine later if the practioner was right. Well the nice lady at the DME pulled out an autoset s9 when I arrived and told me off the bat that it is a variable machine but she set it to act as a fixed one for me. You think they would train the staff at the doctors office better on the machines capabilities. Anyways I have the machine with a heated tube and the resmed air fit nasal pillows instead of the swift nasal mask I've used. (Both seem to be nice upgrades from what I have used and the machine is so different from my s8 much quieter). I see how the unit works tonight. Only weird thing is now I have a cell modem attached to the unit to report my data to the DME so they can verify my usage to the insurance provider (did not have to do that 5 years ago) at least it is only necessary for the first 90 days then I can send the cell component back to the DME. Anyways I am just glad to have the machine.