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[CPAP] Self Diagnosis and stumbling in the dark
#11
RE: Self Diagnosis and stumbling in the dark
Strawman, glad you dropped in and have asked for help.  I hope you won't mind my stating some facts based on empirical evidence:

a. Neck girths larger than 17" (43 cm) are highly associated with obstructive apnea.  If you have a lot of butter under your skin, this may be a large measure of what ails ye;

b. Physician's office BP over 140 is considered hypertensive (yes, they factor in the white coat syndrome with that number).  You should be 130 or less at home.  The diastolic numbers you cite are pretty decent.  Coupled with your body size currently, you are getting into co-morbidity territory;

c. AFib is also strongly correlated with OSA, but in my case it is the successor to the OSA, and probably for you as well. I put on a lot of weight since being diagnosed and commencing three meds to control the AFib and to reduce both lipids and BP a bit (mine were slowly crossing the borderline and my cardio said it was time to cave).  Have lost 1.5 stone since 21 Jan.

You are in good hands with bonjour who is one of our roaming pit-bulls.  First step, I agree, would be to see what three successive nights using a soft foam cervical collar does for you.  A formal diagnosis makes it easier for you to acquire what you need in order to find relief, and an ASV may have to be it.

Good luck to you.
Serial Tapist
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#12
RE: Self Diagnosis and stumbling in the dark
Hi Mesenteria I hear ya, and thanks for the reply kinda makes me feel I am not alone.
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#13
RE: Self Diagnosis and stumbling in the dark
Hi Bonjour

I have fashioned a form of neck support as per your instructions and will be wearing that tonight. Thanks for looking over my charts its good of you.

On a seperate note I recieved a letter today from the sleep clinic apologising for the delay due to staff shortage and COVID and to whether I still wanted a sleep study. I do not remember going to the docs and explaining about my sleeping it has to be over a year ago. Forgetfulness is part of the sleep problems I guess so that and my own research into sleep apnea I will be able to ensure they look for complex apnea.
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#14
RE: Self Diagnosis and stumbling in the dark
Tell them that you have been using a ResMed AutoSet and via that you know that you have 'undiagnosed central sleep apnea" (want them to start thinking this) and your numbers are
AHI 20.63
CAI 12.49
OAI 3.49
HI 4.65
and any sleep sleep study need to include a ASV Titration.

FOr your insurance to get involved they need a sleep study. I'd expect a split study, Diagnostic (without CPAP) / Titration (hopefully with ASV)
Fred Bonjour - Project Manager and Lead Tester for OSCAR - Open Source CPAP Analysis Reporter 
OSCAR

Download OSCAR
New to Apnea? Helpful tips to ensure success
Soft Cervical Collar
Mask Primer
Dealing with a DME
Organize Charts
Attaching Charts

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
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#15
RE: Self Diagnosis and stumbling in the dark
Hi Bonjour so tried the neck support i have an image uploaded forget the first cluster of events just getting used to it after that it worked fine quite comfy unfortunately the readings are awful in fact I am more tired now than before I went to bed.

Cpap at 5 cmH2o trying to induce more OA and reduce CA.

       
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#16
RE: Self Diagnosis and stumbling in the dark
I think because it was a roll it impeded on your throat.
Try again, but with a proper soft cervical collar.

I'm certain you need an ASV or a more steady solution based on your history.
Fred Bonjour - Project Manager and Lead Tester for OSCAR - Open Source CPAP Analysis Reporter 
OSCAR

Download OSCAR
New to Apnea? Helpful tips to ensure success
Soft Cervical Collar
Mask Primer
Dealing with a DME
Organize Charts
Attaching Charts

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
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#17
RE: Self Diagnosis and stumbling in the dark
Hi There

I am not holding out much hope at the moment for a full on sleep sudy as I have been on the list for over 2 years they were checking to see I still needed a study. I have uploaded an in home study that was completed last week not sure what it means pretty sure though it will not identify CSA.

I have been using a soft collar arrived yesterday nothing to see in the results of the CPAP yet. 

       
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#18
RE: Self Diagnosis and stumbling in the dark
Can you post a standard screenshot from OSCAR please.
Fred Bonjour - Project Manager and Lead Tester for OSCAR - Open Source CPAP Analysis Reporter 
OSCAR

Download OSCAR
New to Apnea? Helpful tips to ensure success
Soft Cervical Collar
Mask Primer
Dealing with a DME
Organize Charts
Attaching Charts

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
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#19
RE: Self Diagnosis and stumbling in the dark
My conclusion so far is you need an ASV
Fred Bonjour - Project Manager and Lead Tester for OSCAR - Open Source CPAP Analysis Reporter 
OSCAR

Download OSCAR
New to Apnea? Helpful tips to ensure success
Soft Cervical Collar
Mask Primer
Dealing with a DME
Organize Charts
Attaching Charts

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
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#20
RE: Self Diagnosis and stumbling in the dark
I am back, so my ResMed AirCurve 10 ASV arrived from the States today and have set up the pressures as:

EPAP Min 6.0
EPAP Max 15

PS Min 3.0
PS Max 19

Here's hoping it works out OK.
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