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[CPAP] The honeymoon is over
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LindafromNJ Offline

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Post: #1
Gross The honeymoon is over
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I am new to this site and have been using my CPAP machine for a little over 3 months I was doing so well up till now. Now I am having issues with constant waking up and it has left me exhausted. My doctor told me that with the CPAP the first few months is the honeymoon period and then you do not feel as good using the machine. In addition to sleep apnea I have fragmented sleep disorder in which I wake up every few hours. Now I am told to take Xanax each night before bed.

I thought I was cured with the sleep apnea machine only to find out I am not.

Has anyone else gone through this?
09-22-2015 07:47 PM
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eseedhouse Offline

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Machine: ResMed Airsense 10 Autoset
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Post: #2
RE: The honeymoon is over
Well I struggle with staying asleep, mostly because I get the "urge to go" and that wakes me up. My AHI is nice and low so I take two Xanax about a half hour before going to bed. Recently I've been able to keep it down to one or two wake ups per night. I find that if I can get in four hours or more before the first awakening I feel a bit better the next day. I usually get around seven hours sleep over an eight hour period.

I've tried various medications (other than the Xanax) and so far they haven't helped much.

I'd have a talk with my doctor and see if he (or she) has any ideas that might help.
There are things you can do in the evening that help you sleep better, like staying away from any computer or television screens, and keeping the lights as low as you can stand.

Ed Seedhouse
VA7SDH

I am neither a Doctor, nor any other kind of medical professional.

Actually you know, it is what it isn't.
(This post was last modified: 09-22-2015 08:01 PM by eseedhouse.)
09-22-2015 08:00 PM
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zonk Offline

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Post: #3
RE: The honeymoon is over
(09-22-2015 07:47 PM)LindafromNJ Wrote:  My doctor told me that with the CPAP the first few months is the honeymoon period and then you do not feel as good using the machine.
Hi LindafromNJ and welcome to the forum

Probably, there is honeymoon period but that does not mean you have suffer after the period end, things should improve and get better

You'll need to look at the SD card data and see what is really going on
You didn't say what is AHI, AI, Central AI, and leak numbers (you can get these numbers from the machine sleep report)

As for cure, the machine in not a cure, only helps if you're using it, also that need constant monitoring and adjustment
(This post was last modified: 09-22-2015 08:12 PM by zonk.)
09-22-2015 08:11 PM
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OpalRose Offline

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Machine: PR System One REMstar Auto 560 with A Flex
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Post: #4
RE: The honeymoon is over
Welcome to the forum LindafromNJ,
I hope you are not totally depending on your doctor, because the first 3 months is not a honeymoon for a lot of folk.

First, a little more information is needed. What has your AHI been for the last three months? Could you give us an average breakdown of your AHI: Obstructives, hypopneas, clear airway, etc.
What about your leak rate?

Your pressure setting of 6 is probably too low for you, but there is no way of knowing without a little more information.

OpalRose
09-22-2015 08:13 PM
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justMongo Offline

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Post: #5
RE: The honeymoon is over
(09-22-2015 08:13 PM)OpalRose Wrote:  Your pressure setting of 6 is probably too low for you, but there is no way of knowing without a little more information.

@ LindafromNJ, check that pressure. Sounds so low as I suspect it is not correct.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
09-22-2015 08:27 PM
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trish6hundred Offline

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Location: Missouri, USA

Post: #6
RE: The honeymoon is over
Hi LindafromNJ,
WELCOME! to the forum.!
Hang in there for mor suggestions and don't give up on your CPAP therapy.
Much success to you.

trish6hundred
09-22-2015 08:33 PM
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Ghost1958 Offline

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Other Comments: Moderate to Severe SA Obstructive. Rapid O2 desat off the machine.

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Post: #7
RE: The honeymoon is over
6 is likely to low. Heck i cant breath on 6 sitting up and awake.
09-23-2015 12:01 AM
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PaulaO2 Offline
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Post: #8
RE: The honeymoon is over
It is fairly common for folks to need the CPAP pressure to be increased after several months of use. Sometimes even again later.

If your sleep doc has not suggested increasing the pressure but has instead prescribed you a sleep aid (which could perhaps make the OSA worse), then you need another sleep doc. Or you need to access the data of the machine and figure out how to set the optimum pressure yourself. We can help you do that.

And folks, 6 is HER pressure, not ours. If that is what it took to keep her airway open 3 months ago, so be it.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
09-23-2015 11:31 AM
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AlanE Offline

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Post: #9
RE: The honeymoon is over
Welcome




nothing else to add, yet.



Using FlashAir W-03 SD card in machine. Access through wifi with FlashPAP or Sleep Master utilities.

I wanted to learn Binary so I enrolled in Binary 101. I seemed to have missed the first four courses. Big Grinnie
09-24-2015 09:20 AM
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LindafromNJ Offline

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Posts: 7
Joined: Sep 2015

Machine: resmed airsense 10 elite
Mask Type: Nasal mask
Mask Make & Model: Resmed Nano
Humidifier: unsure
CPAP Pressure: 6
CPAP Software: ResScan

Other Comments:

Sex: Female
Location:

Post: #10
RE: The honeymoon is over
Thanks all for your responses. In addition to having sleep Apnea I have also been diagnosed with Fragmented sleep disorder. I wake up every hour to 2 hours all night, but do go back to sleep. The prescription is for that. My stats for the CPAP are the following:

Apnea Index 2.1 hypopnea index 0.7, AHI 2.8.
Obstructive 1.8, Central 0.2.
95th percentile 9.6 - not sure what that means.
Average hours used 7.01 - in the morning I sometimes sleep an hour with it off.

Pressure is at 6 and based on score did not want to change it. Do u guys agree based on the score.
09-24-2015 12:45 PM
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