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[CPAP] new user having a hard time
#1
new user having a hard time
Hi guys,

I've been using my cpap machine since nov 14th, and feeling really lousy since then.  my initial auto setting was 6-12 but i gradually increased the maximum to 18 because it was spending most of the time at 12.

any advice on why i feel so lousy?  i feel even worse than before i started treatment.  i was diagnosed with severe obstructive sleep apnea.

i can post sleepyhead data here, not sure what would be relevant.
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#2
RE: new user having a hard time
G'day mattm1. Welcome to Apnea Board.

While a lot of people get instant fantastic results from CPAP therapy, for most of us it's a journey with one step forwards and two steps back. Eventually we get there and it becomes routine.

It would definitely help if you could post some screenshots from SleepyHead and also the summary page of your sleep study report (make sure to redact any personal details you don't want broadcast to the world). Without that data we're just guessing what the problem might be. The following links show how to organise an post your data. As you are a new member you won't be able to post clickable links - just include a space in the link address (eg htt ps://Imgur.. ) and one of the moderators will fix the link for you.

Organize your SleepyHead Data http://www.apneaboard.com/wiki/index.php...ganization
Post your SleepyHead Data from Imgur http://www.apneaboard.com/wiki/index.php...pnea_Board

In the meantime, you might want to read this, and see what applies to your situation: http://www.apneaboard.com/wiki/index.php...re_success
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#3
RE: new user having a hard time
(12-02-2017, 07:08 PM)mattm1 Wrote: i can post sleepyhead data here, not sure what would be relevant.

Hi mattm1,
If you would follow the tutorials in my signature line, that will explain how to take a screenshot, upload to imgur and post here.

Pay attention the the organize section of the graphs. We need to see the following: events, pressure, flow rate, leak and snore graphs. Also the stats on the left, you can eliminate the calendar.

Since you haven’t transitioned to member status yet (you need 4 posts), just leave a space in the link when posting your data.
OpalRose
Apnea Board Administrator
www.ApneaBoard.com

OSCAR Chart Organization
OSCAR - The Guide
Soft Cervical Collar
Optimizing therapy




INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE.  ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA.  INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
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#4
RE: new user having a hard time
Much good luck to the OP, and many thanks for the posts above. Makes me realize I'm not managing my own "help me please!' thread very well in terms of data.
-Jerry
In search of a good night's sleep
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#5
RE: new user having a hard time
Hi mattm1,
WELCOME! to the forum.!
Hang in there for more answers to your questions and good luck with CPAP therapy.
trish6hundred
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#6
RE: new user having a hard time
First thing I would do is to put up the low to 8 just so the machine does not have to rise so much in pressure.
However, if you have Sleepyhead data, post it.
I am NOT a doctor.  I try to help, but do not take what I say as medical advice.


Every journey, however large or small starts with the first step.

Sleep-well
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#7
RE: new user having a hard time
Welcome Mattm1,
I also felt worse at the beginning. (Started at the machine default of 4-20.  After 10 months am at 11 to 13.5 with decent results.)  It is a process.  Someone here explained that your body has adapted to rough night breathing, perhaps for years, and will need time to adapt to better sleep breathing and that thing on your face! 

Keep studying here.  Both the APAP machine, Sleepyhead, and other parts of the sleep environment; pillows, sleep position, neck collars, etc.  I even changed to a toothpaste that doesn't make me choke when I use it (from a vitamin store). 

Looking forward to seeing your stats.   Sleep-well
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#8
RE: new user having a hard time
thanks for your responses guys,

here is some of my data from the last few days. i changed it from autoset for her to auto. also had some nasal congestion past 2 nights which would affect things possibly.

[u r l= h ttps://im gur.com/mEv6fGD][img]h ttp://i.imgur.c om/mEv6fGDl.png[/img][/url]
[ur l= h ttps://im gur.com/AXlVQNI][img]h ttp://i.imgu r.com/AXlVQNIl.png[/img][/url]
[ur l= h ttps://imgu r.com/SsiUhbi][img]h ttp://i.imgur.co m/SsiUhbil.png[/img][/url]
[ur l= h ttps://img ur.com/He1W5RY][img]h ttp://i.imgu r.com/He1W5RYl.png[/img][/url]
[ur l= h ttps://imgur. com/eh9ItkL][img]h ttp://i.imgur.com /eh9ItkLl.png[/img][/url]
[ur l= h ttps://imgur.c om/w4EI8TK][img]h ttp://i.imgur.co m /w4EI8TKl.png[/img][/url]

i had some trouble with posting the links so put in a few spaces
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#9
RE: new user having a hard time
https://imgur.com/mEv6fGD
https://imgur.com/AXlVQNI
https://imgur.com/SsiUhbi
https://imgur.com/He1W5RY
https://imgur.com/eh9ItkL
https://imgur.com/w4EI8TK


Note you only need 1 space and please place it in the https (that makes it easier to grab
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#10
RE: new user having a hard time
have another screenshot from last night, ahi was better. still feel lousy after waking. maybe thats because im getting used to pressure changes. maybe because ive been fiddling with the settings too much i should stay at 6-20 in apap mode for awhile? what do you guys think.

https://imgur.com/BKEeVEg



>Moderator action: Fixed link
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