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CPAP nightmare
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richb Online

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Posts: 522
Joined: Jun 2015

Machine: Resmed AirCurve 10 ASV
Mask Type: Nasal mask
Mask Make & Model: ResMed Mirage FX
Humidifier: Built in
CPAP Pressure: Epap 6 Ipap 8 Auto ASV
CPAP Software: ResScan SleepyHead

Other Comments: Idiopathic Central Apnea

Sex: Male
Location: Vermont

Post: #51
RE: CPAP nightmare
(09-16-2016 08:46 AM)bernerbits Wrote:  A whole Ambien pill got me to sleep fast, but I woke up at 12:45 and had to take the mask off, then slept until 3:30-4ish. At least I got my compliance in last night.

There is a long acting Ambien that can get you some more sleep. Ambien CR (zolpidem) comes as a tablet and an extended-release (long-acting) tablet to take by mouth. It is usually taken as needed at bedtime.

Rich

Apnea Board Member RobySue has posted a Beginners Guide to Sleepyhead Software here: http://www.apneaboard.com/wiki/index.php...SleepyHead
09-16-2016 03:59 PM
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BadGoodDeb Offline

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Posts: 210
Joined: Apr 2015

Machine: ResMed Airsense 10 autoset
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 for Her
Humidifier: no
CPAP Pressure: 8 (testing 7.8-10)
CPAP Software: SleepyHead

Other Comments: New to AirSense 10 and AirFit P10, but 4 years on prev unit

Sex: Female
Location: Chicago outskirts (Aurora, IL)

Post: #52
RE: CPAP nightmare
And possibly (if you haven't already) lots and lots and LOTS of time spent with the mask & machine on. (I'm not sure the mask alone is enough to get you accustomed to the breathing.) Like, while sitting watching TV or reading?
09-16-2016 04:09 PM
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bernerbits Offline

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Posts: 102
Joined: Aug 2016

Machine: DreamStation Auto
Mask Type: Full face mask
Mask Make & Model: Amara View
Humidifier: DreamStation Auto Humidifier
CPAP Pressure: 8.5-14
CPAP Software: SleepyHead

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Sex: Male
Location: Nashville

Post: #53
RE: CPAP nightmare
Well I think I've gone and complicated the matter by trying too many things at once. To control anxiety, I went back on Zoloft, which has an initial period of increased anxiety. I went off Ambien and used extended release Melatonin for a night as my neurologist suggested. The anxiety from the Zoloft was unbearable. Ended up using Lorazepam to control it, so there was no point to going off Ambien.

2 hours on the CPAP, none of them asleep. Took the mask off, slept for 4 1/2 hours without with a 90 minute wake-up.

Back on the Ambien tonight, looks like I'm on this (PM) and the Lorazepam (AM) until the Zoloft anxiety subsides.

I still experienced air hunger on the new settings, x1 and 9 cmH2O, but I think it was less severe.
09-17-2016 06:02 AM
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49er Offline

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Joined: Apr 2012

Machine: VPAP-S
Mask Type: Nasal mask
Mask Make & Model: Sleep Weaver Elan Soft Cloth Nasal Mask
Humidifier: H5i
CPAP Pressure: 13.6/9.6
CPAP Software: SleepyHead

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Sex: Undisclosed
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Post: #54
RE: CPAP nightmare
Hi bernerbits,

I am speaking not as a medical professional but as a veteran of the antidepressant withdrawal boards. Here is what I am wondering and this may or may not be applicable in your situation.

Previously, you had been off meds since May but later, you mentioned Zoloft as part of the equation. As an FYI, many people who go off of an SSRI taper way too quickly and get rebound symptoms like anxiety that look like a relapse but aren't. It sounds like that may have happened in your situation but of course, I could be wrong.

Anyway, while you seem to recognize you made too many changes at once, I am concerned that you are not giving enough time to stabilize on the Zoloft reinstatement and are trying to cover the symptoms with ambien and lorazepam which may further destabilize your nervous system. Believe me, I do understand the need for immediate relief as SSRI induced anxiety is definitely not fun to deal with. But I wish I had a nickel for all the posters on these boards who did what you did only to end up alot worse.

49er
09-17-2016 06:44 AM
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bernerbits Offline

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Posts: 102
Joined: Aug 2016

Machine: DreamStation Auto
Mask Type: Full face mask
Mask Make & Model: Amara View
Humidifier: DreamStation Auto Humidifier
CPAP Pressure: 8.5-14
CPAP Software: SleepyHead

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Sex: Male
Location: Nashville

Post: #55
RE: CPAP nightmare
I'm going to talk it over with my providers Monday. But... I'm not sure what else to do. I have to keep functioning while all these changes are going on.
09-17-2016 08:30 AM
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49er Offline

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Posts: 236
Joined: Apr 2012

Machine: VPAP-S
Mask Type: Nasal mask
Mask Make & Model: Sleep Weaver Elan Soft Cloth Nasal Mask
Humidifier: H5i
CPAP Pressure: 13.6/9.6
CPAP Software: SleepyHead

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Sex: Undisclosed
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Post: #56
RE: CPAP nightmare
(09-17-2016 08:30 AM)bernerbits Wrote:  I'm going to talk it over with my providers Monday. But... I'm not sure what else to do. I have to keep functioning while all these changes are going on.

Totally understand and wish you all the luck in the world.
09-17-2016 08:44 AM
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SaldusMiegas Offline

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Posts: 227
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Machine: ResMed AirSense 10 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: P-10, F&P Simplus
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CPAP Pressure: Rx:14, Set:Auto 8.0-15.0
CPAP Software: ResScan SleepyHead

Other Comments: Woot! P-10 pillows plus Ruby chinstrap for side-sleeping mouth breathers

Sex: Male
Location: Virginia

Post: #57
RE: CPAP nightmare
bernerbits,

Hang in there buddy, you are going to get through this.

Saldus Miegas
09-17-2016 09:14 AM
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bernerbits Offline

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Posts: 102
Joined: Aug 2016

Machine: DreamStation Auto
Mask Type: Full face mask
Mask Make & Model: Amara View
Humidifier: DreamStation Auto Humidifier
CPAP Pressure: 8.5-14
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Nashville

Post: #58
RE: CPAP nightmare
(09-16-2016 04:09 PM)BadGoodDeb Wrote:  And possibly (if you haven't already) lots and lots and LOTS of time spent with the mask & machine on. (I'm not sure the mask alone is enough to get you accustomed to the breathing.) Like, while sitting watching TV or reading?

I'd like to. However, the two hours from when our son goes to bed around 7-7:30 until bedtime is the only time I get to spend alone with my wife on weekdays, and the mask means we can't really enjoy each other's company. I've already got anxiety about not feeling connected to my family during this time of stress so I need to take what I can get.
(09-17-2016 09:14 AM)SaldusMiegas Wrote:  bernerbits,

Hang in there buddy, you are going to get through this.

Saldus Miegas

I will. For my sake and my family's. Thanks for the support.
(This post was last modified: 09-17-2016 12:00 PM by bernerbits.)
09-17-2016 11:59 AM
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rkl122 Offline

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Posts: 74
Joined: Apr 2016

Machine: Philips Respironics System One 560P (Auto, Aflex, 60 Series)
Mask Type: Nasal pillows
Mask Make & Model: PR Dreamware Frame Med, Pillow MW
Humidifier: Remstar System One - Hose Unheated
CPAP Pressure: low 8.5, high 12.5, expting
CPAP Software: SleepyHead EncoreBasic

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Sex: Male
Location: NJ

Post: #59
RE: CPAP nightmare
If you'd like to try a breathing exercise, I might suggest number 8 on the site below. No medicine, little time, possibly quick results. It's just a basic mindfulness technique, recommended to me by a CBT therapist. (I have no personal connection to the site.)

[URL workaround link to commercial website removed per Apnea Board rules. To get to the files Ron is referring to, simply go a Google search for "The Healing Power of the Breath by Richard P. Brown, MD,"]


Good luck to you,

-Ron



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We are such stuff
As dreams are made on, and our little life
Is rounded with a sleep.
09-17-2016 12:20 PM
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KSMatthew Online

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Machine: PR DreamStation Auto
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Mask Make & Model: ResMed Swift FX
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Sex: Male
Location: Kansas, United States

Post: #60
RE: CPAP nightmare
Eventually the cpap will become "normal" and you'll wonder how you ever got along without it. I know you're using medication to cope with a lot of things right now. Maybe try something to snap your brain away fom thinking about the cpap whike you are asleep? A white noise of some kind? A box fan next to the bed was my old trick years ago.
09-17-2016 12:21 PM
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