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Can DME/Doctor see when I change settings?
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chrysos Offline

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Posts: 11
Joined: Feb 2016

Machine: Respironics Dream Machine Auto Pap
Mask Type: Nasal pillows
Mask Make & Model: Dreamwear
Humidifier: Respironics
CPAP Pressure: 5-20
CPAP Software: EncorePro

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Sex: Female
Location:

Post: #1
Can DME/Doctor see when I change settings?
I'm very new to all this but I'm a geek so I've downloaded EncorePro and the Sleepyhead beta that supports the PR Dream Machine.

I've been communicating well with my DME rep, he's been great. Pressure is set at 5 minimum to 20 maximum. My best night was the second night pressure was between 5-15 most of the time, AHI was 7. AHI was between 7-24 total with most nights 11-12. I'm just getting started so I'm not going to obsess about these numbers so soonSmile

I'm just wondering, if I do get to the point (after more time on the machine and reading the software) where I want to change some of the settings, can the DME or Dr see that I have made changes? If so, how do people handle this?

Thanks!
03-07-2016 12:33 PM
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OpalRose Offline

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Posts: 3,170
Joined: Nov 2014

Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #2
RE: Can DME/Doctor see when I change settings?
Most Doctors and DME's don't check on whether you change your pressure. Their only concern is if you are compliant for insurance purposes. They can see a pressure change only if you are sending your information to them, but again that's not the first thing they look at. They look at compliance.

If you fall under Medicare compliant rules:
Medicare requires a data report from the patients (PAP) device which documents use of said device for at least 4 hours per night on 70% of nights for a 30 consecutive day period during the first 90 days after starting treatment.

Your goal should be to get your AHI at 5 and under, but changes to your pressure should only be made based on the breakdown of your AHI numbers and also where your 95% and average numbers fall.

OpalRose
(This post was last modified: 03-07-2016 12:59 PM by OpalRose.)
03-07-2016 12:53 PM
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justMongo Offline

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Posts: 3,849
Joined: Sep 2013

Machine: ResMed VPAP Auto (S9)
Mask Type: Full face mask
Mask Make & Model: ResMed Mirage Quattro
Humidifier: ResMed H5i
CPAP Pressure: 18 IPAPmax - 11 EPAPmin, PS=5
CPAP Software: Other Software

Other Comments: μολὼν λαβέ

Sex: Male
Location: Калифорния

Post: #3
RE: Can DME/Doctor see when I change settings?
(03-07-2016 12:33 PM)chrysos Wrote:  I'm just wondering, if I do get to the point (after more time on the machine and reading the software) where I want to change some of the settings, can the DME or Dr see that I have made changes? If so, how do people handle this?

I don't know about your machine. With the ResMed 10 series machines, "they" can see and even change your settings via the cellular modem.

I've see several cases where people were offended that their settings were remotely changed without notice.

I've only heard of one case where a person got pushback for changing their settings. IIRC: The doctor was unwilling to continue to treat the patient. This is a very rare outcome.

Considering how wide your present settings are, I doubt your doctor would object, if he/she found that you narrowed the pressure window.

As far as my DME, I won't let them near my machine.
(And my S9 has no remote data interface.)

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03-07-2016 01:06 PM
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bwexler Offline

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Posts: 563
Joined: Mar 2012

Machine: PRS 1 BiPAP autoSV Advanced, with Heated Tube humidifier
Mask Type: Nasal mask
Mask Make & Model: Sleepweaver Élan
Humidifier: Resperonics Heated Tube humidifier
CPAP Pressure: Max pressure 25.0 cm H20, Max
CPAP Software: SleepyHead EncorePro

Other Comments: CMS 50i with Software for SpO2

Sex: Male
Location: San Marcos, CA, USA

Post: #4
RE: Can DME/Doctor see when I change settings?
I have been on PAP therapy for 5 1/2 years.
I have been adjusting my settings for 5 1/2 years.
It is very rare for a doctor or DME to see or touch my machine after they hand it to me the first time, maybe a total of 4 times.
I have been known to make adjustments exactly opposite of the doctors recommendations and had beneficial results.
It is your life, your health and your machine. The doctors and DMEs are folks you hire to advise and or provide stuff. I am not aware of any law yet, that allows them to decide if you live or die or how you choose to treat your own medical conditions.
It is wise to take council from multiple sources including feed back from your equipment and LEARN to manage your own therapy.
No one cares as much about your health as you do.
03-07-2016 02:39 PM
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PoolQ Offline

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Posts: 986
Joined: Jul 2015

Machine: AirCurve 10 VAUTO
Mask Type: Full face mask
Mask Make & Model: Amara View
Humidifier: Integrated
CPAP Pressure: 6.2, 15, PS4.0
CPAP Software: SleepyHead

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Sex: Male
Location: Sillicon Valley

Post: #5
RE: Can DME/Doctor see when I change settings?
As far as I know the modem only works in the US unless you paid extra elsewhere.

Personal experience with my Doctor. If you change therapy settings AND still have problems AND make an appointment my Doctor will check the settings before he sees me. Then it gets like who is in charge? If you want to do this then fine, he sill back out. If I want/need his help then well let him do his job, or at the very least let him know you are making a change and why. Maybe even ask.

As for comfort settings, he does not care at all.

This is a prescription, if you changed you dosage for a pill or stopped taking it all together, well that, to me, is like changing the therapy pressures. Do people do it, sure all the time. Can a Doctor "walk away" if you consistently don't follow their advice, my guess is yes.
03-07-2016 03:00 PM
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OpalRose Offline

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Posts: 3,170
Joined: Nov 2014

Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #6
RE: Can DME/Doctor see when I change settings?
There are very few doctors out there that take the time to understand pressure settings. Most won't even prescribe an APAP.

They send their patients home with a setting of 4-20, which usually doesn't work out well for the patient, and that's why they end up here...for help.

No one is suggesting not following doctor's advice, but if a DME and/or Doctor do not help you, then you, the patient, would be the best advocate for your health.

OpalRose
(This post was last modified: 03-07-2016 03:26 PM by OpalRose.)
03-07-2016 03:12 PM
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Aether087 Offline

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Posts: 18
Joined: Feb 2016

Machine: ResMed airsense 10 autoset
Mask Type: Full face mask
Mask Make & Model: ResMed F10
Humidifier: ResMedAirsense 10
CPAP Pressure: 8 to 14 cmH20
CPAP Software: SleepyHead

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Sex: Male
Location: Central Leatherstocking Region New York

Post: #7
RE: Can DME/Doctor see when I change settings?
I practice cardiac anesthesia and critical care for a living. My preventive cardiologist scheduled my sleep study and subsequent CPAP treatment. The original settings were straight 8 cmH2O CPAP, ramp, EPR 3. This was a no go. I googled resumed Airsnse 10 autoset clinical manual and found this board. Changed my settings without permission and all is going well. Still need to tweak my settings as my next appointment is 4/22 and I will not be waiting until then to optimize my therapy.

I am impressed by the level of caring, concern, and knowledge that is present on this board. I admit that I do have some prejudices re consumers adjusting their therapy without a thorough understanding of the process. However, I do not find a lack of knowledge prevalent on this board. I find that most are on the correct track although sometimes for not exactly the correct reasons. I may offer some corrections if I feel that people are way off the track.

I am all for dealing with knowledgeable, empowered patients. I salute all of you on this board and I am thrilled to be part of this endeavor
03-07-2016 03:30 PM
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_cy_ Offline

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Posts: 24
Joined: Dec 2015

Machine: Resmed AirCurve 10 Vauto
Mask Type: Nasal mask
Mask Make & Model: Respironics Wisp
Humidifier: Resmed Humidair
CPAP Pressure: 4 to 14
CPAP Software: ResScan SleepyHead

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Sex: Male
Location:

Post: #8
RE: Can DME/Doctor see when I change settings?
amazing the amount of support on this forum ..
for the aircurve 10 series, one can run with airplane mode on all the time. this stops all transmission of data.
03-10-2016 08:59 AM
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JudgeMental Offline

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Posts: 324
Joined: Feb 2012

Machine: Respironics DreamStation Auto-CPAP
Mask Type: Full face mask
Mask Make & Model: Respironics Amara View
Humidifier: Respironics
CPAP Pressure: 11-14
CPAP Software: SleepyHead

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Sex: Male
Location: Florida USA

Post: #9
RE: Can DME/Doctor see when I change settings?
I have been a CPAP/APAP user for 12 years and have had a need or have needed someone to invade my machine for whatever reason. The newer machines (have the communication ability) but I think that it would be used in rare cases, such as with a patient request, or used with in conjunction with a patient who is incapable or with certain disabilities.

Yesterday is history; Tomorrow is a mystery; Today is a gift; Thats why its called "The Present".
03-10-2016 11:35 AM
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