I have been struggling to use bipap for 5 years now with no success whatsoever!! I am so tired and cranky. I have had my tonsils and adenoids removed and 2 nasal surgeries for a deviated septum, reduced turbinate and sinus sinuplasty. I still cannot breath through my right nostril. Not only did the surgeries not allow me to use the bipap, I still get sinus infections every 2-3 months! I take allergy medicine and allergy shots. I also lost 17 pounds. Nothing has made using the bipap any more comfortable. The only good thing is I am no longer drowning in mucus at night when I lay down!
I just cannot get use to the mask, any mask. The straps that go across my face and over or around the ears totally bothers me. And I am always crushing the hose or moving it. I sleep on my side and when I wear the new mask, the hose either pulls the mask out of position or the pillow and the mask fight making the mask uncomfortable and leak. Can't they design these things any better? I cannot breath out against the pressure and cannot seem to "try to sync my breathing with the machine." I use the ramp feature and set the ramp pressure to 4/10. I want to throw it out of the window!! I did find one mask design that is tolerable that is an nasal cup and the hose goes over the head and there are NO face straps, but alas they stop making it.
Last week when I tried to use the new nasal pillows, I came down with another sinus infection. I feel like I am going to go crazy. And you can forget tying to use bipap when you have a sinus infection.
I have thought of running the awful gantlet of trying to get a new bipap that suppose to "breaths with you", but just thinking about it make me tired. When I first got this stupid thing in 2009, they just threw it at me and said go at it. No instructions on cleaning, no information on filters, no information on getting new or replacing anything, no information on heated hoses, just let the water from the heated humidifier spit up your nose and try to breathe. Yes, that happened. I have been too fearful to try the heated humidifier again.
I had to read my insurance the riot act to get filters and a new mask. Now I have filters, but obviously, the do not work. I might try to convince insurance to spring for a cleaning/drying machine. But they keep calling me wanting to know how long I have used my machine. Even if I could use it, how would I know that because they did not give me any information on how to use the software!
Between my struggles with bipap and VERY uniformed medical community where I live, it is really tough. I guess I am just looking for some suggestions, encouragement, and ideas on how to deal with a machine that I really hate.