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Can't keep mask on
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Harryl Offline

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Posts: 14
Joined: Mar 2012

Machine: Resmed S9
Mask Type: Nasal pillows
Mask Make & Model:
Humidifier: Resmed
CPAP Pressure: 4-16
CPAP Software: ResScan

Other Comments:

Sex: Male
Location:

Post: #1
Can't keep mask on
I have been declining steadily in my ability to use my Cpap equipment.
Somewhere in the last couple months I have developed the habit of falling asleep without my mask on and or mostly taking it off without being aware.
Sometimes when it's on an apnea event will wake me while I'm wearing it. At least I think it's an apnea event. I'm often having a bad dream that seems to be caused by the inability to breath. Other times I just take the mask off, in my sleep and go back to sleep. I do sleep but sometimes only an hour or two, other times up to 3-4 hours, without the mask. When I do wake from sleeping without the mask its often with a racing heartbeat or just a general uneasiness of not sleeping well. My machine says my ahi numbers are in the .5 to 3.0 range during the short periods, generally a few hours or less, sometimes 1/2 hour, when I do use the machine. I've tried experimenting with a fixed pressure using the epr set at 3 versus the variable pressure that was working for me. I almost never slept more that 3-4 hours at a time without waking before, while using Cpap but would frequently get 5-6 hours total by going back to bed. Those days seem long gone. have I developed central apneas? Headed back to the doc this week but not sure what to tell her. Anybody have
Any insights!
03-04-2013 08:38 AM
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PaulaO2 Offline
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Posts: 8,065
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #2
RE: Can't keep mask on
Taking off the mask is a common thing. There's a few things to try. One is to sit during the day with the mask and machine on. This gets you used to the feelings and sensations of the mask, the air, etc. A few days at an hour or so at a time.

Another thing to try is to take a string or something and attach the hose to your pillow. This means that when you take off the mask, it can't go anywhere and the sound/sensation of the air should wake you.

If you are taking off the mask and the machine is still running, then those AHI numbers are worthless. The AHI is the number of events divided by the number of hours the machine was on. So if you spent 5hrs with it on but only one asleep, the AHI it calculates is wrong.

The EPR is considered a comfort feature. It lowers the exhale pressure. Some people sleep better without it and some people say their AHI is better without it. Any experimenting you do has to be done over time. Making a change just for a night or two isn't going to prove or disprove anything. It needs at least 7-10 nights to establish any hint of a trend. No two nights are the same so it takes a lot of nights to see anything.

PaulaO2
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www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
03-04-2013 09:55 AM
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Harryl Offline

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Posts: 14
Joined: Mar 2012

Machine: Resmed S9
Mask Type: Nasal pillows
Mask Make & Model:
Humidifier: Resmed
CPAP Pressure: 4-16
CPAP Software: ResScan

Other Comments:

Sex: Male
Location:

Post: #3
RE: Can't keep mask on
Paul
Thanks a lot but my machine cuts off
When the mask comes off.
I have been using Cpap for 3-4 years so
I'm use to the mask. Somehow I think I'm not
Going air even with the machine on so the mask
Comes off. I think I've learned to keep my
Mouth closed right even without a chin strap
So to breath it must come off. Then I fall asleep.
What's surprising is how much I do manage
To sleep without it. Some nights it's considerable
While others are marginal. Either way I'm distressingly
Going backward in my Ability to use Cpap
And sleep. I have been experimenting
With constant pressure if 10-11 against the
Auto settings but the mask seems to come
Off even quicker with the constant Cpap versus
The auto.
03-04-2013 10:15 AM
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vsheline Online

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Posts: 1,908
Joined: Jul 2012

Machine: S9 VPAP Adapt (USA Model# 36007, not better 36037 or 36067)
Mask Type: Full face mask
Mask Make & Model: F10 or SimPlus w/ 2Liners. MirageQuatro & Gecko gel pad
Humidifier: H5i
CPAP Pressure: 15 EPAP, PS 5-10
CPAP Software: ResScan

Other Comments: Marfan Syndrome, chronic bradycardia, occasional Cheyne-Stokes Respiration

Sex: Male
Location: California, USA

Post: #4
RE: Can't keep mask on
(03-04-2013 10:15 AM)Harryl Wrote:  I have been using Cpap for 3-4 years so¬†
I'm use to the mask. Somehow I think I'm not
Going air even with the machine on so the mask
Comes off. I think I've learned to keep my
Mouth closed right even without a chin strap
So to breath it must come off.
(snip)
I have been experimenting 
With constant pressure if 10-11 against the
Auto settings but the mask seems to come
Off even quicker with the constant Cpap versus
The auto.

Hi Harryl,

If you have the S9 Escape Auto it would be helpful to have that info in your user profile.

I take it AHI and hours are the only things your machine reports, but if not then is your pressure between 4-8 when the mask comes off or is the pressure at the top of your range, 16?

If you have the Escape Auto and do not have full data, then I suggest you might be taking off the mask when the pressure is too low, either when 4-8 or when unable to go above 16 (or 11 if using 10-11).

I suggest asking for a home titration (7 to 30 days, the more the better) using the fully data-reporting S9 AutoSet (not S8 AutoSet). I think this would likely provide MUCH more useful info than a few hours of overnight sleep study. And at much less cost. And an overnight sleep study could be done after the home titration, if called for, after your doctor (and you) have reviewed the data from the home sleep study.

At the very least, ask your doctor to raise pressure range from 4-16 to 9-16 or 9-20.

Take care,
--- Vaughn

Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment. The Advisory Member group provides advice and suggestions to Apnea Board administrators and staff on matters concerning Apnea Board operation and administrative policies - not on matters concerning treatment for Sleep Apnea. I think it is now too late to change the name of the group but I think Voting Member group would perhaps have been a more descriptive name for the group.
(This post was last modified: 03-04-2013 01:07 PM by vsheline.)
03-04-2013 01:01 PM
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Sleepster Offline
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Machine: ResMed AirCurve10 VAuto
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: HumidAir and SlimLine Hose
CPAP Pressure: MaxI 13.6 | MinE 5.2 | PS 4.4
CPAP Software: ResScan SleepyHead

Other Comments: Diagnosed Nov 2011. Conquered aerophagia.

Sex: Male
Location: Houston, Texas

Post: #5
RE: Can't keep mask on
(03-04-2013 10:15 AM)Harryl Wrote:  I have been using Cpap for 3-4 years so
I'm use to the mask. Somehow I think I'm not
Going air even with the machine on so the mask
Comes off.

Are you conscious of the fact that you're removing it?

You're right in that you are damaging your body by not wearing it. You're also not training your mind to sleep properly because it's always afraid it'll have to wake you to make you start breathing again.

I would suggest you see a good doctor or respiratory therapist and get these problems sorted out.

Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
03-04-2013 03:41 PM
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PollCat Offline
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Posts: 1,576
Joined: Feb 2012

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: ResMed AirFit P10
Humidifier: H5i Cleanable with ClimateLine
CPAP Pressure: 10 - 18
CPAP Software: SleepyHead

Other Comments: CPAP-ing since 1995; Type 2 Diabetes; Chronic Asthma; Gout

Sex: Male
Location: Westfield, IN

Post: #6
RE: Can't keep mask on
Maybe it's time to try a different type of mask.


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA.
INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
03-04-2013 04:26 PM
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zonk Offline

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Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #7
RE: Can't keep mask on
(03-04-2013 08:38 AM)Harryl Wrote:  have I developed central apneas? Headed back to the doc this week but not sure what to tell her. Anybody have
Any insights!
You don,t say which S9 do you use. S9 AutoSet and Elite flag central apnea while Escape and Escape Auto don,t

Tell her what you said here and do mention about the heart racing, its the second time you talked about heart racing
03-04-2013 05:11 PM
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PaulaO2 Offline
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Posts: 8,065
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #8
RE: Can't keep mask on
It may also be time for another sleep study. Some folks need follow up ones if stuff changes too much.

If the machine turns off when you take off the mask, then I suggest you turn off the SenseAwake feature. That way it does wake you and you can put it back on.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
03-04-2013 05:32 PM
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zonk Offline

Advisory Members

Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #9
RE: Can't keep mask on
(03-04-2013 05:32 PM)PaulaO2 Wrote:  If the machine turns off when you take off the mask, then I suggest you turn off the SenseAwake feature.
Harry uses S9. You must be thinking still in Premo Icon thread
lots-o-coffee Coffee
03-04-2013 08:20 PM
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PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,065
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #10
RE: Can't keep mask on
Crap. What's the name of the ResMed's on/off feature? I get them all mixed up after a while.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
03-04-2013 08:26 PM
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