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Catch 22
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Sevensox Offline

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Posts: 55
Joined: Apr 2013

Machine: REMstar Auto A-Flex
Mask Type: Full face mask
Mask Make & Model: ResMed Ultra Mirage Full Face Mask LG STD 60604
Humidifier: System One Heated Humidifier
CPAP Pressure: 16.7
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Missouri

Post: #11
RE: Catch 22
Sorry to hear your having so much trouble. Find a professional CPAP therapist to help you with fitting your mask. They work with these products day in and day out. They will be better able to help you. As has been said before, getting the right fitting mask is 80 to 90 percent of the solution. Good luck.
04-09-2014 10:24 AM
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Bagel Offline

Members

Posts: 9
Joined: Apr 2014

Machine: ResMed
Mask Type: Full face mask
Mask Make & Model: REsMed
Humidifier: RESMED
CPAP Pressure: 10
CPAP Software: Not using software

Other Comments:

Sex: Male
Location: New York

Post: #12
RE: Catch 22
(04-09-2014 07:47 AM)Dgsr Wrote:  I'm curious what kind of leak rate you have been shooting for with your other masks?

Are you sure you're not just cranking these masks down beyond comfort striving for a 0 leak?

The leaking I can deal with but having a Stage 2 Pressure Ulcer of my nose is the problem.If it reaches stage 3 or 4 it could be fatal.
(04-09-2014 10:24 AM)Sevensox Wrote:  Sorry to hear your having so much trouble. Find a professional CPAP therapist to help you with fitting your mask. They work with these products day in and day out. They will be better able to help you. As has been said before, getting the right fitting mask is 80 to 90 percent of the solution. Good luck.

I've tried 3 different therapists to date .
(This post was last modified: 04-09-2014 11:04 AM by Bagel.)
04-09-2014 11:02 AM
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Dgsr Offline

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Posts: 49
Joined: Jan 2014

Machine: S9 VPAP Auto
Mask Type: Full face mask
Mask Make & Model: Mirage Quattro
Humidifier: H5i
CPAP Pressure: I - 18, E - 14
CPAP Software: ResScan SleepyHead

Other Comments: Beard

Sex: Male
Location: Alabama

Post: #13
RE: Catch 22
(04-09-2014 11:02 AM)Bagel Wrote:  The leaking I can deal with but having a Stage 2 Pressure Ulcer of my nose is the problem.If it reaches stage 3 or 4 it could be fatal.

I'm not sure you're understanding what I meant.

I meant, to cause that kind of damage with that array of masks, it sounds to me like you have been tightening them too much. Especially with the use of mask liners, etc.

So, when trying out those masks, were you overtightening them?
04-09-2014 11:17 AM
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Bagel Offline

Members

Posts: 9
Joined: Apr 2014

Machine: ResMed
Mask Type: Full face mask
Mask Make & Model: REsMed
Humidifier: RESMED
CPAP Pressure: 10
CPAP Software: Not using software

Other Comments:

Sex: Male
Location: New York

Post: #14
RE: Catch 22
(04-09-2014 11:17 AM)Dgsr Wrote:  
(04-09-2014 11:02 AM)Bagel Wrote:  The leaking I can deal with but having a Stage 2 Pressure Ulcer of my nose is the problem.If it reaches stage 3 or 4 it could be fatal.

I'm not sure you're understanding what I meant.

I meant, to cause that kind of damage with that array of masks, it sounds to me like you have been tightening them too much. Especially with the use of mask liners, etc.

So, when trying out those masks, were you overtightening them?

i do not believe so.My wife ,an RN has been assisting me.
04-09-2014 08:42 PM
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vsheline Offline

Advisory Members

Posts: 1,908
Joined: Jul 2012

Machine: S9 VPAP Adapt (USA Model# 36007, not better 36037 or 36067)
Mask Type: Full face mask
Mask Make & Model: F10 or SimPlus w/ 2Liners. MirageQuatro & Gecko gel pad
Humidifier: H5i
CPAP Pressure: 15 EPAP, PS 5-10
CPAP Software: ResScan

Other Comments: Marfan Syndrome, chronic bradycardia, occasional Cheyne-Stokes Respiration

Sex: Male
Location: California, USA

Post: #15
RE: Catch 22
(04-07-2014 02:30 PM)Bagel Wrote:  I was diagnosed with chronic sleep apnea .After trying 6 different masks I still am suffering plus I now was diagnosed with Stage 2 Pressure Ulcer of the nose .Stages 3 and 4 can be fatal.

(04-08-2014 09:03 AM)herbm Wrote:  I am not familiar with all of the masks you list by name, but another idea if you haven't tried it is a TRUE "Full Face Mask" -- one that doesn't touch your nose, but rather covers you mouth, nose, and eyes.
... Such a true FFM will cover the full face much like the mask used by firefighters when entering smoke filled areas.)

Consider the Respironics FitLife:
http://www.healthcare.philips.com/us_en/...efault.wpd

or the Respironics Total Face Mask:
http://www.healthcare.philips.com/us_en/...efault.wpd

I've tried the FitLife. I think it works best with constant pressure therapy, where there is not more than a difference of 3 between the IPAP pressure and the EPAP pressure. If the pressure difference between IPAP and EPAP is too large, the mask does push-ups on your face every time you take a breath, which can be gotten used to but would be annoying to some.

My main comment about the FitLife mask is that the Large size was too narrow, so I bought the Extra Large size. I have a large head and the Extra Large mask fit me fine, but the Extra Large headgear is very stretchy and stretches out gigantically and absurdly huge. I would suggest ordering the headgear separately from the mask and ordering the headgear at least one size or perhaps better TWO sizes smaller than the mask size.

Take care,
--- Vaughn

Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment. The Advisory Member group provides advice and suggestions to Apnea Board administrators and staff on matters concerning Apnea Board operation and administrative policies - not on matters concerning treatment for Sleep Apnea. I think it is now too late to change the name of the group but I think Voting Member group would perhaps have been a more descriptive name for the group.
(This post was last modified: 04-13-2014 04:12 AM by vsheline.)
04-13-2014 03:59 AM
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Bagel Offline

Members

Posts: 9
Joined: Apr 2014

Machine: ResMed
Mask Type: Full face mask
Mask Make & Model: REsMed
Humidifier: RESMED
CPAP Pressure: 10
CPAP Software: Not using software

Other Comments:

Sex: Male
Location: New York

Post: #16
RE: Catch 22
(04-13-2014 03:59 AM)vsheline Wrote:  
(04-07-2014 02:30 PM)Bagel Wrote:  I was diagnosed with chronic sleep apnea .After trying 6 different masks I still am suffering plus I now was diagnosed with Stage 2 Pressure Ulcer of the nose .Stages 3 and 4 can be fatal.

(04-08-2014 09:03 AM)herbm Wrote:  I am not familiar with all of the masks you list by name, but another idea if you haven't tried it is a TRUE "Full Face Mask" -- one that doesn't touch your nose, but rather covers you mouth, nose, and eyes.
... Such a true FFM will cover the full face much like the mask used by firefighters when entering smoke filled areas.)

Consider the Respironics FitLife:
http://www.healthcare.philips.com/us_en/...efault.wpd

or the Respironics Total Face Mask:
http://www.healthcare.philips.com/us_en/...efault.wpd

I've tried the FitLife. I think it works best with constant pressure therapy, where there is not more than a difference of 3 between the IPAP pressure and the EPAP pressure. If the pressure difference between IPAP and EPAP is too large, the mask does push-ups on your face every time you take a breath, which can be gotten used to but would be annoying to some.

My main comment about the FitLife mask is that the Large size was too narrow, so I bought the Extra Large size. I have a large head and the Extra Large mask fit me fine, but the Extra Large headgear is very stretchy and stretches out gigantically and absurdly huge. I would suggest ordering the headgear separately from the mask and ordering the headgear at least one size or perhaps better TWO sizes smaller than the mask size.

Take care,
--- Vaughn


I am on Medicare .I have to wait till august to get another mask,
04-13-2014 10:29 AM
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