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Central Sleep Apnea Treated But Still Feeling Bad
#1
Central Sleep Apnea Treated But Still Feeling Bad
I'm struggling despite using a Resmed Air Curve 10 for for mainly Central sleep apnea and obtaining AHIs of well under 5, usually under 1.

I'm a man just turned 60.  Throughout adulthood I've snored and never felt I got a good nights sleep. 30 years ago I had a rhinoplasty that helped my snoring a little. My feeling tired during the day was manageable until about 5 years' ago, when I began to feel really tired, began to get severe nose pain, became depressed and had to give up work.  I got rid of the depression and reduced the nose pain but the tiredness continued.  After a limited home sleep study I was given a CPAP machine that helped, only for the benefit to tail off.  I began to develop restless legs syndrome, for which I take Pramipexole/Mirapex with some degree of success, and felt increasingly cr@p during the day.  A full sleep study showed central sleep apneas with periodic limb movements and I was upgraded to the Aircurve 10.

I generally have no problem falling asleep and get an unbroken night's sleep but I still feel cr@p and sleepy during the day, a bit like having a hangover without the headaches (and the fun the night before).  Dozing appears to make no difference.  Blood tests show blood sugar at the high end of normal but not much else.  Taking vitamin supplements makes no difference.  I also have periods of chronic dry coughing that I put down to the Aircurve use.

If I doze on my back without the Aircurve I wake up with a start feeling as If I'm suffocating.  Despite keeping fit, running 2-3 miles every other day, suggesting that there is no problem with my lungs, I can feel smothered during the day if I'm triggered.

I'm at my wit's end to identify a cause for my feeling cr@p.  All I'm left with is being stuck with it, my brain somehow being damaged or malformed and beyond the capabilities of modern medicine.  It's making life barely worth living (there's no chance that I'll give up, so don't be concerned).

Has anyone got something that they can help me with, if only to let me know that I'm not alone?
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#2
RE: Central Sleep Apnea Treated But Still Feeling Bad
(12-01-2019, 11:48 AM)Chequebook Wrote: I'm struggling despite using a Resmed Air Curve 10 for for mainly Central sleep apnea and obtaining AHIs of well under 5, usually under 1.

I'm a man just turned 60.  Throughout adulthood I've snored and never felt I got a good nights sleep. 30 years ago I had a rhinoplasty that helped my snoring a little. My feeling tired during the day was manageable until about 5 years' ago, when I began to feel really tired, began to get severe nose pain, became depressed and had to give up work.  I got rid of the depression and reduced the nose pain but the tiredness continued.  After a limited home sleep study I was given a CPAP machine that helped, only for the benefit to tail off.  I began to develop restless legs syndrome, for which I take Pramipexole/Mirapex with some degree of success, and felt increasingly cr@p during the day.  A full sleep study showed central sleep apneas with periodic limb movements and I was upgraded to the Aircurve 10.

I generally have no problem falling asleep and get an unbroken night's sleep but I still feel cr@p and sleepy during the day, a bit like having a hangover without the headaches (and the fun the night before).  Dozing appears to make no difference.  Blood tests show blood sugar at the high end of normal but not much else.  Taking vitamin supplements makes no difference.  I also have periods of chronic dry coughing that I put down to the Aircurve use.

If I doze on my back without the Aircurve I wake up with a start feeling as If I'm suffocating.  Despite keeping fit, running 2-3 miles every other day, suggesting that there is no problem with my lungs, I can feel smothered during the day if I'm triggered.

I'm at my wit's end to identify a cause for my feeling cr@p.  All I'm left with is being stuck with it, my brain somehow being damaged or malformed and beyond the capabilities of modern medicine.  It's making life barely worth living (there's no chance that I'll give up, so don't be concerned).

Has anyone got something that they can help me with, if only to let me know that I'm not alone?

I can't help you out with any tips or suggestions, but I can tell you that you are not alone. I can't say that I experience every symptom that you do, but I'm going on 15 months of CPAP use and I'm still waiting to feel better. 

My therapy has been going well and my AHI numbers are well below 5. But, when I wake up, I'm good for about 2-3 hours before I begin to feel like I need a nap. I'm 65, and I suspect that I've had sleep apnea for a good many years, before I was diagnosed with it in August of 2018.

I just recently saw my sleep doc and he said all is good. He listened to my heart and lungs and said no problems. I told him of my disappointment with my therapy and he just said to keep at it. He didn't seem too concerned. 

Hang around here some. There are plenty of members who can and will assist you.
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#3
RE: Central Sleep Apnea Treated But Still Feeling Bad
lots of things can affect sleep. the obvious one you mentioned is periodic leg movement.

is your aircurve a vauto or an asv? while there are some vauto settings that help ca, only asv is designed to treat it.

don't let the doc punt on you like that. push them. alternatively, do your own thing with help from here.
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#4
RE: Central Sleep Apnea Treated But Still Feeling Bad
Chequebook, go to the OSCAR link at the top of this page and download the free software. Open Source CPAP Analysis Reporter will use data from the SD card in your Aircurve 10 machine, and allow us to see the settings, and problems you are having. Links in my signature show how to organize and post charts. It is very likely we can help if we can better ascertain what is going on.
Sleeprider
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#5
RE: Central Sleep Apnea Treated But Still Feeling Bad
Let's see the OSCAR data so we know what's going on and that'll help define how we can help you. If you're dealing with Central Apnea, we will do our best to help. Oh and identify your exact machine please, it would show in shiny letters on the bottom right corner on the front of your AirCurve.
Dave Sparky DukeNukem

I'm not a doctor in real or fictional life. My posts include opinions based upon user experience and researched info regarding CPAP therapy and should not be considered medically professional directions or advice.


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#6
RE: Central Sleep Apnea Treated But Still Feeling Bad
Hmm looking on line one of the side effects of Pramipexole is drowsiness. Did you start feeling more tired after taking the Pramipexole ? It may be you need to look at it and any other medications you are taking.
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#7
RE: Central Sleep Apnea Treated But Still Feeling Bad
Thanks all. I really appreciate the help and feeling I’m not alone is a boost. 

I’m travelling home (4 hrs total) and will post up the Aircurve’s version later. I’ll download Oscar tomorrow; I’ve been using Sleepyhead. 

The Pramipexole makes little or no difference. I used the machine for a few weeks before I started on it and did try a period off it to see if there was my effect. I do have fewer leg movements but it has little effect on how I feel the next day.
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#8
RE: Central Sleep Apnea Treated But Still Feeling Bad
It's an AirCurve 10 CS PaceWave (adaptive servo-ventilator (ASV) with two modes: ASVAuto and ASV).
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#9
RE: Central Sleep Apnea Treated But Still Feeling Bad
OK got it, Chequebook. Just like mine. You've got the right tool to take care of centrals, but we'll see what needs tweaked on the chart. I know what this ASV can do, so let's see if we can get it to do what it's supposed to do.
Dave Sparky DukeNukem

I'm not a doctor in real or fictional life. My posts include opinions based upon user experience and researched info regarding CPAP therapy and should not be considered medically professional directions or advice.


Wiki Info for Beginners
OSCAR Chart Organization
Mask Primer
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#10
RE: Central Sleep Apnea Treated But Still Feeling Bad
Did you have an iron panel done before being put on Mirapex?

My sleep doc says he is having really good results giving his patients with RLS IV iron infusions if their labs show that iron levels are on the lower end of the normal range.

Other issues that can lead to constant tiredness and feeling unwell are hypothyroidism and hypogonadism.
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