(11-01-2013, 02:52 PM)robysue Wrote: Thecleanser,
I'm going to break my response up into two posts because I don't want this part to get lost. You write towards the end of your last post:
Thecleanser]Yesterday was sh*t day for me - started burning out by 11AM, advil didn't help -stayed that way for the rest of the day -
Today was more headaches, started before 9AM - after a 200 mg advil around 9:30 AM I was sharp till noon when the advil started to wear off - another 200 mg advil around 1:30PM and I was again sharp till 5:30 pm - the 3rd advil didnt help I was sincerly burning out -
Graphs on the reports are nearly identical.
You are talking about daylong headaches and headaches that last over multiple days. And you're saying that the CPAP data looks about the same on a day with headaches as it does on a day without headaches. You're also talking about treating headache pain with substantial amounts of OTC pain relievers. And you are talking about headache pain immediately returning as soon as the pain reliever wears off and not always responding to taking another dose of the pain reliever.
I bring this up because your description of your headache pain makes it sound like you may have a serious problem with chronic headache pain and that it could be the case that your headaches are causing a substantial amount of your difficulties (maybe even MOST of your difficulties) rather than what's going on with your CPAP and OSA.
Let me be clear: It sounds to me like you are assuming your headaches are somehow related to your PAP therapy not yet being optimized. But chronic headaches can be caused by any number of things (including plain old bad sleep caused by things other than OSA). And chronic headaches can really make your life miserable. But fixing chronic headaches requires figuring out the cause of the headaches and treating that. Sure untreated OSA can cause chronic headaches. But so can migraines. And stress. And muscle knots in the back and neck. And TMJ problems. And congested, inflamed sinuses. And if your AHI is consistently below 5 on CPAP, then chances are, your OSA is well treated and your headaches are NOT being caused by ineffective PAP therapy. So my guess is that your chronic headaches are caused by something other than OSA, and you and your docs need to identify what's causing them and figure out how to treat them.
The description of your headaches does not sound like classic OSA headaches, which typically are present when you wake up and get better (without any pain medication) in an hour or two after waking up. Your description of the headaches sound like one of my old rebound" headaches---a headache literally triggered by taking too much pain medication to treat headache pain. Your phrases "started burning out by 11AM, [i Wrote:advil didn't help[/i]" and "the 3rd advil didnt help I was sincerly burning out" are the giveaway: That used to happen to me when I was dealing with rebound headaches. Unfortunately, the only fix for rebound headaches is to not take too much pain medication for the initial (non-rebound) headache.
In an average month, how many days do you have a noticeable headache? How often do you take an Advil for the headache? How often does the Advil fail to work?
And before you take the first Advil, can you describe the headache pain? Is it stabbing or throbbing? On one side of the head or on both sides? Centered on your forehead? around the eyes? behind the eyes? at the temples? in your jaw? in your sinuses? in your neck? or sort of all over? Other than taking Advil, is there anything that tends to relieve the headache pain?
Okay let me clear this up - and thanks for your response ,
These are not hard core head aches i'm talking about like migraines or pounding head aches - they are ever so slight almost confused with tiredness -they are more of a loss of concentration ( also caused by tiredness) When I wake up i'm clear headed and then soon afterwards my head starts getting foggy. Some times more than others- some times an advil clears me right up as described in my previous post - others it does nothing and I feel like sh*t for the entire day - its some time hard to tell the difference between this foggy head feeling or headache feeling) or just plain being tired. Some times Ill take 3 advils through out the day to clear me up - others 1 in the morning and I'm clear headed and awake for the rest of the day - and other they just wont work cause just plain tired.
then there's yesterday where I woke up got a ever so slight foggy feeling but took no advil and the feeling was gone on its own in an hour and I had a fairly good day till about 4 or 5 pm when I started to burn out hardcore.
Then there's days like today where I woke up and got the foggy feeling pretty strong took an advil by 9 am which did nothing and was soooo damn tired for the whole friggin day.
Now Between today yesterday and the day described before there was no discernible difference in what transpired through out my day - alcohol, staying up late etc... - woke up at the same time had my meals at the same time and went to bed at the same time.
The graph on sleepy head shows slightly more leaks than previous night but no more leaks than on a good days previous report - pressures hangin out around the same - pie graph showing more than 25% CA, yet I can describe it as one of my worse days.
Now for the first year and a half I did not think in the slightest possible way that Cpap might be the cause of this - I was half convinced I had a brain tumor and was going to die and the other half thought it must be TMJ pain or jaw related headaches. I did go and see a neurologist and got an MRI on my head which turned out clean.
I also did go and see an Oral/maxillofacial surgeon who checked me out thoroughly and took a 3D Xrays of my jaw and said that it is not my problem.
I'm not a 100% certain but I believe this Cpap machine and these forced pressures of air are whats causing this - as you can I see I did not come to this conclusion easily. I must take into account that these headaches started some time or shortly after I started Cpap.
My AHI is consistently under 5 - leaks are very low yet I'm having way more bad days than good - and most of my good days I'm usually burnt right out by dinner. So its rare that I'm truly having a good day from morning till bed time.
Pressure is usually hanging out at 8 or 9 to 12 with spikes up to 15 or 16 - on one of my best days it hung out between 4-8 . That is kinda telling me that I need to go to one of these weight loss programs and drop 50 lbs to hopefully lessen the severity of this condition cause clearly this therapy is not working for me the way it should.
Or maybe one of these bilevel machines might help out.