Joined: Mar 2012
Mask Type: Full face mask
Mask Make & Model: Mirage Quatro
CPAP Pressure: 14/16
CPAP Software: Not using software
Location: Upstate NY
RE: Cpap & Autopap NOT working - getting desperate
(11-07-2013 02:11 AM)robysue Wrote:
Thecleanser Wrote:Your so sure that there are other factors at play here in regards to the head aches - I too was very sure that some thing was wrong with me along with the sleep apnea - I got glasses, mouth gaurd,blood pressure pills, seen a neurologist gotr an MRI. Seen the jaw surgeon. My GP though he was quite smart every time he found a problem with me, the need for glasses , blood pressure pills, he was sure my head aches would be gone. None of it helped me.
Headaches are easy to diagnose and very, very difficult to effectively treat. More on this in a bit.
You also write:
Quote:Like I said today was a good day - around 4 or 5 pm when I started to get tired and feel a slight headache - I took a 200 mg advil and yes it perked me up for about 45 mnts. And then back down I went like so many times before . I was going to take another advil but chose not to. Because like so many times before the second advil doesn't work. It doesn't work cause I'm just plain tired and fatigued - so fatigued that my head actually hurts.
Quote:Even now as I type this I'm extremely tired and you could even say my head hurts - I can take all the advils I want right now they just wont do any thing cause I just plain tired and fatigued - I think the reason they seem to help out when taken earlier in the day is cause I'm not quite that tired yet.
These are symptoms of overuse of OTC pain relievers . When you use too much advil (or aspirin or tylenol), they simply become ineffective in pattern like you describe. The first one will work---for a while, but the second (or third or fourth one) will provide no relief at all.
More importantly, when you continue to overuse OTC pain relievers for headache pain, they can actually trigger headaches that are called rebound headaches. A rebound headache is a essentially a headache that starts just as soon as the pain reliever starts to wear off. And sometimes the rebound headache can be even more painful than the original headache was.
When rebound headaches get out of control, a rebound headache can actually start when you fail to take an OTC pain reliever "on time". In other words, if you have been taking an advil shortly after breakfast every day for a mild-to-moderate headache that starts when you are eating breakfast, the first day you don't have a headache at breakfast and you don't take the advil, guess what can happen an hour or so after the time you've been taking that daily advil? A headache can start up---for no better reason than you didn't take the advil. That's what a rebound headache is. And here's the real kicker: The rebound headache can be far more painful than the mild-to-moderate headaches you've been taking the advils for all week long.
Quote:Looking back I've had this problem for a very long time just not as severe as now, but I think I seemed to have hit a tipping point when my body weight went over 260 Lbs 3 years back.( I'm now 285 lbs) Being 6'2 and a heavy set build to my body I'm told I should be around the 200 Lbs .
It's good you're planning on enrolling in a weight loss program. At the very least it should give you more energy and make you feel better. At the very best, it may directly help reduce the severity of the apnea, perhaps by quite a bit.
I am going to listen to the first sleep doctors advise and enroll in a weight loss program.
But I want to conclude by telling you a bit about my own long history with chronic headache pain. My history is not atypical, by the way. Many people with chronic headache pain find that it takes a real effort to find a doctor who is patient enough to treat headache pain. Because treating headache pain usually involves a lot of trial and error.
I know a lot about headaches: I've had chronic headaches my entire life. I get tension headaches, migraine headaches (both mild chronic ones and classic episodic ones with auras), sinus headaches, tmj headaches, "I forgot to eat" headaches, "I ate too much" headaches, "I stayed up too late" headaches, "I sleep too" late headaches, "I'm getting sick with the flu" (or a headcold) headaches, and so on and so forth ... I get double and triple whammies headaches: For example, I can tell hubby that there's both a tmj headache, a tension headache, and a "I think I'm coming down with the flu" headache and they all hurt in different places and different ways at the same time.
And almost all of my headaches (except for the classic episodic migraines with aura) are mild-to-moderate in terms of the level of pain. The thing is, they have always been present in my life. As in: Almost every day of my entire life I've had at least a mild headache most of the day, going at least as far back as when I was 10 years old. (I'm now 55.)
And until 2010, I and my docs basically said, "They're not that painful, even though I get them almost every single day. I'll just live with them."
But in Fall 2010, with the start of PAPing, all kinds of things just got out of control, and one of those things was my chronic headaches.
And since January 2011 I've had numerous doctor's appointments and spent much more time and effort in getting my multiple types of chronic headaches under control so that I am NOT in mild-to-moderate, but chronic daily pain from the headaches every single day.
And the effort to rein in the headaches is largely worth it: Because for a period between October 2011 and December 2012 I was basically headache free---as in almost every day totally headache free for the first time in my whole life. And I could not believe how big of a difference being pain free made in terms of the quality of my day-to-day life.
But the tension headaches and the TMJ headaches started to return in December 2012 and the migraines returned this summer. So I and my headache doc and TMJ dentist have been hard at work at at reining them back under control. It's a huge battle. But I'm finally beginning to make some real progress. And I'm looking forward to being pain free once again.
To give you some idea of just how much is involved in controlling my chronic headaches:
1) TMJ headaches. These are relatively easily managed through night guards. But since starting CPAP, I have developed a tendency to chew through night guards with the frequency that a rabbit eats carrots. The last 6 months my TMJ dentist has been working pretty closely with me in order to figure out how to design a guard that will last longer than 3 months. We think the last one may just work---it's now 6 weeks old and still in remarkably good shape.
2) Tension headaches. Trigger point injections in my back every 4-6 weeks for the last year or so. The trigger points are extremely small, tight, intense muscle knots that cause tension headaches. I also have been taking a muscle relaxant at night to help keep those back muscles relaxed. Slowly the back muscles are relaxing and the number of trigger points is going down. But I'm a long way from not needing them.
3) Migraines. For two years, a vitamin regime prescribed by the neurologist was enough to keep them under control, with a triptan prescribed as a "rescue" medicine for when I felt a genuine killer migraine coming on. (Instructions on the use of the triptan: Don't use it more than once or twice a week.) But this started to fray at the seams this fall and the migraneous vertigo returned. The vertigo is not painful, but it is totally disorienting and it makes it very hard to function. (I'd rather have pain than veritgo, quite frankly.) So it's back to trialing prophylactics until we find one that works (which is easy) and that I can tolerate (which is hard).
4) Sinus headaches. In allergy season, I need to use Flonase and sometimes Zyrtec as well as Flonase not only to breath, but also to keep the sinus headache under control. And allergy season runs from early spring (tree pollen) through summer (grass and weed pollen) through fall (ragweed pollen). I love the first hard freeze and the end of the growing season ...
5) Life-style headaches. I still have to remind myself that I need to eat on time (or I'll get a food headache). Caffeine gives me a headache and I'm largely caffeine free, but sometimes I just can't resist an iced tea at lunch or a real coke. Exercise too hard? I get ah headache. Read too much? I'll get a headache (could be eye strain or neck strain or both). Too much tv? I'll get a headache. Stay up too late? I'll get a headache. Sleep in too late? I'll get a headache. My body craves a regular schedule that my spirit loathes ...
As you can see: Managing my headaches is at least as big of a task as managing my OSA via CPAP. In many ways, it's a larger taks than managing the OSA. But until my headaches are firmly under control again, I will NOT feel at my best. And right now, one of the big symptoms is that I'm tired and in (headache) pain much of the day several days every week. And days when I'm in pain lead to nights where I don't sleep well, which make the next day more problematic ... So getting my headaches under control is a top priority.
So in addition to enrolling in that weight loss program, please ask for a referral to a doc who specializes in treating headache pain. Because you've got some kind of chronic headache pain going on. And while it's probably nothing serious medically speaking, it is seriously affecting the quality of your life. And because it's adversely affecting the quality of your life and the OTC pain relievers are no longer effective in treating it, it's time to get some professional advice and help in reining in those headaches.
Have you tried Botox injections? Cured (mostly) my wifes headaches. Its fairly new proceedure, (Dr. Keith Edwards in Schenectady NY is using the treatment at Empire Neurology).